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695 total results
Comments (663)
Hello @bobroberts, Welcome to Connect. Thank you for sharing your experience treating PMR. I agree that...
for sharing your experience treating PMR ... rheumatologist had me keep a daily log of my pain ... level in the morning and the dosage ... need to listen to my body and if my pain ... level was too high then to slow the
Posted: Jun 11, 2024
Thanks for the tag @loribmt. @con123, I thought I would tag you in the discussion suggested...
doing it is to keep a daily log of his level ... of aches/pain when waking up in the ... my body and only taper down when my pain ... level in the morning was acceptable ... which for me was a 1 or 2 level.
Posted: Jun 10, 2024
I'm in my late 70's and was perfectly healthy until Nov 1, 2014 I woke up...
hospital where a PET scan diagnosed PMR ... Nothing prepared me for this level of ... Muscle weakness and pain have curtailed
Posted: Jun 8, 2024
I didn't really feel any different for 3 months when I started Actemra injections every 2...
week to 3 mg and I didn't have a PMR ... I felt unwell but no PMR pain. ... My cortisol level was low so I was told ... mg of prednisone until my cortisol level ... injections are weekly so maybe your PMR
Posted: Jun 4, 2024
Remember Kevzara is trying to control the PMR restart or flare caused by the taper of...
Remember Kevzara is trying to control the PMR ... It wont help unless its a true PMR. ... The level of pain your feeling is most ... The lack of cortisol causes the pain
Posted: Jun 4, 2024
Yes. I was originally at 60 mgs of Prednisone last September for possible GCA along with...
September for possible GCA along with PMR ... Stiffness Pain in my shoulders and ... and my IGG4, Complement C3, and ACE levels ... I've been diagnosed with PMR, however ... definitely questioning if this is PMR
Same for Reactive Arthritis ... Pain was more confined to my lumbar spine but I also...
inflammation levels were too high because ... shocks to my face my high inflammation level ... PMR was unilateral shoulder pain at ... reason why my rheumatologist diagnosed PMR ... I was old enough to have PMR at 52 years
My rheumatologist did a bit of a test before starting Actemra. I was asked to taper...
was achieved only after 12 years of PMR ... I had overwhelming fatigue and pain ... but nothing resembling PMR symptoms. ... That was when my cortisol level was
Posted: May 25, 2024
No ... I didn't gut it out! I had the support of doctors who understood the...
Prednisone during the 20 years before PMR ... diagnosed as I did for 15 years after PMR ... patient-stories/i-dont-even-think-about-pain ... trigeminal neuralgia contributed to high levels ... I have referred to PMR as a "blessing
Posted: May 25, 2024
My PMR started 3 months ago . I immediately started eating 0 carb. I eat meat...
My PMR started 3 months ago . ... Next day they pain was unbelievable! ... My inflammation level is 11... a little ... more and will be a normal level. ... But I hear sometimes the pain remains
How long were you taking prednisone? Some people have resilient adrenals. My adrenals weren't so resilient...
I did have some pain-- more than niggles ... think I would have a major flare of PMR ... Prednisone for 6 months, my cortisol level ... my endocrinologist said my cortisol level ... With an adequate cortisol level, my
Hi @sherylp, Welcome to Connect. Sorry to hear you joined the PMR club. You asked a...
Sorry to hear you joined the PMR club ... My pain would be a little greater the ... tapering off of prednisone and logged my level ... of pain when I woke up along with my ... daily dose of prednisone control the pain
Posted: May 16, 2024
I am convinced my PMR was triggered by a statin. I started a statin in November;...
I am convinced my PMR was triggered ... mid-January, I was diagnosed with PMR ... have been very healthy, active and pain ... I’m managing the pain with Aleve since ... to exercise, but at a more subdued level
Posted: May 6, 2024
I'm happy you are digging into this topic. People have a tendency to hear what they...
make the same mistake again because pain ... taking it for more than 12 years for PMR ... it was determined by whether or not PMR ... I was fairly confident that PMR was ... have been on 3 mg of prednisone if PMR
Posted: May 5, 2024
In reply to @jabrown0407 "When I received my first PMR diagnosis I refused steroids long term...
jabrown0407 "When I received my first PMR ... refused steroids long term at any level ... interested in what you're doing for pain ... if just untreated inflammation from PMR
Posted: Apr 14, 2024
@johnhester, There are a couple of other discussions you might find helpful for managing PMR. ---...
you might find helpful for managing PMR ... . --- PMR Dosages and Managing Symptoms ... / --- PMR and exercise: What helps ... rheumatologist to keep a daily log of the level ... of my pain when I wake up and my prednisone
Support Group: Autoimmune Diseases
Posted: Apr 12, 2024
Welcome @joycj, We husbands definitely need an encourager. Good for you for helping your husband with...
My first time around with PMR I spent ... were me and I was at 2 mg and the pain ... , I would wait a day to see if the pain ... husband keep a daily log with his level ... of pain in the morning and the dose
" I did have blood work yesterday when I called for the appointment and she said...
the appointment and she said my "levels ... were not bad."" Levels ... mean, especially if they did not say levels ... distal to shoulder and hip girdle in PMR ... musculoskeletal manifestations in GCA and PMR
Posted: Mar 19, 2024
Hi Joan. Sorry that you are having so much pain. So I was diagnosed with PMR...
Sorry that you are having so much pain ... So I was diagnosed with PMR 2 years ... to manage the titration based on my pain ... levels. ... with pillows because of the shoulder pain
Posted: Mar 12, 2024
@pb50 I'm curious about how you use prednisone for flares of RA. I used prednisone for...
Either that or my inflammation levels ... A PMR diagnosis was a late addition ... The PMR pain started first in my shoulders ... I blamed PMR on a lack of Prednisone ... other times I blamed Prednisone for PMR
Discussion: Rheumatoid Drs
Posted: Mar 9, 2024