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982 total results
Comments (953)
How is anyone supposed to know when PMR "burns out" or "self limited itself? If PMR...
How is anyone supposed to know when PMR ... If PMR did that, it wasn't like ... At least, I never knew if PMR self-limited ... Actemra was prescribed for the part ... that was PMR.
Posted: Apr 10, 2024
"I want her to consider Actemra for me. Based on posts in this group, I think...
"I want her to consider Actemra ... I don't think Actemra is the &#34 ... Prednisone for 12 years. 2) My case of PMR ... Kevzara was FDA approved for PMR in ... "should work" for PMR but didn
I can only speak from personal experience with Actemra (tocilizumab) which was offered to me 13...
speak from personal experience with Actemra ... to me 13 years after the onset of PMR ... I ended up needing prednisone AND Actemra ... I only needed 3 mg of prednisone, Actemra ... For Actemra to be approved for me,
My rheumatology visit went well but now gout has been added to my list of inflammatory...
As for stopping Actemra (tocilizumab ... Actemra might help gout too. &#34 ... ---- The association of gout with PMR ... a 2.1- to 2.5-fold higher risk of PMR ... Does anyone else have PMR and gout?
Sorry ... I didn't realize you were from the UK. Someone told me the rules in...
diagnosed with GCA when the biologic Actemra ... I think Actemra (tocilizumab) has the ... I was told my experience with Actemra ... Actemra isn't FDA approved in the ... it works is basically the same way Actemra
Discussion: Flare
Posted: Dec 11, 2024
I got off Prednisone when the biologic Actemra (tocilizumab) was tried. I was on Prednisone for...
got off Prednisone when the biologic Actemra ... than 12 years to treat refractory PMR ... It doesn't help PMR that much but
Posted: Nov 26, 2024
Hi @dadcue, I also find your posts very helpful and was hoping you could share more...
hoping you could share more about Actemra ... of Prednisone in my 2.5 years with PMR ... I am scheduled for my 4th Actemra infusion
Posted: Nov 19, 2024
I has an increase in headaches, temple pain, and some jaw discomfort and tightness. The doctor...
My rheumatologist has now got me on Actemra ... I was hoping the Actemra would help ... more with the PMR symptoms, but as long ... problem is, I’m just assuming the Actemra
Posted: Nov 2, 2024
In my opinion, prednisone perpetuates PMR after the adrenals are suppressed. I wonder how many people...
my opinion, prednisone perpetuates PMR ... is the only way I can explain how Actemra ... It is my belief that Actemra targeted ... to take Actemra. ... if and when I will be able to stop Actemra
Posted: Oct 25, 2024
I started with Actemra (tociliumab) injections every 2 weeks. After a year, the injections were changed...
I started with Actemra (tociliumab) ... daily for more than 12 years to treat PMR ... was keeping PMR under control. ... I had a flare but it wasn't a PMR ... No flares of PMR or anything else as
Posted: Oct 21, 2024
I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...
possibility that you have more than PMR ... For a long time I felt PMR was caused ... It was somewhat ironic when Actemra ... Otherwise Actemra wouldn't been ... behalf but first made me promise to try Actemra
My GP didn't really appreciate my need for an endocrine referral until my cortisol level was...
need Prednisone any longer to treat PMR ... Actemra (tocilizumab) is currently treating ... PMR instead of Prednisone. ... redboat was fortunate to be started on Actemra
Hi @jenb I have both PMR and GCA. Before I was diagnosed I had severe itching...
Hi @jenb I have both PMR and GCA. ... discontinue Prednisone, even with the Acterma ... GCA/PMR is a stubborn disorder that
I stopped eating almost everything because of my weight gain while on Prednisone. Exercise during PMR...
Exercise during PMR was nearly impossible ... To be honest, I don't think Actemra ... Actemra just seems better to me than ... I really don't want to be on Actemra
Posted: Sep 26, 2024