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507 total results

Comments (460)

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

father passed away from a battle of myelofibrosis

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

Hi @1pearl, There are a number of different blood conditions and cancers with subsets to each....

https://connect.mayoclinic.org/comment/1348374/

www.mayoclinic.org/diseases-conditions/myelofibrosis

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 7:13pm

Your health picture sounds exactly like mine. I’m below normal for hemoglobin and red cells. Platelets...

https://connect.mayoclinic.org/comment/1297988/

pathologist diagnosed it as primary myelofibrosis

Discussion: Anyone with primary myelofibrosis, low risk, asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: May 6 8:02am

Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...

https://connect.mayoclinic.org/comment/1294207/

changed it one month later to probably myelofibrosis

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1 10:39am

Which Mayo Clinic location are you going to? The top doctors at Mayo for this rare...

https://connect.mayoclinic.org/comment/1314708/

me that ET eventually progresses to Myelofibrosis

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28 9:08am

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

In addition, myelofibrosis raised its

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Since early childhood, I have experienced significant exercise intolerance, with an inability to walk distances greater...

https://connect.mayoclinic.org/comment/1408270/

odds of developing V617F-positive myelofibrosis

Discussion: Multiple family members with autoimmune diseases....is there a link?

Support Group: Autoimmune Diseases

Posted: Oct 4 12:57pm

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

thrombocythemia (ET), and primary myelofibrosis

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Those two conditions, along with Myelofibrosis

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

other more serious conditions such as myelofibrosis

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6 8:47am

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890155/

, after 25 or so years, mutated in Myelofibrosis

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I was diagnosed with ET when I was 50. My platelet level was successfully controlled with...

https://connect.mayoclinic.org/comment/1327870/

my ET converted into secondary ET myelofibrosis

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 15 3:39pm

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

my ET converted into secondary ET myelofibrosis

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17 1:30pm

Sorry to hear what you are going through. This is my story I had a cervical...

https://connect.mayoclinic.org/comment/909574/

Thrombocythaemia ET and prefibrotic myelofibrosis

Discussion: Hardware failure from fusions

Support Group: Bones, Joints & Muscles

Posted: Aug 8, 2023

Hi Dawn. Welcome to Connect. You’ve popped into a great conversation with those of us who...

https://connect.mayoclinic.org/comment/1356747/

Mayo who was also having hers for Myelofibrosis

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 26 9:08am

Hi, My BMB was on 2/4/25 and was painless with only the local the NP gave...

https://connect.mayoclinic.org/comment/1282148/

10/25 with ET which she changed to Myelofibrosis

Discussion: CT guided Bone Marrow Biopsy: Your experiences?

Support Group: Blood Cancers & Disorders

Posted: Apr 15 12:24am

Hi Sophie, I started on Hydroxyurea 4 months ago. I was scared to take it because...

https://connect.mayoclinic.org/comment/1352607/

with TET2 and ASXL1 mutations; pre-myelofibrosis

Discussion: F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!

Support Group: Blood Cancers & Disorders

Posted: Jul 20 3:12pm

Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...

https://connect.mayoclinic.org/comment/1231285/

scarring of the bone marrow in MF or myelofibrosis

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 7 7:25am

Welcome to Connect, @lostmonk. High/borderline hemoglobin and hematocrit sometimes can be attributed to asleep apnea or...

https://connect.mayoclinic.org/comment/935997/

https://www.healthline.com/health/myelofibrosis

Discussion: Jak2 Detected, Healthy otherwise, What's next?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi @dunewalker. Welcome to Connect. Your @name brings images of walking along some of my favorite...

https://connect.mayoclinic.org/comment/1253085/

😅 Having lymphoma and myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 8 9:16am