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104 total results
Comments (98)
Hi, Jake and Everyone, Caleb's current dose of Epidiolex is 4 ml. twice a day. He...
https://connect.mayoclinic.org/comment/282908/
,
Caleb's current dose of Epidiolex
Hi @minajo I have tried Lamictal and among the 5 AEDs I have tried, this was...
https://connect.mayoclinic.org/comment/1061567/
(@Santosha)
PS: I am nowadays on Epidiolex ... could have his seizures stopped with Epidiolex ... Epidiolex (made from medical cannabis
@tlb101175 I agree with Chris @santosha Last I checked Epidiolex cost around $32,000 a year however...
https://connect.mayoclinic.org/comment/904115/
with Chris @santosha
Last I checked Epidiolex ... Lennox-Gastaut syndrome and tried Epidiolex
Hi, I am Pam Stewart, mother of Caleb, who has had intractable seizures since age 3...
https://connect.mayoclinic.org/comment/627492/
He has been on Epidiolex for over 2 ... Before Epidiolex, he was on Medical ... Epidiolex is covered by insurance for ... Epidiolex is very costly without insurance
@pamelastewart5 Hello again, You have probably read the thread about epidiolex but in case you haven’t...
https://connect.mayoclinic.org/comment/128908/
have probably read the thread about epidiolex ... I thought I read Epidiolex was about
Hi @tlb101175 I take pure CBD in oil format. As far as I know, Epidiolex is...
https://connect.mayoclinic.org/comment/848240/
As far as I know, Epidiolex is also ... Great to know that Edpidiolex controls ... have any of those pathologies that Epidiolex
Thank you, Jake! He takes clobazam and Epidiolex. It’s frustrating when these events like your seizures...
https://connect.mayoclinic.org/comment/1088480/
He takes clobazam and Epidiolex.
Hi Jake, Thank you for such kind words. The epilepsy group here at Mayo Clinic Connect...
https://connect.mayoclinic.org/comment/671895/
Epidiolex (also pure CBD) is also available ... has prescribed Purodiol instead of Epidiolex
pamelastewart5 I wrote earlier but probably forgot to hit “post reply.” For those who don’t know...
https://connect.mayoclinic.org/comment/282901/
Hopefully the drowsiness from the epidiolex ... side effect of both Sympazam & Epidiolex
@socard I agree with the others regarding tapering and getting your neurologists okay. I hope you...
https://connect.mayoclinic.org/comment/737895/
Have you considered Epidiolex?
@pamelastewart5 I assume Epidiolex hasn’t had the desired effect you had hoped for. Clobazam has been...
https://connect.mayoclinic.org/comment/282669/
@pamelastewart5
I assume Epidiolex
Yes, she is at max dose. Haven’t seen any improvements with the epidiolex. We increased her...
https://connect.mayoclinic.org/comment/128937/
Haven’t seen any improvements with the epidiolex ... so will discuss possibly increasing epidiolex
Minajo, I agree with @jakedduck1, Lamictal does not seem to be working well for her, unfortunately....
https://connect.mayoclinic.org/comment/1129084/
Epidiolex (pure CBD) is a medication ... Clinic for a second opinion, having Epidiolex
Hi, @mmas - here's a Mayo Clinic article on the drug approved by the FDA for...
https://connect.mayoclinic.org/comment/241999/
that's sold under the brand name Epidiolex
Epidiolex is CBD and is not psychoactive. The pharmaceutical med isn't cleaned with chemicals. I'm the...
https://connect.mayoclinic.org/comment/828872/
Epidiolex is CBD and is not psychoactive ... would rather have child or myself on Epidiolex
Hi, Caleb always dozes off a lot during the day, and that has not changed. He...
https://connect.mayoclinic.org/comment/242013/
first seizure since he started on Epidiolex
@dvdhoover thanks, I will mention this CBD, and Epidiolex to my Cardiologist Wednesday among other things...
https://connect.mayoclinic.org/comment/322089/
thanks, I will mention this CBD, and Epidiolex
@mmas I’m sorry to hear the Epidiolex isn’t working. Have you tried Intranasal midazolam (Verced?) Does...
https://connect.mayoclinic.org/comment/242009/
@mmas
I’m sorry to hear the Epidiolex
Thanks, Jake. We will bring up the possibility of increasing his dose. At this point, he...
https://connect.mayoclinic.org/comment/242021/
same as he was before we started the Epidiolex
My son has the same disease as I do and it causes him to have non...
https://connect.mayoclinic.org/comment/727585/
It’s a prescription CBD called Epidiolex
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