Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
35 total results
Comments (34)
I am a daughter of a father who had MM many years ago, and was not...
am a daughter of a father who had MM ... he lived many many years with the MM.What ... he eventually developed was the Amylodosis.What ... nurse, it that most of our patients w/MM
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL Amyloidosis ... find them by doing a search of "Amyloidosis ... experienced specialists in the field of Amy/MM
Posted: Mar 12, 2023
Angiev18, Yes, I did have, and to some extent still do, have local docs who have...
Heart wall thicknesses up to 17-18 MM ... , well past the 12 mm standard. ... Hospital, Mayo, Boston Amyloidosis.
Support Group: Heart & Blood Health
Posted: May 31, 2020
NavyLady, I recognize your problem, but I cannot do much about it but give some simple...
samples to Mayo-MN to have it tested for Amyloidosis ... blood kin have been diagnosed with MM ... decisions that Mayo had confirmed I had no Amyloidosis ... could not rule out other Light Chain Amyloidosis
Support Group: MAC & Bronchiectasis
Posted: Mar 5, 2020
CRISPR doesn't exist yet for treating MGUS/SMM/MM which can be associated with a number of genetic...
;t exist yet for treating MGUS/SMM/MM ... background info and treatments for mostly MM ... The risk for progression of MGUS to MM ... decrease damage, including if someone has amyloidosis
Posted: Oct 27, 2024
@crissy2450 of the eight siblings of my family, and a dozen or so of their grown...
14 have been dX with some form of Amyloidosis ... , including MM, LECT2, Gelsolin, Carnatine
Posted: Sep 18, 2018
@Predictable Sorry about that. I was trying to make the point that, with the stuff you...
over a thousand recognized forms of Amyloidosis ... MM, AL, hATTRwt, CGel, CCys, AH, AAlz ... , Lupus and more., all part of the Amyloidosis
Discussion: Stiff Heart
Support Group: Heart & Blood Health
Posted: Dec 20, 2017
@jeffrow Hi, friend. I think I have written earlier, but I have been thinking about you,...
Multiple Myeloma (MM) Waldenstrom's ... (WM) Smoldering MM *SMM) Primary LiteChain ... + Serum FLC= initial dX screen for MM ... pdf, at: HTTPS://bit.Ly/1w7j4j8 "Amyloidosis
Support Group: Autoimmune Diseases
Posted: Dec 16, 2017
Now having a diagnosis, I just filled out my Bio and will repost here, because it...
alarmed at the prospect of having AL amyloidosis ... necessarily indicate progression to MM ... may progress to disorders OTHER than MM ... , such as AL amyloidosis, Waldenström
Posted: Dec 16, 2023
S. I suggest you chat with your doctor. I found these two references that you may...
for myeloma, macroglobulinemia, or amyloidosis ... of missing a diagnosis of SMM and MM
Posted: Jul 4, 2023
@thulbert0 Sounds rough. Everything I have hurts most of the time. Head, toes, and everything in...
larger, and the heart walls were about 5mm ... wall thickness measurements between 12mm ... and 19mm. ... these are signs of cardiac Light Chain Amyloidosis
Posted: Sep 14, 2018
Why you dont give egcg curcumine and reveratrol in your patients? If you look up in...
diagnostiquee as younger patient of Belgium d amylloidosis'localised ... her heart which was thickened is 19 mm ... it had another septum measure has 19mm ... , in November, 17mm, January, 14mm and ... now 12mm.