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194 total results
Comments (183)
Hi @darlia, I have the elevated FGFR3 antibody also. My neurologist sent my blood to St...
https://connect.mayoclinic.org/comment/161475/
create so much pain for me but I had to stop ... I started IVIG therapy for months ago
Hi and welcome! Interesting about the IVIG. Too much of anything can cause damage but there...
https://connect.mayoclinic.org/comment/158116/
Interesting about the IVIG. ... was lidocaine infusions until they stopped ... Neurologist has plasmapherisis and IVIG
No problem. He crosses my mind often as I feel horrible for him. Glad he will...
https://connect.mayoclinic.org/comment/281919/
pain before insurance will consider IVIG ... I stopped receiving lidocaine infusions
@isabelle7 , IVIG - intravenous immunoglobulin is given for a wide range of conditions. I was...
https://connect.mayoclinic.org/comment/1108523/
@isabelle7 , IVIG - intravenous immunoglobulin ... The IVIG has no side effects for me ... and has completely stopped effects of ... I stopped the Prednisone around 3 months ... damage became unbearable and went on IVIG
I had IVig infusions for over 2 years but had to stop in February because I...
https://connect.mayoclinic.org/comment/1104693/
I had IVig infusions for over 2 years ... but had to stop in February because ... I had 2 months of IVig infusions with ... medication that was the first one to stop
Oh hell is right! I started falling down a few days after the first Vaccine. I...
https://connect.mayoclinic.org/comment/1096019/
After 2 weeks he got an IVIG and went ... went to his Doctor and went on the IVIG ... a cane instead of a walker, had to stop ... the IVIG . ... are going to start me back on the IVIG
I have more of an advanced form of neuropathy. The IVIG keeps it from progressing if...
https://connect.mayoclinic.org/comment/1076442/
The IVIG keeps it from progressing if ... nerves including brain
If you can stop ... it by taking IVIG therapy.
Thanks for sharing all your experiences. I’m getting IVIg every 2 weeks currently. I have the...
https://connect.mayoclinic.org/comment/1029691/
I’m getting IVIg every 2 weeks currently ... with the hope that I’ll be able to stop
Since I was diagnosed with sfpn or CIDP, I've seen neurologists, pain specialists, a pain therapist...
https://connect.mayoclinic.org/comment/966206/
that helps (implanted in 2017), have IVig ... I stopped the latest one because it
Here is my experience with the Covid Vaccine. First shot Dec 31,2020. Second shot Jan 31,...
https://connect.mayoclinic.org/comment/957856/
Unless I can get IVIG therapy and get ... has tachycardia and an ICD his heart stopped
There is a prescription pain medication that I am calling to get the exact ingredients and...
https://connect.mayoclinic.org/comment/953392/
If you stop it speeds up the progression ... IVIG/ prednisone therapy will slow it
Hello @lmn, regular IVIG infusions were a part of my post treatments plan initially, then stopped...
https://connect.mayoclinic.org/comment/925067/
Hello @lmn, regular IVIG infusions were ... post treatments plan initially, then stopped
I was very interested to hear from you all re your IVIG infusions. 2 years ago,...
https://connect.mayoclinic.org/comment/896978/
interested to hear from you all re your IVIG ... diagnosed with CIPD and put on the IVIG ... improvement, so the infusions were stopped ... After I stopped the IVIG and switched
I have had several rounds of IVIG infusions,every 3 weeks x2 days at home. First time...
https://connect.mayoclinic.org/comment/895810/
I have had several rounds of IVIG infusions ... starting 2022 I did another 7-8 mos of IVIG ... so my neurologist decided we should stop
I have a variant of CIDP and was getting IVIG infusions. They seemed to slow the...
https://connect.mayoclinic.org/comment/893033/
a variant of CIDP and was getting IVIG ... Since stopping, my spasming and leg
I have had several rounds of IVIG infusions at 2days every 3 weeks. First time was...
https://connect.mayoclinic.org/comment/879889/
I have had several rounds of IVIG infusions ... one in Florida, encouraged me to try IVIG ... I felt no improvement,so my doctor stopped
Did you have bone cancer? I see that Prolia is sometimes prescribed for people with bone...
https://connect.mayoclinic.org/comment/222117/
I used to get my IVIG treatments with ... disease that was killing me - turmeric stopped ... BTW, she got her cancer to stop - there
Hi, all! My best friend has SPS and fell about 180 times during the 1st year....
https://connect.mayoclinic.org/comment/49591/
received in the first place was a IVIG ... kind of washes the blood) and has now stopped
Hi, I'm not sure where exactly to put this post, but going to "Home" on websites...
https://connect.mayoclinic.org/comment/157583/
Despite IVIG, Chemo, diets, acupuncture ... followed by a special tea, I have yet to stop ... the neuropathy from progressing (IVIG
I would have your neuro check for autoimmune encephalitis. They sent my spinal fluid to Mayo...
https://connect.mayoclinic.org/comment/174620/
steroids, nothing worked.. so they tried IVIG ... and it stopped the seizures, though
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