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Comments (821)
Hello Colleen, hello group, I'm 59y old, from Vienna/Austria and I have been diagnosed with CIDP...
https://connect.mayoclinic.org/comment/640655/
Austria and I have been diagnosed with CIDP ... and just a year ago I was diagnosed CIDP ... anyone share some experience with CIDP
@wncard Welcome to Mayo Clinic Connect! What symptoms led you to the doctor for a diagnosis?...
https://connect.mayoclinic.org/comment/851343/
you could tell us a little about how CIDP
I've thought about CIDP, although I've had this elevated CSF for 30 years now, and I...
https://connect.mayoclinic.org/comment/1110447/
I've thought about CIDP, although
I have been diagnosed with CIDP and I am currently being treated with IgG infusions. Today...
https://connect.mayoclinic.org/comment/674601/
I have been diagnosed with CIDP and
@kgitti I am waiting to be tested for MS and CIDP. The symptoms are terrible and...
https://connect.mayoclinic.org/comment/1045095/
am waiting to be tested for MS and CIDP ... if anyone has improved following a CIDP
I’ve been on IVIG / SCIG since 2021 for CIDP and occasionally steroids too following viruses....
https://connect.mayoclinic.org/comment/1111338/
been on IVIG / SCIG since 2021 for CIDP ... VYVGART Hytrulo, specifically aimed at CIDP
Sounds likely hubby. Has nuero checked you for CIDP or Guillain Barre? Hectic was fully paralyzed...
https://connect.mayoclinic.org/comment/940983/
Has nuero checked you for CIDP or Guillain
Try looking for a neuromuscular neurologist. That’s what I was told along with immunologist. These doctors...
https://connect.mayoclinic.org/comment/1113657/
neurologist about testing by spinal tap for CIDP
Yes, I have CIDP and I’m treating with IVIG every 2 weeks. I also have neuromyletis...
https://connect.mayoclinic.org/comment/1117392/
Yes, I have CIDP and I’m treating with
Glad to hear that you are better. I have given up and will just live with...
https://connect.mayoclinic.org/comment/954832/
up and will just live with supposed CIDP
@lynn66618 There are several discussion groups about CIDP. I included this link to one of the...
https://connect.mayoclinic.org/comment/968329/
are several discussion groups about CIDP
Hi @tedjones77494, welcome. I changed the title of your discussion to reflect the question you wished...
https://connect.mayoclinic.org/comment/735654/
demyelinating polyradiculoneuropathy (CIDP
Do you mean CIDP that @danawyn mentioned? That would be something you could discuss with your...
https://connect.mayoclinic.org/comment/782914/
Do you mean CIDP that @danawyn mentioned
Kim, pulse steroids means I take two large doses a week rather than small doses every...
https://connect.mayoclinic.org/comment/856886/
cites a case of covid vaccine caused CIDP ... So, did your preexisting CIDP flare ... He has CIDP, liver cerrossis and diabetes ... am very interested to know how your CIDP ... CIDP is such a rare disease.
Sometimes the cure seems worse than the ailment, especially when we read the fine print on...
https://connect.mayoclinic.org/comment/730389/
who have also been diagnosed with CIDP ... CIDP (Chronic Inflammatory Demyelinating ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... National Institute of Health’s site on CIDP ... chronic-inflammatory-demyelinating-polyneuropathy-cidp
Funny you say that because when the doctor said that my husband had CIDP the doctor...
https://connect.mayoclinic.org/comment/1071996/
the doctor said that my husband had CIDP
I also have CIDP and neuropathy. I’m on regular IVIG infusions and know it helps my...
https://connect.mayoclinic.org/comment/1014901/
I also have CIDP and neuropathy.
CIDP is NOT hereditary as far as we know but there are some very similar symptoms...
https://connect.mayoclinic.org/comment/1021057/
CIDP is NOT hereditary as far as we
@nemo1 This information is from John Hopkins University https://www.hopkinsmedicine.org/health/conditions-and-diseases/chronic-inflammatory-demyelinating-polyradiculoneuropathy#:~:text=Chronic%20inflammatory%20demyelinating%20polyradiculoneuropathy%20(CIDP)%20is%20a%20slowly%20developing%20autoimmune,in%20the%20arms%20or%20legs. I hope it has the information that...
https://connect.mayoclinic.org/comment/1021440/
20demyelinating%20polyradiculoneuropathy%20(CIDP
You too. Ask your neurologist to test for CIDP via EMG. I also had an MRI...
https://connect.mayoclinic.org/comment/1045934/
Ask your neurologist to test for CIDP
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