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668 total results
Comments (644)
Ha ha same same . Haemoglobin dropped suddenly enough to think maybe I was bleeding. Thanks...
No PMR / GCA symptoms and inflammation ... pred , along side immediate start Actemera ... grateful to have had such a good PMR / GCA ... term side effects of pred and / or Actemera ... Returning to pre PMR/ GCA health I’m
Posted: Mar 16 10:02pm
Back in 2017 I had been taking RYR for about a year. My doctor previously asked...
Finally I got the news, GCA AND PMR. ... I was way too young to have gotten GCA ... I was switched to Actemra after 8 months ... With Actemra my cholesterol shot up
Discussion: PMR & Statins
Posted: Dec 22, 2023
Wow ... you are fortunate. Did you have PMR first? I was diagnosed with PMR a...
I have the symptoms of GCA but I&#39 ... my rheumatologist got approval for Actemra ... to seek approval before I could try Actemra ... instructed to follow the guidelines for Actemra ... use for patients with GCA.
Posted: Dec 31, 2024
Before I started treatment for GCA (prednisone and Actemra), I always had major side effects from...
Before I started treatment for GCA ( ... prednisone and Actemra), I always had ... recently, after starting prednisone and Actemra
Posted: Dec 30, 2024
My experience with GCA is similar in that I too have large vessel vasculitis GCA ,...
My experience with GCA is similar in ... I too have large vessel vasculitis GCA ... Started 50mg pred and 162mg Actemera ... confident I’ll be off pred and continue actemera ... says any relapse will be treated with Actemera
Discussion: GCA conserns
Posted: Dec 21, 2024
This subject is very complicated. I don't know all that much other than what my rheumatologist...
when Actemra was unavailable. ... I didn't do well when Actemra was ... Actemra is like any other medication ... My first experience with Actemra was ... For PMR/GCA what has been learned is
Posted: Nov 19, 2024
Maye, my vision is ok. I got treatment for the GCA just in time to save...
I got treatment for the GCA just in ... I think my GCA is only cranial. ... ;s worth, my understanding is that Actemra
Posted: Feb 18 6:05am
Good to hear your eyesight intact Jeff. Loss of vision is the most feared effect of...
vision is the most feared effect of GCA ... me to bring a cool bag to collect Actemera ... Best i keep Actemera cold for this trip
Posted: Feb 18 6:15pm
I agree with @seniormed that the prednisone side effects don't happen to everyone and are manageable....
I have GCA and PMR, and I started on ... I've also been injecting Actemra ... cholesterol triggered by the pred and Actemra ... before I started the prednisone and Actemra
Posted: Feb 15 5:01am
Hello, it seems like some of us react differently to drugs, thus the long list of...
I was wondering that because Actemra ... wanted to put me on it and put down GCA ... as a diagnosis so Actemra would be
Posted: Jan 19 10:16am
I think the prednisone and Actemra both made my top priority problem list immediately when I...
I think the prednisone and Actemra both ... as possible, while also managing my GCA ... I don't think I'll be off Actemra
Posted: Jan 22 11:18am
I was diagnosed with PMR in July 2024 along with suspected GCA. I was on 60...
in July 2024 along with suspected GCA ... My rheumatologist order Actemra infusions ... I'm hoping that the Actemra is my
Posted: Jan 15 12:25pm
Sorry to hear that you're having a flare. I have a rheumatologist, but I felt comfortable...
was diagnosed with PMR and possible GCA ... I started getting my GCA symptoms again ... requested that my rheumatologist order Actemra ... Actemra is prescribed to treat GCA,
Posted: Apr 11 3:42pm
I don't have that problem with Actemra infusions. Medicare pays for biologic infusions because they aren't...
Saying something like "presumptive GCA ... Actemra is FDA approved for GCA. ... should be treated "as if" I had GCA ... didn't claim that I actually had GCA ... for PMR since the research done for GCA
Discussion: Flare
Posted: Dec 14, 2024