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Comments (3,813)

Yes, you are so right. 8 years ago I had a meningioma which bled and the...

https://connect.mayoclinic.org/comment/1321171/

Most likely I would die in the neuro

Discussion: Testing Negative For Huntington’s Disease

Support Group: Brain & Nervous System

Posted: Jun 5 9:08pm

My wife was just diagnosed with an inoperable high grade tumor that is most likely a...

https://connect.mayoclinic.org/comment/1301388/

probably still keep an appointment with a neuro-oncologist

Discussion: Non Operable Glioblastoma 4: Tips for chemotherapy and radiotherapy?

Support Group: Brain Tumor

Posted: May 10 6:32pm

I offer this not to be boasting, but to share the conversation I had with two...

https://connect.mayoclinic.org/comment/1254250/

kidneys, diabetes, blood pressure, neuro

Discussion: Does age influence choice of radiation + ADT over srugery?

Support Group: Prostate Cancer

Posted: Mar 9 6:27pm

I had cramps in feet, calves, thighs, and even my torso...for years, starting in the 1990's....

https://connect.mayoclinic.org/comment/979484/

s vitamins, Alpha Lipoic Acid (for neuro ... s office (injections prescribed by neuro-immunologist

Discussion: Muscle cramping severe

Support Group: Bones, Joints & Muscles

Posted: Dec 13, 2023

"Another interesting this is the B6 issue. Funny enough, I was diagnosed with high B6 after...

https://connect.mayoclinic.org/comment/1044812/

Neuro has imaging and EMG and if nothing

Discussion: Gall Bladder removal

Support Group: Chronic Pain

Posted: Apr 3, 2024

I am considering getting the Neuro HFX and I would like to know if anyone can...

https://connect.mayoclinic.org/comment/1323330/

I am considering getting the Neuro HFX

Discussion: HFX/NEVRO Stimulator for Neuropathy

Support Group: Neuropathy

Posted: Jun 8 11:27pm

We have a vacation home rural area. Clean fresh air. Remarked to myself over last several...

https://connect.mayoclinic.org/comment/1326206/

over last several weeks there how my neuro ... up environmental factors affecting neuro

Discussion: Comments about CBD and/or THC for neuropathy pain and paresthesia?

Support Group: Neuropathy

Posted: Jun 13 8:13am

My husband is a Sudden Cardiac Arrest Survivor of 14 years. He was in neuro rehab...

https://connect.mayoclinic.org/comment/201064/

He was in neuro rehab for 1 month then

Discussion: Caregiver for spouse with MCI (Mild cognitive impairment)

Support Group: Caregivers: Dementia

Posted: Oct 5, 2018

it is like you know me @janeejane You were spot on -- except it was peanut...

https://connect.mayoclinic.org/comment/201072/

Plus her neuro doc was a master at having

Discussion: Caregiver for spouse with MCI (Mild cognitive impairment)

Support Group: Caregivers: Dementia

Posted: Oct 6, 2018

Hi Chris @santosha, finally had video visit with neuro and he increased my lacosimide to highest...

https://connect.mayoclinic.org/comment/1105370/

santosha, finally had video visit with neuro

Discussion: Side effects from Keppra?

Support Group: Epilepsy & Seizures

Posted: Jul 14, 2024

I've been on Lamictal for three years. My understanding is that rashes from Johnson Stevens Syndrome...

https://connect.mayoclinic.org/comment/1012517/

each new one to my doctors (PCP and Neuro

Discussion: Have you gone from zonisamide to lamictal?

Support Group: Epilepsy & Seizures

Posted: Feb 9, 2024

Thank you.. i didn't know about the test! I asked epileptologist about it before we change,...

https://connect.mayoclinic.org/comment/1013264/

treat,, so many drugs.. input from neuro

Discussion: Have you gone from zonisamide to lamictal?

Support Group: Epilepsy & Seizures

Posted: Feb 10, 2024

Thank you, Jake. I will check out the earlier discussion. Sorry I missed it. Caleb just...

https://connect.mayoclinic.org/comment/825530/

Our neuro said that most anyone living

Discussion: Have you been prescribed zonisamide for seizures? My experience.

Support Group: Epilepsy & Seizures

Posted: Mar 13, 2023

Thank you, Everyone, for your helpful comments. My son has taken Epidiolex for about 2 years....

https://connect.mayoclinic.org/comment/828903/

Our neuro told us that Zonegran would

Discussion: Have you been prescribed zonisamide for seizures? My experience.

Support Group: Epilepsy & Seizures

Posted: Mar 20, 2023

Yes, big issue with autism is sleep problems.. rhen sleep deprivation can lead to seizures.. she...

https://connect.mayoclinic.org/comment/1129025/

against the marijuana rx as is the neuro ... Her autism/ neuro dr recently discharged

Discussion: Lamictal side effects

Support Group: Epilepsy & Seizures

Posted: Aug 22, 2024

Thank you for your reply. Yes I was tested for pots bout 4-5 years back and...

https://connect.mayoclinic.org/comment/819544/

but I bring it up to either of my Neuro

Discussion: Occipital Neuralgia: What treatments work for you?

Support Group: Brain & Nervous System

Posted: Mar 1, 2023

My husband has had 2 acoustic neuromas seven years apart removed. They have been wrapped around...

https://connect.mayoclinic.org/comment/84612/

September 2018 he was operated on by a neuro

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Jan 10, 2019

Hello Cheryl @iamcherylb, I would like to add my welcome to Connect along with @colleenyoung. I...

https://connect.mayoclinic.org/comment/316386/

Intestinal Dysfunction: Uncovering the Neuro-Enteric

Discussion: Digestive Issue: Gut dysfunction following traumatic brain injury

Support Group: Traumatic Brain Injury (TBI)

Posted: Jul 17, 2020

I was quoted to expect 2-3 days in neuro ICU and 7-10 days in neuro rehab....

https://connect.mayoclinic.org/comment/1295696/

I was quoted to expect 2-3 days in neuro ... ICU and 7-10 days in neuro rehab.

Discussion: What exactly happens before, during and after a Craniotomy?

Support Group: Brain Tumor

Posted: May 3 11:12am

@domiha Mike, great question for which I have no answer. Mayo said it might be a...

https://connect.mayoclinic.org/comment/1034582/

might be a good idea to take....and my neuro ... yearly said why not try..,,,and a neuro

Discussion: Treatment options that have worked for Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Mar 16, 2024