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507 total results
Comments (460)
I was diagnosed with myelofibrosis about 4 1/2 years ago. I formerly was diagnosed with essential...
https://connect.mayoclinic.org/comment/132598/
I was diagnosed with myelofibrosis about ... , and am at a moderate level of myelofibrosis
I have myelofibrosis and have been on 10 mg Jakafi for several years. I have found...
https://connect.mayoclinic.org/comment/1379270/
I have myelofibrosis and have been on
Took Hydroxyurea for years to control platelet count. But ,is there a relationship between that drug...
https://connect.mayoclinic.org/comment/50505/
relationship between that drug and Myelofibrosis
Was informed today from Incyte that Jakafi is for all myelofibrosis patients, with and without JAK2...
https://connect.mayoclinic.org/comment/50503/
from Incyte that Jakafi is for all myelofibrosis
Does anyone with Myelofibrosis have high triglycerides and/or low HDL, despite being on a statin?
https://connect.mayoclinic.org/comment/1226243/
Does anyone with Myelofibrosis have
Thanks for the summary. Yes I have Primary Myelofibrosis. I was diagnosed a year ago.
https://connect.mayoclinic.org/comment/1322127/
Yes I have Primary Myelofibrosis.
My mom had myelofibrosis and lived with it for over 30 years. So it can be...
https://connect.mayoclinic.org/comment/893809/
My mom had myelofibrosis and lived with
Welcome to Connect, @dax1million. Myelofibrosis is one of several conditions that is associated with MPNs…myeloproliferative neoplasms....
https://connect.mayoclinic.org/comment/1249272/
Myelofibrosis is one of several conditions ... Primary myelofibrosis or MF, is the ... Myelofibrosis is caused by the buildup ... /discussion/myelofibrosis-24a025/
~ ... ~
What are treatments for myelofibrosis
@stimme, you may want to read this information on myelofibrosis from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/myelofibrosis/diagnosis-treatment/drc-20355062. Have the...
https://connect.mayoclinic.org/comment/251893/
may want to read this information on myelofibrosis ... www.mayoclinic.org/diseases-conditions/myelofibrosis
Hi, @toste. I was diagnosed with prefibrotic myelofibrosis in June. JAK2, ASXL1, ZRSR2 & TET2 mutations....
https://connect.mayoclinic.org/comment/1433724/
I was diagnosed with prefibrotic myelofibrosis
Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...
https://connect.mayoclinic.org/comment/813524/
Myelofibrosis JAK2 I’m currently on
I had horrible thorax itching years before being diagnosed with Myelofibrosis. No specialist could determine the...
https://connect.mayoclinic.org/comment/875274/
years before being diagnosed with Myelofibrosis ... itching was likely the first sign of the Myelofibrosis
Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...
https://connect.mayoclinic.org/comment/1043541/
Do you possibly mean myelofibrosis ( ... have a JAK2 mutation which can cause myelofibrosis ... https://www.healthline.com/health/myelofibrosis ... /what-is-primary-myelofibrosis
~~~~ ... https://www.healthline.com/health/myelofibrosis
Hello friends!! I have confirmed MYELOFIBROSIS! Just started taking OJJAARA ABOUT TEN DAYS AGO ! This...
https://connect.mayoclinic.org/comment/1411968/
I have confirmed MYELOFIBROSIS! ... I would really like to START A MYELOFIBROSIS
Hi, @toste. I looked at your profile and see that you have found Myelofibrosis-related discussions and...
https://connect.mayoclinic.org/comment/1433259/
profile and see that you have found Myelofibrosis-related
988 when diagnosed with ET on 1/10/25 and 844 when diagnosis changed to Myelofibrosis one 2/10/25
https://connect.mayoclinic.org/comment/1281844/
and 844 when diagnosis changed to Myelofibrosis
Welcome to Connect, @godschild56. I encourage you to view this more recent discussion where you will...
https://connect.mayoclinic.org/comment/68481/
who’ve shared their experiences with myelofibrosis ... www.mayoclinic.org/diseases-conditions/myelofibrosis
Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is...
https://connect.mayoclinic.org/comment/1091634/
to meet other members who also have myelofibrosis ... More can be found by typing myelofibrosis ... ~ Myelofibrosis https://connect.mayoclinic.org ... /discussion/myelofibrosis-24a025/?
@steiner Jakafi is the drug I take for CMML and myelofibrosis. The cancers were separate. Each...
https://connect.mayoclinic.org/comment/1432393/
Jakafi is the drug I take for CMML and myelofibrosis
Good luck at Mayo. Would really appreciate hearing about info. received at Mayo re.. Myelofibrosis. Important...
https://connect.mayoclinic.org/comment/50511/
Myelofibrosis.
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