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963 total results

Comments (917)

Has anyone here seen Mayo for CIDP treatment? My dad who is 74 has been receiving...

https://connect.mayoclinic.org/comment/739280/

Has anyone here seen Mayo for CIDP treatment

Discussion: CIDP and concerns about treatment risk factors

Support Group: Neuropathy

Posted: Aug 19, 2022

I am brand new to Mayo Clinic Connect. I did several searches. I tried CIDP; spelling...

https://connect.mayoclinic.org/comment/238685/

I tried CIDP; spelling it out; spelling

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 26, 2019

Thanks for your comment! I'm sorry you have been dealing with chronic pain and similar symptoms....

https://connect.mayoclinic.org/comment/1097690/

and they wouldn't have if I had CIDP

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 1, 2024

I also have CIDP and went thru 8 mos of IVIG with no relief at all....

https://connect.mayoclinic.org/comment/1205687/

I also have CIDP and went thru 8 mos

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 7 3:00am

rfsau, I urge you to get to a neurologist ASAP, one who specializes in neuromuscular disorders,...

https://connect.mayoclinic.org/comment/1081710/

There is an uncommon condition called CIDP ... several others on Mayo Connect with CIDP

Discussion: Do GP's routinely blame Perip Neuro on alcohol?

Support Group: Neuropathy

Posted: Jun 6, 2024

Hi Peggy @peggyn, We modified your discussion title to better describe what your discussion is about...

https://connect.mayoclinic.org/comment/711837/

Did you mean CIDP (Chronic Inflammatory ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy

Discussion: Rick Simpson Oil (RSO) - Does it help for neck and spine pain?

Support Group: Chronic Pain

Posted: May 27, 2022

My apologies… I’m saying neither… I meant to say that often people that have CIDP, my...

https://connect.mayoclinic.org/comment/643866/

to say that often people that have CIDP ... And CIDP is a rare disease, any other

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 10, 2021

Rituxan seems to work better for my CIDP, 44 infusions over a year and half and...

https://connect.mayoclinic.org/comment/1119705/

Rituxan seems to work better for my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 7, 2024

Check out the sypmtoms of CIDP, mine sounds like what your going through. They feel that...

https://connect.mayoclinic.org/comment/1098629/

Check out the sypmtoms of CIDP, mine

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 3, 2024

Hi John, yes after being bounced around for 3 years every test and blood test possible,...

https://connect.mayoclinic.org/comment/156910/

nerologist believes I have SFN or CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 20, 2019

Has anyone had the new CIDP treatment with Vyvgart infusion or shot and if so how...

https://connect.mayoclinic.org/comment/1123129/

Has anyone had the new CIDP treatment

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Aug 13, 2024

Yes, I had two shots of Phizer and my neuropathy (CIDP) got worse, to the point...

https://connect.mayoclinic.org/comment/738453/

shots of Phizer and my neuropathy (CIDP

Discussion: Have you been able to get Evusheld? Or find where it is offered?

Support Group: Autoimmune Diseases

Posted: Aug 17, 2022

Hi Raphy, as @becsbuddy suggested, I have moved your to this existing discussion group about CIDP...

https://connect.mayoclinic.org/comment/614527/

this existing discussion group about CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 6, 2021

I have multiple sclerosis. My sx stabilized with the two year Mavenclad regimen. I'm actually dx...

https://connect.mayoclinic.org/comment/1325729/

I'm actually dx with cidp, (chronic

Discussion: Postprandial Hypotension (After meal b/p drops)

Support Group: Brain & Nervous System

Posted: Jun 12 1:17pm

I took the quick quiz on CIDP. I ticked a lot of the boxes. Can’t get...

https://connect.mayoclinic.org/comment/1202365/

I took the quick quiz on CIDP.

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 2 10:33am

I also was diagnosed with CIDP and had 8 mos of IVIG infusions every 2 weeks,...

https://connect.mayoclinic.org/comment/1036139/

I also was diagnosed with CIDP and had

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 18, 2024

FOR what its worth, I have CIDP, chronic inflammatory demialating polyneuropathy. I take a high dose...

https://connect.mayoclinic.org/comment/1062106/

FOR what its worth, I have CIDP, chronic

Discussion: Neuropathy pills: How to avoid scams?

Support Group: Neuropathy

Posted: May 4, 2024

My husband has CIDP he started having issues. We went through years of falls fractured bones....

https://connect.mayoclinic.org/comment/831756/

My husband has CIDP he started having ... He finally got a diagnosis of CIDP but

Discussion: Husband With Slow Cognitive Decline: So sad & confused

Support Group: Caregivers: Dementia

Posted: Mar 25, 2023

Hi @sandyhill, Welcome to Connect. I found some information that may provide some help in understanding...

https://connect.mayoclinic.org/comment/272122/

Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: Peripheral Neuropathy vs Nephropathy

Support Group: Neuropathy

Posted: Aug 18, 2019

I've thought about CIDP, although I've had this elevated CSF for 30 years now, and I...