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Comments (71)
Hello @annac3, Welcome to Connect. I’d like to offer some information about genetic conditions that may...
aneurysms: People who are born with Marfan ... syndrome, a genetic condition that ... Those with Marfan syndrome may have ... Besides Marfan syndrome, Ehlers-Danlos ... , Loeys-Dietz and Turner syndromes,
Support Group: Aortic Aneurysms
Posted: Sep 26, 2019
Hi @tammy357, that must be so scary for your friend having no treatment options for their...
my research, I see that Loeys-Diez Syndrome ... is similar to Marfan Syndrome, so i ... wanted to share this discussion on Marfan ... connect.mayoclinic.org/discussion/anyone-with-marfans-syndrome-on-this-thread-please-i-am-looking-for ... son was diagnosed with Loeys-Diez Syndrome
Support Group: Aortic Aneurysms
Posted: Apr 7, 2019
Please, go to a Mayo or johns hopkins in Baltimore. I dissected at 42 type a...
as an FYI I dissected due to having Marfan ... Syndrome which is a connective tissue
Support Group: Aortic Aneurysms
Posted: Jun 19, 2024
I’m 60 now. I had a complete sudden dissection at 50. I understand how worried you...
Communities like Aortic Hope or Marfan ... Foundation (even if you don’t have Marfan ... syndrome, they deal with connective
Support Group: Aortic Aneurysms
Posted: Jan 26 10:27am