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131 total results
Comments (126)
In 1998 I was diagnosed with Palindromic Rheumatism and I started taking Plaquinol. My rheumatologist said...
https://connect.mayoclinic.org/comment/1077474/
She then started me on Kevzara because ... inherited high cholesterol and one of the side ... effects of Kevzara is increased cholesterol
Discussion: Prednisone for over a year along with Kevzara for last 5 months
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 29 9:45pm
I don't have any experience with Kevzara but I have been on Actemra (tocilizumab) since January...
https://connect.mayoclinic.org/comment/1053066/
don't have any experience with Kevzara ... Kevzara and Actemra are in the same ... effects. ... My side effects from prednisone were ... much worse than any side effect I have
Discussion: Starting treatment with Kevzara: My journey
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 18 11:00am
Hi~ I am 55, and I have been dealing with PMR for about 9 years. I...
https://connect.mayoclinic.org/comment/1052932/
months, but could not tolerate the side ... effects. ... Rheumatologist wants me to start on Kevzara ... 🙄 Has anyone been on Kevzara ... What were your side effects?
Discussion: Starting treatment with Kevzara: My journey
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 18 8:49am
Actually Kevzara has few side effects and the ones which exist only affect a few people....
https://connect.mayoclinic.org/comment/1070652/
Actually Kevzara has few side effects ... and the ones which exist only affect ... anything anybody has had as far as side ... effects. ... about 10 patients with pmr and on Kevzara
Discussion: Prednisone for over a year along with Kevzara for last 5 months
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 19 6:09am
I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...
https://connect.mayoclinic.org/comment/1046504/
Kevzara shares the same classification ... Kevzara is FDA approved for PMR. ... Kevzara and Acterma are IL-6 inhibitors ... / I haven't had any serious side ... effects from Actemra.
Discussion: Is it PMR (and/) or Osteoarthritis?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 6 5:52pm
Just to update you I am now down to 7 1/2 mg of prednisone. I could...
https://connect.mayoclinic.org/comment/1062760/
I recently tried Kevzara to help me ... The only uncontrolled serious side effect
Discussion: Did statin cause PMR?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 5 3:17pm
I'm not able to create a link but this is the URL for the report on...
https://connect.mayoclinic.org/comment/1071758/
on the phase 3 clinical trial for Zevzara ... correctly, 28% of the group taking Kevzara ... It discusses lab abnormalities and side ... effects, which appear to be low. ... I will start Kevzara this week.
Discussion: Prednisone for over a year along with Kevzara for last 5 months
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 20 3:02pm
Don't expect an immediate change when starting Kevzara but try to be optimistic. Kevzara doesn't come...
https://connect.mayoclinic.org/comment/1079756/
an immediate change when starting Kevzara ... Kevzara doesn't come with any guarantees ... Good Luck ...your experience with Kevzara ... All my Prednisone related side effects
Discussion: Anyone have discomfort or pain when tapering off prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jun 2 7:31pm
I just started on Kevzara. I did my research on it including reading the report of...
https://connect.mayoclinic.org/comment/1079733/
I just started on Kevzara. ... Yes, there is a rare side effect of ... been around very long and it does affect ... then did not seem to help and I had side ... off the MTX as soon as I started the Kevzara
Discussion: Anyone have discomfort or pain when tapering off prednisone?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jun 2 6:20pm
"Conclusions: Sarilumab showed significant efficacy in achieving sustained remission and reducing the cumulative glucocorticoid dose in...
https://connect.mayoclinic.org/comment/1058100/
remission and can also discontinue Kevzara ... There may be significant side effects ... from Kevzara so there are pros and ... cons to Kevzara and it can be expensive ... However, Kevzara is FDA approved for
Discussion: Does Kevzara put PMR in to remission?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Apr 27 6:59am
I'm in a similar situation. I've been on prednisone for PMR since August 2021. I could...
https://connect.mayoclinic.org/comment/1065669/
The side effects of methotrexate tapered ... Now I will be going on Kevzara. ... doesn't help over time, go on Kevzara ... Kevzara just masks symptoms but that
Discussion: Methotrexate to wean off long term Prednisone for PMR
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 10 6:52pm
I’ve been dealing with my nhi to try to get approved for Kevzara but truth is...
https://connect.mayoclinic.org/comment/1066379/
my nhi to try to get approved for Kevzara ... I have some side effects but sometimes
Discussion: Prednisone to Kevzara
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 12 6:50am
I see many on here many are using Kevzara. I looked up Kevzara and it reduces...
https://connect.mayoclinic.org/comment/1070090/
I see many on here many are using Kevzara ... I looked up Kevzara and it reduces the ... If you look at all the side effects ... possible for Kevzara why would anyone
Discussion: Prednisone for over a year along with Kevzara for last 5 months
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 18 8:59am
So I was on Kevzara from October of last year until February of this year. Did...
https://connect.mayoclinic.org/comment/1065883/
So I was on Kevzara from October of ... Unfortunately I had to come off because it affected ... my white count, a known side effect
Discussion: Prednisone to Kevzara
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 11 8:45am
I need to ask how long you took prednisone before Kevzara was started. Research studies usually...
https://connect.mayoclinic.org/comment/1079883/
how long you took prednisone before Kevzara ... Kevzara allowed a significant number ... within a few months after starting Kevzara ... takes about a year of treatment with Kevzara ... I don't have any serious side effects
Discussion: Prednisone for over a year along with Kevzara for last 5 months
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jun 3 6:14am