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759 total results
Comments (672)
Hello, I'm Jim, 53yo male, 15 years post awake craniotomy to remove a benign tumor that...
15 years post awake craniotomy to remove ... a benign tumor that had grown over ... Upon removal, every post I have read ... going to kill me if it twists the brain ... not being able to get a word from brain
I was diagnosed with hemangiopericytoma grade 3 (now called solitary fibrous tumor) in 2018. I was...
grade 3 (now called solitary fibrous tumor ... vascularity and complications he was able to remove ... I had the tumor genetic profiling done ... getting MRIs every 3 months lumbar, then brain ... knowledgeable, but the radiologist are also trained
Support Group: Sarcoma
Posted: May 29, 2024
So much depends on where the tumor is. There are more forgiving areas and those with...
So much depends on where the tumor is ... elasticity, Ability of other parts of brain ... I had a right temporal lobe removed
Support Group: Brain Tumor
Posted: May 14, 2024
Hi Pam, your situation sounds so similar to mine. Biopsy, MOHS (with 6 passes, it had...
They found the tumor with an MRI, but ... resection that followed could not remove ... the cancer, which had entered the brain
Yes. I have had that treatment (triplet therapy). I have high volume de novo stage 4...
be aware that it may take longer to recover ... Darolutamide does not break the blood Brain ... barrier so you will not experience much brain ... But you will get chemo brain. ... palliative radiation to shrink to tumors
Support Group: Prostate Cancer
Posted: Apr 12, 2024
It was discovered when I started sleeping alot(like 20/22 hrs a day) trying to hold down...
pain knowing my skull was open to remove ... I took a few months to recover and probably ... My mother also had the same brain tumor ... muscle loss due to being on bed pre-brain ... grateful for my outcome as not all brain
I hope you found some resolution! I’m unsure how surgeons decide to use post surgery drains....
surgeons decide to use post surgery drains ... I didn’t have drains. ... The seroma formed from the node removal ... Draining it when the fluid became infected ... a lot of discomfort at a secondary tumor
Support Group: Breast Cancer
Posted: Mar 3, 2024
Is there a pet scan That cat scan the body to see if there are any...
slow growing intracranial menginoma, removed ... THERE IS A HORMONAL GLAND IN THE BRAIN ... LEFT SIDE, ON MY TUMOR SIDE.
Wow, what a journey. I'm sorry to hear it, it sounds like it's been really tough....
The neurologist said it was likely a brain ... tumor and very glumly agreed to let ... on the mend and have continued to recover
Support Group: Autoimmune Diseases
Posted: Feb 9, 2024
I understand how frightening it was to receive this diagnosis. I was diagnosed with my menginoma...
My tumor was there but I was diagnosed ... to diagnose it 100% would be with a brain ... I had to have emergency surgery to remove ... my tumor which was a grade 1. ... frequent mris since then to follow the tumor
Support Group: Brain Tumor
Posted: Jan 29, 2024
Thank you for sharing. My brother just had brain surgery to remove a tumor and necrosis...
My brother just had brain surgery to ... remove a tumor and necrosis caused ... by radiation of that tumor. 1 week ago
Support Group: Brain Tumor
Posted: Dec 17, 2023
I haven't experienced the exact situation. However, I've not only had 3 brain surgeries for tumor...
However, I've not only had 3 brain ... surgeries for tumor removals in my ... During the brain surgeries, many are
Support Group: Brain Tumor
Posted: Dec 16, 2023
My spouse was diagnosed with GEP-NET and "heavy load" of tumors on the the small intestines...
GEP-NET and "heavy load" of tumors ... He underwent bypass surgery of a tumor ... They put in three drains and attempted ... He recovered and continued with the ... Vertigo from which he has not totally recovered
Everyone's story is different, so I don't know whether this will be helpful. Some years ago...
meningioma that had broken through the brain ... Some of the tumor was close to a central ... blood vessel and could not be safely removed ... and with temporary hair loss), but I recovered ... doctors have determined the remaining tumor
Support Group: Brain Tumor
Posted: Sep 30, 2023
Thank you for your response . I wish my family and friend’s were like you ....
has a lot of issues from two major brain ... surgeries this year for removal of ... a chondrosacroma tumor at the base of
Support Group: Just Want to Talk
Posted: Sep 9, 2023
I too had a solitary fibrous tumor of the central nervous system. Craniotomy on Feb 28,...
I too had a solitary fibrous tumor of ... Craniotomy on Feb 28, Removed tumor ... from brain, pathology determined it
Support Group: Sarcoma
Posted: Sep 6, 2023
Hi, Thank you for sharing your experience at the time. I'm 54 years old and had...
subtotal resection of my meningioma tumor ... radiation for the part that could not be removed ... damage of other structures in your brain
Support Group: Brain Tumor
Posted: Aug 24, 2023