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Comments (10,000+)

"The proposal in the vid that people should be fast-tracked to a specialist to confirm diagnosis...

https://connect.mayoclinic.org/comment/1207617/

20mg] goes against the diagnosis for PMR ... of Prednisone for a lot longer than PMR ... I think for isolated PMR cases 15-25 ... remember the rheumatologist who diagnosed PMR ... She insisted that PMR was still my primary

Discussion: Comprehensive Overview Of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9 11:29am

It is so helpful to see this! I am at 2 and 1/2 years and have...

https://connect.mayoclinic.org/comment/1343970/

professionals know a lot more about PMR ... more about my own body experiencing PMR

Discussion: Prednisone 1mg every other day or 1/2 of 1mg tablet every day?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 8 6:07pm

Got it! Good luck with being Predisone- free. I hope that others with experience with Kevzara...

https://connect.mayoclinic.org/comment/995338/

here as well since it’s so new for PMR

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11, 2024

@issyb, As long as you are not having any PMR like pain, I think I would...

https://connect.mayoclinic.org/comment/906019/

As long as you are not having any PMR

Discussion: Tapering down and inflammation markers up

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2023

I was cautioned by rheumatologist, about Covid vaccines , after being diagnosed with PMR, as clinic...

https://connect.mayoclinic.org/comment/901384/

vaccines , after being diagnosed with PMR

Discussion: Covid and PMR surprise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 24, 2023

Thanks for the reply. I have discussed this with my rheumatologist. I’ve been on 5 mg...

https://connect.mayoclinic.org/comment/803219/

was a prodromal sign of a another PMR

Discussion: Chronic Fatigue while tapering Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29, 2023

Hi @Windyshores, Thank you for your comment. Every bottle of melatonin I ever bought (before I...

https://connect.mayoclinic.org/comment/730623/

melatonin I ever bought (before I had PMR

Discussion: Osteoporosis and Melatonin

Support Group: Osteoporosis & Bone Health

Posted: Jul 25, 2022

if in fact your sed rate and crp are elevated especially during painful episodes and rapidly...

https://connect.mayoclinic.org/comment/640812/

this is almost pathopneumonic for pmr

Discussion: PMR Anyone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2021

Dr. Gupta (a UK PMR expert) now leaves many patients at 2 mgs. for years. Evidently...

https://connect.mayoclinic.org/comment/628203/

Gupta (a UK PMR expert) now leaves many

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 20, 2021

BTW ... I'm personally convinced that my PMR was caused by anxiety, tension, retirement, lack of...

https://connect.mayoclinic.org/comment/626510/

#39;m personally convinced that my PMR

Discussion: PMR and vision

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 15, 2021

Interesting re: irritable bowel syndrome. I too have had this added to my issues since pmr...

https://connect.mayoclinic.org/comment/286686/

had this added to my issues since pmr

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2020

I have GCA. I haven’t been diagnosed with PMR, but I suspect it. I take saunas...

https://connect.mayoclinic.org/comment/1193942/

I haven’t been diagnosed with PMR, but

Discussion: Use of a sauna with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 20, 2024

Are you on prednisone? I am. Some of the responses here lead me to believe that...

https://connect.mayoclinic.org/comment/1264732/

that being on prednisone may keep the PMR

Discussion: Safe to get vaccines after diagnosis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 23 9:29am

Hello! I was diagnosed around the same age, but have only had PMR for about 3...

https://connect.mayoclinic.org/comment/1102045/

around the same age, but have only had PMR

Discussion: Newly Diagnosed with PMR: Anyone 51 or had it a long long time?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9, 2024

You need a different doctor that understands PMR, will prescribe enough Pred that you can adjust...

https://connect.mayoclinic.org/comment/973709/

different doctor that understands PMR

Discussion: Morning misery: Is prednisone effective 24 hrs? PMR and hands

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2023

Well we are all different. I was perfectly healthy, had my first (and last!) COVID vaccine...

https://connect.mayoclinic.org/comment/920201/

few months later was diagnosed with PMR

Discussion: Any suggestions getting or not getting RSV, flu, covid vaccines?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2023

Yes, I was hopeful we might consider low dose Naltrexone for PMR and I need to...

https://connect.mayoclinic.org/comment/783283/

might consider low dose Naltrexone for PMR

Discussion: Anyone have experience with Low Dose Naltrexone instead of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 10, 2022

WOW, sounds a lot like I've been through! What I'm understanding is PMR is a individual...

https://connect.mayoclinic.org/comment/1299828/

What I'm understanding is PMR is

Discussion: Do we actually “recover”?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8 12:12pm

My Crohn’s has been in complete remission for years thanks to mesalamine. I am fortunate that...

https://connect.mayoclinic.org/comment/1237503/

How long have you had PMR and what are

Discussion: Prednisone and Opioids

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15 11:20am

There is an interesting thread in this forum https://connect.mayoclinic.org/discussion/new-dx-of-pmr/ where @maye discusses getting off of prednisone...

https://connect.mayoclinic.org/comment/1241023/

connect.mayoclinic.org/discussion/new-dx-of-pmr

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 19 7:14pm