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Comments (366)
https://arachnoiditishope.us14.list-manage.com/track/click?u=e586727f2de750e7b3e61784c&id=63794ab868&e=f26f7440fb I have found good help here. My doctors basically gave very poor advice which if...
https://connect.mayoclinic.org/comment/1349434/
;e=f26f7440fb
I have found good help ... taken would have caused worsening arachnoiditis ... discovered everything that caused arachnoiditis
Archie here: When I first had my pump implanted in 2007 in DC, I also had...
https://connect.mayoclinic.org/comment/1334126/
I'm now 80, and my Adhesive Arachnoiditis ... all to no avail--it just doesn't help
Wow- what a great story and reasonable proof that while solutions exist, we have to be...
https://connect.mayoclinic.org/comment/1187274/
solutions exist, we have to be active to help ... Now that I have Arachnoiditis, and a ... I also find bike-riding is a huge help
I understand how you feel. I can't sit long I can't sleep long I can't find...
https://connect.mayoclinic.org/comment/1186718/
#39;m trying to find a specialist to help ... knows of a Dr that specializes in this Arachnoiditis ... love and be blessed by answers to help
LOL— some esoteric references here— Lakehurst, “Oh, the Humanity” , for those of us of a...
https://connect.mayoclinic.org/comment/1179236/
pain, I had a caudal injection to help ... with Adhesive Arachnoiditis pain about
I guess if you're one of the lucky ones to see progress you can't help but...
https://connect.mayoclinic.org/comment/1323858/
ones to see progress you can't help ... that way in 2011 when I had a sub-arachnoid
Sorry for my long delay in replying. Since my original post, I have been through a...
https://connect.mayoclinic.org/comment/67573/
did show a small (likely congenital) arachnoid ... I'm now at 50mg, and it is helping with
Hello! I have my second spinal cord stimulator, which was implanted in 2016. It was then...
https://connect.mayoclinic.org/comment/1147363/
that I was diagnosed with adhesive arachnoiditis ... I had had an L5/S1 fusion which helped ... I don't know if the arachnoiditis ... With Arachnoiditis, it takes a bunch ... and feet, ask all your docs about arachnoiditis
I‘m Archie and I was diagnosed with adhesive arachnoiditis in 1978. That makes 46 years of...
https://connect.mayoclinic.org/comment/1104244/
and I was diagnosed with adhesive arachnoiditis ... Perhaps I can help others understand
@terriann I never heard about neuropsychiatric SLE/Lupus. I will talk to my new rheumatologist about this...
https://connect.mayoclinic.org/comment/1071361/
also talk to my neurologist about arachnoiditis ... you in getting doctors who care to help ... answers and options for treatment that help
Hi, I’m 22 years old and from Nova Scotia, Canada. Mid-September 2022, I got hit in...
https://connect.mayoclinic.org/comment/976753/
, one in particular that I take to help ... I was then put on amitriptyline to help ... While the medications helped with the ... later that I learned that I have an arachnoid ... and Covid-19 can have an impact on arachnoid
Looking for diagnosis. Does anyone know of a doctor in the Des Moines, Iowa area who...
https://connect.mayoclinic.org/comment/937652/
Moines, Iowa area who is familiar with Arachnoiditis ... All my symptoms suggest Arachnoiditis ... Not sure if any blood work would help
I had surgery to fuse where an artificial disc had been put in 4 years earlier....
https://connect.mayoclinic.org/comment/933116/
spinal canal sack and dug into the arachnoid ... membrane that helps protect the nerves ... to get him to understand I have the Arachnoiditis
@augal91 What you are experiencing is a disc that is collapsing, and you must have some...
https://connect.mayoclinic.org/comment/896900/
cauda equina which is also called arachnoiditis ... that was placed incorrectly.
"Arachnoiditis ... "Anyone been diagnosed with arachnoiditis ... /connect.mayoclinic.org/discussion/arachnoiditis ... Some people are helped by them, but
I am 59 years old and believe I may have Arachnoiditis but cannot find a doctor...
https://connect.mayoclinic.org/comment/894927/
59 years old and believe I may have Arachnoiditis ... neurologist and both said they cannot help ... Texas who specializes in diagnosing Arachnoiditis
I had a SCS implanted in my spine about 2012 ti help me wuth my severe...
https://connect.mayoclinic.org/comment/852138/
implanted in my spine about 2012 ti help ... It was once again working well and helping ... Ultrasound and MRI showed advanced Arachnoiditis ... was told that I most likely also had Arachnoiditis ... Spinal Cord Stimulator I hope it is helpful
I have arachnoiditis and have used modafinil for it in the past. It does seem to...
https://connect.mayoclinic.org/comment/835256/
I have arachnoiditis and have used modafinil ... Caffeine also helps a little.
Hello @the4curtins and welcome to Mayo Clinic Connect. You have been through an arduous journey and...
https://connect.mayoclinic.org/comment/819034/
moved your post here:
- Any Adhesive Arachnoiditis ... connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here ... him so I wonder if there may be some help
Hi my name is Debbi..I too have Arachnoditis.. diagnosed with it in 1983.. yes many moons...
https://connect.mayoclinic.org/comment/801205/
Hi my name is Debbi..I too have Arachnoditis ... I have
adhesive arachnoiditis of course ... I never felt that they helped anyways ... wished that Dr Forrest Tennant could help ... on the morphine pump and if it has helped
I've a sub arachnoid cyst frontal lobe found by MRI scan after having belles palsy twice....was...
https://connect.mayoclinic.org/comment/774125/
I've a sub arachnoid cyst frontal ... A website Arachnoid Cyst Foundation ... has lots of information which maybe helpful
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