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108 total results
Comments (101)
I'm glad you asked.. as I have been posting almost daily about my "experiment" with the...
#34; with the Frankincense and Myrrh NEUROPATHY ... Erythromelalgia conversations are listed ... under Groups, Neuropathy and there ... I've had Erythromelalgia for years
Support Group: Autoimmune Diseases
Posted: May 19, 2019
Like you, I'm afraid of pharmaceutical drugs, too.. I hope you get a diagnosis quickly, but...
rubbing oil "Frankincense and Myrrh NEUROPATHY ... " has been helping my Erythromelalgia ... /Neuropathy feet..
Support Group: Neuropathy
Posted: May 11, 2019
Air conditioned shoes! What a great idea! I have never had Topiramax as treatment.. and I...
Connect while seeing if it helps my Erythromelalgia ... and Neuropathic pain.. it's an ... name is "Frankincense and Myrrh NEUROPATHIC
Support Group: Neuropathy
Posted: May 2, 2019
Laura, your description of your feet sounds exactly like mine... and I have Erythromelalgia along w/...
and I have Erythromelalgia along w/ ... Erythromelalgia seems to be a vascular ... and of course we know what good ole neuropathy
Support Group: Neuropathy
Posted: Jul 2, 2019
Hi @hotfooted -- I thought you might be interested in the following article I found. Cleveland...
Journal of Medicine - Small fiber neuropathy ... numbness with my small fiber peripheral neuropathy ... be contributing to your small fiber neuropathy ... I did see that Mayo Clinic has a Erythromelalgia ... Erythromelalgia Clinic in Minnesota
Support Group: Neuropathy
Posted: Apr 16, 2019
I have an autoimmune condition called Sjogrens. The Erythromelagia started about 10 years ago, but was...
The Erythromelagia started about 10 ... The neuropathy began before that and ... In the last year the Erythromelagia
Support Group: Autoimmune Diseases
Posted: Feb 17, 2021
My mother (71) and daughter (14) have it, and their diagnoses was primary erythromelalgia. Peripheral neuropathy...
it, and their diagnoses was primary erythromelalgia ... Peripheral neuropathy is one of the ... I have symptoms of erythromelalgia as ... well, but I don't have the peripheral neuropathy ... relieve the symptoms of peripheral neuropathy
Support Group: Neuropathy
Posted: Dec 7, 2016
Hi Jim.. Please check out Erythromelalgia........ to see if your symptoms sound like this. I have...
Please check out Erythromelalgia.... ... There is an Erythromelalgia Association ... One thing that helps me is NEUROPATHY
Support Group: Neuropathy
Posted: Aug 28, 2021
After reading others experiences with Erythromelalgia and already dealing with it in my feet, I guess...
After reading others experiences with Erythromelalgia ... preferring to think of my problems as neuropathy
Support Group: Autoimmune Diseases
Posted: Oct 4, 2020
Dear runwthme, I am heavy-hearted to read about your plight. I am so very sorry you...
so many diseased organs and glands, neuropathy ... and/or hemmatologist doc for your Erythromelalgia
Support Group: Autoimmune Diseases
Posted: Oct 3, 2020
Hello @jlander, Welcome to Connect. I have small fiber peripheral neuropathy and just received my COVID...
I have small fiber peripheral neuropathy ... is another specific discussion for erythromelalgia ... - Erythromelalgia: https://connect.mayoclinic.org ... /discussion/erythromelalgia/
Support Group: Neuropathy
Posted: Feb 15, 2021
Fall of 2017 I became very ill with fatigue and tingling in my toes. Blood tests...
feet and asked if he thought I had erythromelalgia ... conclusion that this was small fiber neuropathy ... Erythromelalgia is not dangerous, but
Support Group: Autoimmune Diseases
Posted: Mar 18, 2023
My neurologist thought I had erythromelalgia until I pointed out that my SCN9A gene is normal....
My neurologist thought I had erythromelalgia ... Erythromelagia can be caused by other ... My neuropathy (burning, stinging, numb
Support Group: Neuropathy
Posted: Jul 28 4:18pm
Hello, thank you for starting this discussion - it has helped me a lot personally -...
personally - I never had problems with Neuropathy ... or Eryhtromelalgia and after my first ... dermatologist who stated it could be EM or Neuropathy
Support Group: Neuropathy
Posted: Apr 26, 2021