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72 total results
Comments (67)
Mentor John - Thanks for the update and great news! I was told the same, my...
https://connect.mayoclinic.org/comment/765641/
I was told the same, my axonal PN is ... doc also wants me to take balance therapy
Hi Colleen! Yes, the diagnosis is recent. But, it's not pain. I never had the pain....
https://connect.mayoclinic.org/comment/289663/
Anyway, I just finished 8 weeks of therapy ... Oh, and they also said there is axon
I have Chronic and Severe Sensorimotor Axonal Polyneuropathy plus CMT2 and CMT4B. These are incurable and...
https://connect.mayoclinic.org/comment/1121579/
have Chronic and Severe Sensorimotor Axonal ... I get PT and massage therapy twice a
To be truthful I am surprised also. Dr. Anne Oaklander and her daughter been researching neuropathy...
https://connect.mayoclinic.org/comment/1034897/
I was in IVIG therapy from age 10-18 ... Here is my diagnosis severe axonal sensorimotor
My GI doctor gave me information about Interstim or Axonics Therapy to read. Looks like a...
https://connect.mayoclinic.org/comment/997838/
me information about Interstim or Axonics ... Therapy to read.
Ray - you caught my attention on the “pain” (not that you don’t usually catch my...
https://connect.mayoclinic.org/comment/967345/
I have severe Idiopathic Axonal Sensorimotor ... hug then keep working on my physical therapy ... me that my EMG clearly tells us the Axonal
Axonal doesn't mean "loss". It means long nerve cells as opposed to short fiber cells. ditions...
https://connect.mayoclinic.org/comment/940620/
Axonal doesn't mean "loss" ... Symptoms of axonal peripheral neuropathy ... Treatment for axonal peripheral neuropathy ... pain or other symptoms, and physical therapy ... management are crucial in addressing axonal
Debbie - I've posted before my axonal sensory motor PN and my balance is getting worse...
https://connect.mayoclinic.org/comment/768734/
Debbie - I've posted before my axonal ... week or so ago and working on balance therapy
Hi Ray - Welcome back, I am glad you got a diagnosis, however vague, and thanks...
https://connect.mayoclinic.org/comment/734627/
I was hit suddenly with my axonal PN ... have been physical & occupational therapy ... reading with interest about CBD type therapies
Thank you for asking Every year since I was born, my birthday was a special day...
https://connect.mayoclinic.org/comment/701008/
a formal diagnosis called “severe axonal ... that offered life changing stem cell therapy
Arthritis ... is causing pain in my back that's reaching the 'intolerable' stage. I have been...
https://connect.mayoclinic.org/comment/674725/
do exercises I learned in physical therapy ... I take Gaba and Lyrica for Axonal Sensory
Hello Maura @mauras, Welcome to Connect. Thank you for the private message. I hope you don't...
https://connect.mayoclinic.org/comment/607820/
Sensory Guillain Barre Syndrome with Axonal ... Have you looked into any alternative therapies
@lovethatcamry73 Hello and welcome to Connect. Myelopathy can exist in early stages before it shows up...
https://connect.mayoclinic.org/comment/1219316/
permanent damage where the long nerve axons ... research-aims-to-develop-an-adjunct-therapy-for-cervical-spondylotic-myelopathy
@oakbourne First, I always welcome the questions about Amyloidosis. I have my own story on the...
https://connect.mayoclinic.org/comment/163068/
, also in the nervous system, e.g. axonal ... In HGA, specific therapy is not yet
Hello, @heisenberg34 , I was diagnosed with distal symmetric axonal-demyelinating sensorimotor peripheral neuropathy in 2021 after...
https://connect.mayoclinic.org/comment/1224718/
was diagnosed with distal symmetric axonal-demyelinating ... of lesser-known but very effective therapies ... I pray you will find the therapies that
My mobility is caused by weakness primarily. In 2016, I was stricken over a 10 day...
https://connect.mayoclinic.org/comment/1173509/
for 6 months with extensive physical therapy ... am officially labeled as Idiopathic Axonal ... strong with activity and physical therapy
I have severe axonal sensorimotor polyneuropathy SFN Can - cardiac autonomic neuropathy- they can’t do anything...
https://connect.mayoclinic.org/comment/1076392/
I have severe axonal sensorimotor polyneuropathy ... Dr Oaklander wants me back on IVIG therapy
@bettyg81pain What did I find out? First off, when I went to Mayo in MN in...
https://connect.mayoclinic.org/comment/1032112/
days, I was diagnosed with idiopathic axonal ... They suggested that physical therapy ... There is nothing to fix damage to axons
I have the same thing small fiber neuropathy (autonomic neuropathy) and severe axonal sensorimotor polyneuropathy. There...
https://connect.mayoclinic.org/comment/947351/
(autonomic neuropathy) and severe axonal ... One group had IVIG therapy with prednisone ... I took it as a child IVIG therapy.
Quick story—after 26 years of gout-doctor at Vanderbilt got me on allipurinol 300 to stop and...
https://connect.mayoclinic.org/comment/159498/
more—neurologist(local) said—mild axons ... things going on in back and neck)—light therapy
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