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333 total results
Comments (324)
Hi my name is Debbi..I too have Arachnoditis.. diagnosed with it in 1983.. yes many moons...
Hi my name is Debbi..I too have Arachnoditis ... I have adhesive arachnoiditis of course ... I never felt that they helped anyways ... wished that Dr Forrest Tennant could help ... on the morphine pump and if it has helped
Support Group: Spine Health
Posted: Jan 24, 2023
I've a sub arachnoid cyst frontal lobe found by MRI scan after having belles palsy twice....was...
I've a sub arachnoid cyst frontal ... A website Arachnoid Cyst Foundation ... has lots of information which maybe helpful
Discussion: Arachnoid Cyst
Support Group: Spine Health
Posted: Nov 17, 2022
@suerc I have seen some other posts of yours referring to an accident that shattered the...
happening, but putting ice on my neck helped ... course of prednisone, but it didn't help ... /discussion/arachnoiditis/ – Any ... Adhesive Arachnoiditis members here? ... the holes in the sacrum and that did help
Support Group: Spine Health
Posted: Sep 18, 2022
K live in High Point NC looking for a specialist for arachnoiditis in 2013 had failed...
Point NC looking for a specialist for arachnoiditis ... SCS want reach.2016 was told I have arachnoditis ... medications but no one I can find to help ... treat the actual problem from arachnoiditis.Please ... help direct me if you can.Thanks.
Support Group: Spine Health
Posted: Mar 7, 2022
I am 71. March of 2021 I became paraplegic from the chest down due to Malignant...
chest down due to Malignant Adhesive Arachnoiditis ... am a Viet Nam Veteran so the VA is helping
Support Group: Spine Health
Posted: Dec 21, 2021
HELLO SCOTT, I HAVE ADHESIVE ARACHNOIDITIS. I CAN NOT BEND, SIT, WALK, COOK, IN WINTER CAN...
HELLO SCOTT, I HAVE ADHESIVE ARACHNOIDITIS ... I AM LOOKING FOR SOME HELP FOR THAT. ... HOW CAN I HELP HIM.
Support Group: Caregivers
Posted: Jun 13, 2019
I found no help at Mayo for our condition and especially when their surgeon's did not...
I found no help at Mayo for our condition ... surgeon's did not test me for Arachnoititis ... No help and no research
Support Group: Spine Health
Posted: Feb 13, 2020
Please let me know if the stimulators help you at all as my pain is getting...
Please let me know if the stimulators help ... at all as my pain is getting with Arachnoititis
Support Group: Spine Health
Posted: Feb 12, 2020
Hello briansr, I too have severe chronic pain, Adhesive Arachnoiditis. Severe damage to the spine, nerves...
have severe chronic pain, Adhesive Arachnoiditis ... I contacted NORD for help contacting ... site if patients need information or help
Support Group: Chronic Pain
Posted: Aug 26, 2019
Hello Peach, I live in NJ. There are many parents who are not well-informed today and...
I don't remember if it helped. ... something has to be done about Adhesive Arachnoiditis ... Your words helped me! Hug
Support Group: Mental Health
Posted: Aug 10, 2019
Yes. I had spinal surgery (laminectomy and fusion) of the area you mention, in 1973. Had...
2009, and then by a specialist in Arachnoiditis ... Pantopaque contrast material, causing Arachnoiditis ... Pain killers help but are taking their ... My gut feel is that Arachnoiditis has
Support Group: Spine Health
Posted: Aug 9, 2019
Dear cozy, You touched me so deeply, I want to die, I have nothing left. My...
with that but the real diagnosis is Arachnoiditis ... or Adhesive Arachnoiditis which I have ... , Rare disorders, non-profit, self-help ... They may be able to guide and help you ... In your situation they may help.
Support Group: Chronic Pain
Posted: Aug 2, 2019
Hi Chris, thanks for your sweet answer and comments. Yes, indeed, we had laminectomy around the...
South America at the time....not much help ... the "chemical insult" caused arachnoiditis ... spinal tap for NPH is a No-No for Arachnoiditis ... confirmed unless the spinal tap can help ... And it does help.
Support Group: Spine Health
Posted: Jul 27, 2019
Welcome and Good evening David, @dbk. It seems that you have been a member for several...
By the way, I think arachnoiditis is ... are searching for a clinic that can help ... a few older posts on Connect about arachnoiditis ... /connect.mayoclinic.org/discussion/arachnoiditis
Support Group: Chronic Pain
Posted: Nov 30, 2019