CIDP – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

963 total results

Comments (917)

I have been on IVIG since 8/23 for CIDP, but it also is supposed to help...

https://connect.mayoclinic.org/comment/1183024/

I have been on IVIG since 8/23 for CIDP ... It does help my CIDP, as I can tell

Discussion: Just developed signs of IGA vasculitis ( Henoch Schonlein purpura).

Support Group: Autoimmune Diseases

Posted: Dec 2, 2024

I’m being treated for same as you. I’m hoping IVIG will help in stopping it from...

https://connect.mayoclinic.org/comment/219632/

years for me getting a diagnosis of CIDP ... and I was given this diagnosis of CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 15, 2020

I have SFN, too, but unknown (idiopathic) cause. This is as confirmed with punch biopsy of...

https://connect.mayoclinic.org/comment/1035582/

neurologist for testing of MS and CIDP

Discussion: Please help!! auto immune illness even w/ normal blood test results?

Support Group: Autoimmune Diseases

Posted: Mar 18, 2024

Neuropathy is strange. I have CIDP and 2 other autoimmune disorders, and I'm an infusion RN,...

https://connect.mayoclinic.org/comment/1082812/

I have CIDP and 2 other autoimmune disorders

Discussion: Crawling sensation all over body

Support Group: Neuropathy

Posted: Jun 8, 2024

Fortunately I don't have any autoimmune markers (though runs in our family). My CIDP is managed...

https://connect.mayoclinic.org/comment/1034783/

My CIDP is managed through a neurologist

Discussion: Thigh weakness/foot drop after spine surgery

Support Group: Spine Health

Posted: Mar 16, 2024

@danmccann63 Welcome to Mayo Clinic Connect! I’m glad you found this site. Everyone here is so...

https://connect.mayoclinic.org/comment/1058000/

You said your CIDP is compliments of

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Apr 26, 2024

I've had IVIG treatments for over 2 years for CIDP and small fiber neuropathy. A neurologist...

https://connect.mayoclinic.org/comment/92536/

IVIG treatments for over 2 years for CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Nov 29, 2018

Im here ten months later and waiting to finally see a neurologist in March. I’m in...

https://connect.mayoclinic.org/comment/1245598/

I suspect CIDP because of the symptoms ... fence about mentioning my suspicion of CIDP

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Feb 25 10:18pm

Hi Carrie @sherlock, welcome to Mayo Clinic Connect. I have small fiber PN but I only...

https://connect.mayoclinic.org/comment/156821/

Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 26, 2018

I am not familiar with this condition. I did locate a link for a leading neurological...

https://connect.mayoclinic.org/comment/1169836/

ago for diagnosis and treatment of CIDP

Discussion: CIDP diagnosis after severe GBS long ago, where do I start?

Support Group: Neuropathy

Posted: Nov 8, 2024

https://connect.mayoclinic.org/comment/1246297/

I attribute this issue to my CIDP,as

Discussion: Diapers day and night

Support Group: Kidney & Bladder

Posted: Feb 27 3:22am

Hi @tonyinaus, Welcome to Connect. Since new members are not able to post links for a...

https://connect.mayoclinic.org/comment/645752/

thought I would share the link GBS/CIDP ... Foundation for you - https://www.gbs-cidp.org

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Oct 16, 2021

Most neurologists treat small fiber neuropathy with drugs like cymbalta, lyrica, neurontin,etc. Since I have CIDP,...

https://connect.mayoclinic.org/comment/92547/

Since I have CIDP, the first treatment

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Nov 29, 2018

Yup. Specifically "CIDP". Blood tests indicate the cause is an "autoimmune" condition, for which, infusions of...

https://connect.mayoclinic.org/comment/641257/

Specifically "CIDP".

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Oct 1, 2021

I was on IVIG for five years. Twice I was paralyzed from head to toe with...

https://connect.mayoclinic.org/comment/238697/

was paralyzed from head to toe with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 29, 2020

I was told I had sensory polyneuropathy that is demylenating on emg. No one has treated...

https://connect.mayoclinic.org/comment/318894/

I do Do you think it could be cidp

Discussion: Searching For Diagnosis. CIDP? Please Help Me

Support Group: Neuropathy

Posted: Aug 29, 2020

I am seeing quite a few posts about CIDP. I took a survey and checked quite...

https://connect.mayoclinic.org/comment/1115129/

am seeing quite a few posts about CIDP ... How does one go about confirming CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 31, 2024

Something is very wrong there. Medicare certainly does cover IVIG treatments for CIDP. I was diagnosed...

https://connect.mayoclinic.org/comment/830894/

certainly does cover IVIG treatments for CIDP ... I was diagnosed with CIDP almost four

Discussion: CIDP, Diagnosis, Treatment, Insurance - Medicare and Medicare Part D

Support Group: Neuropathy

Posted: Mar 23, 2023

@nemo1 Wow, the questions you asked. I can barely pronounce ‘polyradiculopathy’! I looked this up and...

https://connect.mayoclinic.org/comment/1024479/

Were you diagnosed with CIDP?

Discussion: Demylinating Sensorimotor Neuropathy vs./ or and Polyradiculopathy

Support Group: Autoimmune Diseases

Posted: Feb 28, 2024

Hi, I have many of the symptoms of CIDP but no diagnosis. One I haven't really...

https://connect.mayoclinic.org/comment/895200/

Hi, I have many of the symptoms of CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 13, 2023