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121 total results
Comments (118)
Hello @lsm47 I was thinking about your post today while in the pool at the JCC....
https://connect.mayoclinic.org/comment/1161452/
and wrists when I was at about 5 mg Prednisone ... You said are on Acterma for a year now ... - for are you officially in remission ... several months I have tapered to zero Prednisone
In retrospect, I should have tried harder to taper off Prednisone sooner. I tried to taper...
https://connect.mayoclinic.org/comment/1122952/
I also knew when I was in remission ... It was hard to know when PMR was in remission ... #1 Actemra allowed me to lower my ... #2 Actemra doesn't suppress ... Actemra worked well for the PMR part
@jabrown0407 suggestions have merit. I took Prednisone for more than 12 years. My primary diagnosis was...
https://connect.mayoclinic.org/comment/1122681/
When Actemra (tocilizumab) addressed ... PMR stays in remission as long as I ... do a monthly infusion of Actemra. ... Some people have "sustained remissions ... " and are able to discontinue Actemra
"None of these drugs work on helping to restart your cortisol." I mostly agree with this....
https://connect.mayoclinic.org/comment/1116415/
Another year elapsed before Actemra ... distant history and thought to be in remission ... Without going into details, Actemra ... Since Actemra allowed me to maintain ... I chose Actemra instead of Humira.
Nothing much to add except that I had an identical event. Extensive, bilateral, multiple, and massive...
https://connect.mayoclinic.org/comment/1100757/
ago during my early days of PMR and prednisone ... Within 2-3 years after starting prednisone ... I felt great on prednisone and PMR pain ... PMR is probably in remission but I' ... being treated with a biologic called Actemra
I have had PMR and GCA since 03/21 My GCA is in remission ( 2 years...
https://connect.mayoclinic.org/comment/1030826/
PMR and GCA since 03/21 My GCA is in remission ... Has anyone switched from Actemra to ... I do not take Prednisone since 09/21
Humira is a TNF inhibitor which isn't likely to help PMR. My experience with Humira was...
https://connect.mayoclinic.org/comment/1008061/
Soon after I tapered off prednisone ... started 60 mg of prednisone. ... hasn't recurred and PMR is in remission ... Best of all, I have been prednisone ... these autoimmune disorders are now in remission
No doubt the prednisone was awesome if you haven't taken it for a long time. Pity...
https://connect.mayoclinic.org/comment/1003772/
I have been off Actemra twice already ... My ophthalmologist stopped Actemra and ... She discounted the fact that Actemra ... Uveitis went into remission on the regimen ... The second time Actemra was stopped
A low dose of prednisone seems to help many people since they seem to stay on...
https://connect.mayoclinic.org/comment/1002908/
was time to try a biologic called Actemra ... only possible with the addition of Actemra ... which kept PMR in remission. ... Actemra seems to cause PMR to go into ... remission and doesn't suppress
My sister was on Red Yeast Rice for a few yaers and was just diagnosed with...
https://connect.mayoclinic.org/comment/986895/
Went thru hell of high dosage prednisone ... and then Actemra. ... I hit "remission" in November
I have tapered off prednisone when on Actemra ... not Kevzara. Kevzara works on the same...
https://connect.mayoclinic.org/comment/980166/
Actemra ... not Kevzara. ... on the same inflammation pathway as Actemra ... taking Actemra --- I tapered by 1 mg ... Actemra has kept everything in remission ... when I remain on Actemra.
I'm currently doing Actemra infusions primarily for PMR. I started with Actemra injections and progressed to...
https://connect.mayoclinic.org/comment/977608/
I took prednisone for 12 years waiting ... #34;burn itself out" and go into remission ... PMR never did go into remission. ... Actemra is keeping me off prednisone ... conditions, They all are currently in remission
I remember when I first started taking Actemra about 4 years ago. My ESR and CRP...
https://connect.mayoclinic.org/comment/960562/
remember when I first started taking Actemra ... somewhat elevated while I was taking prednisone ... After Actemra was started, my ESR and ... inflammation markers remain low on Actemra ... PMR symptoms then PMR might be in remission
One would hope PMR patients of the future will have better options than prednisone. I took...
https://connect.mayoclinic.org/comment/892625/
future will have better options than prednisone ... I took prednisone for more than 12 years ... I read stuff about prednisone being ... I was able to taper off prednisone in ... just to see if remission is sustainable
Hi @jholland ... What do you mean by experimental stages of inflammatory arthritis? The biologic that...
https://connect.mayoclinic.org/comment/876094/
The biologic that was tried was Actemra ... Remission of uveitis was easy to achieve ... while taking Actemra, I had flare ... Uveitis went into remission again except ... Actemra was restarted and Humira was
I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...
https://connect.mayoclinic.org/comment/864851/
effects and was able to taper off prednisone ... rheumatologist now thinks PMR might be in remission ... approval are as follows.
1) I was on prednisone ... I was unable to taper off prednisone ... young" (64 years old) to take prednisone
I have an autoimmune inflammatory arthritis with uveitis diagnosed in my early 30's. I'm now 68...
https://connect.mayoclinic.org/comment/861434/
."
I took prednisone in my younger ... short term and I could get back into remission ... Remission only lasted a year or so until ... I relapsed again and needed prednisone ... now saying "PMR" and "remission
I was an underachiever when it came to tapering off quickly. It took me more than...
https://connect.mayoclinic.org/comment/860982/
Things changed after Actemra was introduced ... I was completely surprised that Actemra ... nothing to allow people to achieve remission ... Actemra changed all that for me so I ... while I continue to take Actemra.
It took my almost 2.5 years to get to single digits of prednisone along with Actemra....
https://connect.mayoclinic.org/comment/857335/
2.5 years to get to single digits of prednisone ... along with Actemra. ... To me remission is not being worse.
@samara66 It was a combination of autoimmune related inflammatory arthritis along with PMR. There was also...
https://connect.mayoclinic.org/comment/838755/
responsive" so I could achieve remission ... The biologic called "Actemra" ... a delay of another 6 months while Actemra ... again until Actemra was restarted. ... He allowed me to continue Actemra indefinitely
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