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405 total results
Comments (387)
I wish I got tested for covid in January but I didn't because I figured it...
I looked into CIDP and I don't think ... it is that because an EMG and MRIs diagnose
Support Group: Autoimmune Diseases
Posted: Jul 1, 2024
I have a similar situation: muscle atrophy in the right calf (gastroc) and thigh (quads). I...
I was diagnosed five years ago with ... CIDP and the variant Lewis Sumner Syndrome ... (asymmetrical CIDP).
Support Group: Neuropathy
Posted: May 5, 2024
Hi , yes I am a female and only know that GBS which is what a...
know that GBS which is what a was diagnosed ... acute autoimmune neuropathy while CIDP ... for Ms because it cannot be properly diagnosed
Support Group: Neuropathy
Posted: May 3, 2024
I have 2 Neurologists. Both professors, with completely different ideas on IVIG. I was diagnosed with...
I was diagnosed with SFN then LFN was ... added then It was changed to CIDP … ... here but prof 1 said it could help CIDP
Support Group: Neuropathy
Posted: May 1, 2024
@cmccaffe81 I have experienced most everything you have been experiencing. Here is my journey that may...
I was diagnosed with iron deficiency ... I was also diagnosed with left ear hearing ... fiber neuropathy (severe nerve damage diagnosed ... specialist/surgeon and he immediately diagnosed ... out MS) and spinal tap (to rule out CIDP
Support Group: Brain & Nervous System
Posted: Apr 23, 2024
@kgitti I am waiting to be tested for MS and CIDP. The symptoms are terrible and...
am waiting to be tested for MS and CIDP ... My hope is for diagnosis and treatment ... if anyone has improved following a CIDP ... diagnosis.
Support Group: Autoimmune Diseases
Posted: Apr 4, 2024
Hi Sundance. I would strongly encourage you to see a rheumatologist to check for autoimmune diseases...
Also, a neurologist to rule out CIDP ... about 12 years for someone to think of CIDP ... Early diagnosis is crucial and it’s
Support Group: Autoimmune Diseases
Posted: Apr 2, 2024
The pains in your legs and arms could be peripheral neuropathy which is caused by several...
things, an autoimmune disorder called CIDP ... It took me about 12 years to get diagnosed
Discussion: Can anyone help?
Support Group: Autoimmune Diseases
Posted: Mar 22, 2024
I did 3 rounds of plasmapheresis while in the hospital & rehab last summer & fall....
I'd initially been diagnosed with ... & all my ups & downs, the diagnosis ... was changed to CIDP. ... November & they confirmed this diagnosis
Thank you @nemo1. I believe we have communicated in the past with respect to a CIDP...
communicated in the past with respect to a CIDP ... diagnosis. ... would have associated this with my CIDP ... My ortho is well aware of the CIDP diagnosis
Support Group: Spine Health
Posted: Mar 13, 2024
nemo1, you wisely keep insisting on a dx. Without the testing we investigate on our own...
spinal tap may have had a differential diagnosis ... A friend was diagnosed several years ... also a video outlining the path to diagnosis ... https://www.gbs-cidp.org/support/centers-of-excellence
Support Group: Spine Health
Posted: Jan 21, 2024