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333 total results
Comments (324)
I have arachnoiditis and have used modafinil for it in the past. It does seem to...
https://connect.mayoclinic.org/comment/835256/
I have arachnoiditis and have used modafinil ... Caffeine also helps a little.
Hi my name is Debbi..I too have Arachnoditis.. diagnosed with it in 1983.. yes many moons...
https://connect.mayoclinic.org/comment/801205/
Hi my name is Debbi..I too have Arachnoditis ... I have
adhesive arachnoiditis of course ... I never felt that they helped anyways ... wished that Dr Forrest Tennant could help ... on the morphine pump and if it has helped
I've a sub arachnoid cyst frontal lobe found by MRI scan after having belles palsy twice....was...
https://connect.mayoclinic.org/comment/774125/
I've a sub arachnoid cyst frontal ... A website Arachnoid Cyst Foundation ... has lots of information which maybe helpful
@suerc I have seen some other posts of yours referring to an accident that shattered the...
https://connect.mayoclinic.org/comment/751140/
happening, but putting ice on my neck helped ... course of prednisone, but it didn't help ... /discussion/arachnoiditis/
– Any ... Adhesive Arachnoiditis members here? ... the holes in the sacrum and that did help
Yes. It made me sleep 12 hours a day. It made me unstoppably hungry, while putting...
https://connect.mayoclinic.org/comment/762626/
Needless to say, gain weight, and no help ... But I also have arachnoiditis now from
K live in High Point NC looking for a specialist for arachnoiditis in 2013 had failed...
https://connect.mayoclinic.org/comment/687260/
Point NC looking for a specialist for arachnoiditis ... SCS want reach.2016 was told I have arachnoditis ... medications but no one I can find to help ... treat the actual problem from arachnoiditis.Please ... help direct me if you can.Thanks.
I am 71. March of 2021 I became paraplegic from the chest down due to Malignant...
https://connect.mayoclinic.org/comment/664131/
chest down due to Malignant Adhesive Arachnoiditis ... am a Viet Nam Veteran so the VA is helping
Good evening @meri91364. It is nice to meet you. Arachnoiditis is a difficult disease to manage....
https://connect.mayoclinic.org/comment/682009/
Arachnoiditis is a difficult disease ... Does that help?
HELLO LISA, I HAVE A.A. STARTED SLOWLY SINCE 2008. WIDE "FAILED LAMINECTOMY" ALL THESE YEARS I...
https://connect.mayoclinic.org/comment/172984/
HE START THE ARACHNOIDITIS FEDERATION ... I DO HAVE A PAIN PUMP IT DOES HELP.
HELLO SCOTT, I HAVE ADHESIVE ARACHNOIDITIS. I CAN NOT BEND, SIT, WALK, COOK, IN WINTER CAN...
https://connect.mayoclinic.org/comment/263716/
HELLO SCOTT, I HAVE ADHESIVE ARACHNOIDITIS ... I AM LOOKING FOR SOME HELP FOR THAT. ... HOW CAN I HELP HIM.
I found no help at Mayo for our condition and especially when their surgeon's did not...
https://connect.mayoclinic.org/comment/207511/
I found no help at Mayo for our condition ... surgeon's did not test me for Arachnoititis ... No help and no research
Please let me know if the stimulators help you at all as my pain is getting...
https://connect.mayoclinic.org/comment/207504/
Please let me know if the stimulators help ... at all as my pain is getting with Arachnoititis
Hello briansr, I too have severe chronic pain, Adhesive Arachnoiditis. Severe damage to the spine, nerves...
https://connect.mayoclinic.org/comment/98635/
have severe chronic pain, Adhesive Arachnoiditis ... I contacted NORD for help contacting ... site if patients need information or help
Hello Peach, I live in NJ. There are many parents who are not well-informed today and...
https://connect.mayoclinic.org/comment/161215/
I don't remember if it helped. ... something has to be done about Adhesive Arachnoiditis ... Your words helped me!
Hug
Yes. I had spinal surgery (laminectomy and fusion) of the area you mention, in 1973. Had...
https://connect.mayoclinic.org/comment/248037/
2009, and then by a specialist in Arachnoiditis ... Pantopaque contrast material, causing Arachnoiditis ... Pain killers help but are taking their ... My gut feel is that Arachnoiditis has
Dear cozy, You touched me so deeply, I want to die, I have nothing left. My...
https://connect.mayoclinic.org/comment/98565/
with that but the real diagnosis is Arachnoiditis ... or Adhesive Arachnoiditis which I have ... , Rare disorders, non-profit, self-help ... They may be able to guide and help you ... In your situation they may help.
Hi Chris, thanks for your sweet answer and comments. Yes, indeed, we had laminectomy around the...
https://connect.mayoclinic.org/comment/207321/
South America at the time....not much help ... the "chemical insult" caused arachnoiditis ... spinal tap for NPH is a No-No for Arachnoiditis ... confirmed unless the spinal tap can help ... And it does help.
Hi. I’m Peggy in Sarasota, FL. I’ve been in chronic pain 50 years since I was...
https://connect.mayoclinic.org/comment/97975/
Arachnoiditis. ... , told MD to wean me off... didn’t help
@dbk I'm so sorry you are in so much pain. I have fibromyalgia which affects not...
https://connect.mayoclinic.org/comment/98971/
only my muscle nerves Besides the arachnoditis ... For me exercise helps a lot I do take
Welcome and Good evening David, @dbk. It seems that you have been a member for several...
https://connect.mayoclinic.org/comment/98968/
By the way, I think arachnoiditis is ... are searching for a clinic that can help ... a few older posts on Connect about arachnoiditis ... /connect.mayoclinic.org/discussion/arachnoiditis
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