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112 total results
Comments (104)
I also saw a doctor at JOHNS Hopkins Hospital for evaluation for neuropathy. He had no...
Hopkins Hospital for evaluation for neuropathy ... answers for me either.I also have Erythromelagia
Support Group: Neuropathy
Posted: Dec 3, 2021
Hi Jim.. Please check out Erythromelalgia........ to see if your symptoms sound like this. I have...
Please check out Erythromelalgia.... ... There is an Erythromelalgia Association ... One thing that helps me is NEUROPATHY
Support Group: Neuropathy
Posted: Aug 28, 2021
I have an autoimmune condition called Sjogrens. The Erythromelagia started about 10 years ago, but was...
The Erythromelagia started about 10 ... The neuropathy began before that and ... In the last year the Erythromelagia
Support Group: Autoimmune Diseases
Posted: Feb 17, 2021
Hello @jlander, Welcome to Connect. I have small fiber peripheral neuropathy and just received my COVID...
I have small fiber peripheral neuropathy ... is another specific discussion for erythromelalgia ... - Erythromelalgia: https://connect.mayoclinic.org ... /discussion/erythromelalgia/
Support Group: Neuropathy
Posted: Feb 15, 2021
After reading others experiences with Erythromelalgia and already dealing with it in my feet, I guess...
After reading others experiences with Erythromelalgia ... preferring to think of my problems as neuropathy
Support Group: Autoimmune Diseases
Posted: Oct 4, 2020
Dear runwthme, I am heavy-hearted to read about your plight. I am so very sorry you...
so many diseased organs and glands, neuropathy ... and/or hemmatologist doc for your Erythromelalgia
Support Group: Autoimmune Diseases
Posted: Oct 3, 2020
Laura, your description of your feet sounds exactly like mine... and I have Erythromelalgia along w/...
and I have Erythromelalgia along w/ ... Erythromelalgia seems to be a vascular ... and of course we know what good ole neuropathy
Support Group: Neuropathy
Posted: Jul 2, 2019
Hello teetee7... Are you keeping up with my "experiment" posts on the Frankincense & Myrrh NEUROPATHY...
posts on the Frankincense & Myrrh NEUROPATHY ... surprising that it has done so much for my Erythromelalgia
Support Group: Neuropathy
Posted: May 19, 2019
I'm glad you asked.. as I have been posting almost daily about my "experiment" with the...
#34; with the Frankincense and Myrrh NEUROPATHY ... Erythromelalgia conversations are listed ... under Groups, Neuropathy and there ... I've had Erythromelalgia for years
Support Group: Autoimmune Diseases
Posted: May 19, 2019
Air conditioned shoes! What a great idea! I have never had Topiramax as treatment.. and I...
Connect while seeing if it helps my Erythromelalgia ... and Neuropathic pain.. it's an ... name is "Frankincense and Myrrh NEUROPATHIC
Support Group: Neuropathy
Posted: May 2, 2019
Hi @hotfooted -- I thought you might be interested in the following article I found. Cleveland...
Journal of Medicine - Small fiber neuropathy ... numbness with my small fiber peripheral neuropathy ... be contributing to your small fiber neuropathy ... I did see that Mayo Clinic has a Erythromelalgia ... Erythromelalgia Clinic in Minnesota
Support Group: Neuropathy
Posted: Apr 16, 2019
My mother (71) and daughter (14) have it, and their diagnoses was primary erythromelalgia. Peripheral neuropathy...
it, and their diagnoses was primary erythromelalgia ... Peripheral neuropathy is one of the ... I have symptoms of erythromelalgia as ... well, but I don't have the peripheral neuropathy ... relieve the symptoms of peripheral neuropathy
Support Group: Neuropathy
Posted: Dec 7, 2016
My neurologist thought I had erythromelalgia until I pointed out that my SCN9A gene is normal....
My neurologist thought I had erythromelalgia ... Erythromelagia can be caused by other ... My neuropathy (burning, stinging, numb
Support Group: Neuropathy
Posted: Jul 28, 2024
The burning tingling pain started in my feet mildly in 2017. I was misdiagnosed with neuropathy....
I was misdiagnosed with neuropathy. ... to a Neurologist and was tested for neuropathy ... and the test came out negative for neuropathy ... neurologist who diagnosed me with ERYTHROMELALGIA ... areas because of the vascular part of Erythromelalgia
Support Group: Autoimmune Diseases
Posted: Mar 26, 2024
Prednisone 10 mg/day for about 12 years following serendipitous discovery: Out of concern that new, severe...
harbinger of immune-mediated acoustic neuropathy ... stimulator) to control pain and/or neuropathic ... All patients had acute onset neuropathic ... In two cases, the neuropathy presented ... as an erythromelalgia-like syndrome
Support Group: Neuropathy
Posted: Feb 18, 2024
Hi, I developed a condition called erythromelalgia mid COVID. Spent a year on the medical merry...
Hi, I developed a condition called erythromelalgia ... with the condition I also deal with neuropathy ... have my feet elevated because of the erythromelalgia
Support Group: Neuropathy
Posted: Jan 8 7:56am