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Comments (3,277)

I've been on Lamictal for three years. My understanding is that rashes from Johnson Stevens Syndrome...

https://connect.mayoclinic.org/comment/1012517/

each new one to my doctors (PCP and Neuro

Discussion: Lamictal rash?

Support Group: Epilepsy & Seizures

Posted: Feb 9 10:58am

Hello! Thank you for the welcome! I’ve had a lot of symptom changes since I last...

https://connect.mayoclinic.org/comment/1024931/

The most recent neuro visit showed I

Discussion: Radiologist Second Opinion for MRI

Support Group: Spine Health

Posted: Feb 29 11:57am

@njed Good morning, Ed. I’ve definitely slid to the back burner my need to know the...

https://connect.mayoclinic.org/comment/998404/

That said, my soon to meet with a new neuro ... Will this new neuro doc cry, “A-ha,

Discussion: Neuropathy of the feet: Any advice on how to eliminate the numbness?

Support Group: Neuropathy

Posted: Jan 16 11:45am

Another avenue to explore here could be mold exposure. Many of us Long haulers have been...

https://connect.mayoclinic.org/comment/1003153/

computer-based exam that can assess for neuro-inflammation

Discussion: Paresthesia- Post-COVID reaction?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 24 5:30pm

Finally a chance to address Jennifer's questions... 1) I tried to follow a scientific process in...

https://connect.mayoclinic.org/comment/1000578/

different docs - ortho, physiatrist, neuro

Discussion: Severe Stenosis - Doc advises surgery

Support Group: Spine Health

Posted: Jan 20 10:33am

Hello, I almost never am logged in here anymore (in fact i had to reset my...

https://connect.mayoclinic.org/comment/330159/

I was recommended to see who is a neuro

Discussion: Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

Support Group: Bones, Joints & Muscles

Posted: Dec 20, 2020

My husband age 71 was said to have it but it was not the case. Hubby...

https://connect.mayoclinic.org/comment/1021361/

We saw another neuro. who said that

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 23 5:30pm

Hi there.... sending you my biggest hug... about 8 years ago or so it all started...

https://connect.mayoclinic.org/comment/1021387/

Lyrica does help with neuro problem&

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Feb 23 6:43pm

Hi Everyone, I had Gamma Knife surgery in 2019 and have had no problems. I have...

https://connect.mayoclinic.org/comment/1012503/

My neuro-surgeon is Dr.

Discussion: Meningiomas. Gamma knife or Cyber Knife. Which is more effective?

Support Group: Brain Tumor

Posted: Feb 9 10:34am

Thank you.. i didn't know about the test! I asked epileptologist about it before we change,...

https://connect.mayoclinic.org/comment/1013264/

treat,, so many drugs.. input from neuro

Discussion: Lamictal rash?

Support Group: Epilepsy & Seizures

Posted: Feb 10 3:46pm

@jenniferhunter I have had horrible symptoms whenever I look up, for years. Obviously the source is...

https://connect.mayoclinic.org/comment/1021539/

I have a note from my neuro saying my ... My neuro says that something like having

Discussion: Vertigo relief recommendations.

Support Group: Brain & Nervous System

Posted: Feb 24 7:30am

I was diagnosed with OMG (just ocular so far) in Sept ‘23 by bloodwork. A neurologist...

https://connect.mayoclinic.org/comment/991372/

from the Prednisone treatment the Neuro-Opthamologist

Discussion: Myasthenia gravis; Making an informed decision for my Treatment Path

Support Group: Autoimmune Diseases

Posted: Jan 4 11:16am

Why did you have so many blood patches? Did your physicians think you had a small...

https://connect.mayoclinic.org/comment/967011/

at all the facilities I went to for neuro-evaluations

Discussion: Does anyone have daily persistent headache all day, every day?

Support Group: Chronic Pain

Posted: Nov 18, 2023

I had cramps in feet, calves, thighs, and even my torso...for years, starting in the 1990's....

https://connect.mayoclinic.org/comment/979484/

s vitamins, Alpha Lipoic Acid (for neuro ... s office (injections prescribed by neuro-immunologist

Discussion: Muscle cramping severe

Support Group: Bones, Joints & Muscles

Posted: Dec 13, 2023

Hi @daisychain While I don’t have any magic suggestion I did want to share something my...

https://connect.mayoclinic.org/comment/994824/

want to share something my wife’s neuro

Discussion: My cognitively impaired father wants to date.

Support Group: Caregivers: Dementia

Posted: Jan 10 8:10am

Thanks for that insight. I gave up six vials of blood to confirm I don’t have...

https://connect.mayoclinic.org/comment/995358/

reasons for cognitive impairment like neuro-syphillis

Discussion: Anesthesia related cognitive decline, specifically dysnomia

Support Group: Brain & Nervous System

Posted: Jan 11 7:00am

John, I applied in Sept of 2019. Got a call about 60 days later, can I...

https://connect.mayoclinic.org/comment/1029184/

provided them with a letter from my neuro

Discussion: Treatment options that have worked for Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Mar 7 9:48am

I have been extremely disappointed in the responses that I have received from the ENT "people."...

https://connect.mayoclinic.org/comment/1074890/

Harvard. and they had training in Nero-Otolaryngology

Discussion: Vestibular Migraines

Support Group: Ear, Nose & Throat (ENT)

Posted: May 26 8:51am

is there a connect group re how to get an appt in neurology in jacksonville? i...

https://connect.mayoclinic.org/comment/1078843/

21 and would very much appreciate a neuro ... i have neuro-opthamologist notes and

Newsfeed Post: The world ain't all sunshine and rainbows: Meet @tomrennie

Blog: About Connect: Who, What & Why

Posted: Jun 1 8:37am

Becky, you have to be your own advocate. My husband seems to be where yours is....

https://connect.mayoclinic.org/comment/1091366/

All the other tests on the neuro- psych

Discussion: Early stage memory loss and MCI lack of medical attention

Support Group: Caregivers: Dementia

Posted: Jun 21 7:26pm