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Comments (547)

Has a neurologist suggested or done a nerve and muscle biopsy? I had similar symptoms that...

https://connect.mayoclinic.org/comment/1024516/

written her thesis about small vessel vasculitis

Discussion: Seeking support, new to this nightmare

Support Group: Neuropathy

Posted: Feb 28 5:18pm

@windyshores - I just care about my health. Being that is is obvious I have an...

https://connect.mayoclinic.org/comment/1190131/

additional blood work is pending for vasculitis

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: 6 days ago

Hi I have ANCA vasculitis. Other than being tired or sleepy, I have no symptoms ever....

https://connect.mayoclinic.org/comment/682263/

Hi I have ANCA vasculitis.

Discussion: Sudden low blood oxygen levels: Anyone else have Vasculitis?

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2022

Thank you so much! I will look into these discussions. I do not know whether the...

https://connect.mayoclinic.org/comment/1058909/

if anything else is affected by the vasculitis

Discussion: Anyone out there with Behçet's and vasculitis?

Support Group: Autoimmune Diseases

Posted: Apr 28 2:11pm

@seaspray Hello, Karen. I've missed seeing you on this site. Hope all is well, you're doing...

https://connect.mayoclinic.org/comment/627691/

Also, vasculitis is the latest. ... , even more than before due to the vasculitis

Discussion: cPass New Antibody Test

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 19, 2021

Hi Catmom, I’m from the Chicago area also. I was diagnosed with IGA Vasculitis (small cell)...

https://connect.mayoclinic.org/comment/1095119/

I was diagnosed with IGA Vasculitis ... weaned onto Low Dose Naltrexone for my vasculitis

Discussion: Vasculitis - have you been re-biopsied?

Support Group: Autoimmune Diseases

Posted: Jun 27 9:56am

@megankk thank you for your message. I’m experiencing most of the same issues as you. Fibromyalgia,...

https://connect.mayoclinic.org/comment/889037/

Fibromyalgia, Vasculitis, peripheral

Discussion: Falling Asleep While Eating Lunch!

Support Group: Autoimmune Diseases

Posted: Jul 2, 2023

Hi. This is Meg. I also had this surgery July 30th with C4-5 removed. I am...

https://connect.mayoclinic.org/comment/1135001/

fibromyalgia, scleroderma, sjogrens, & vasculitis

Discussion: Has anyone had the ACDF surgery on their neck?

Support Group: Bones, Joints & Muscles

Posted: Sep 2 11:02am

Hi @cwhorton, welcome. Allow me to tag fellow members like @msmerry @ykh128 @yoan02 @ruthnz @zenk @patientrea...

https://connect.mayoclinic.org/comment/689079/

who have experience with livedoid vasculitis

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2022

I can definitely relate, I have , allegedly vasculitis but not all my doctors are sure...

https://connect.mayoclinic.org/comment/878416/

definitely relate, I have , allegedly vasculitis ... hastily ordered Nucala for my "vasculitis

Discussion: ANA positive then negative then positive...

Support Group: Autoimmune Diseases

Posted: Jun 14, 2023

PAN is rare (3 in 100,000) More rare, is when it involves the pulmonary arteries. I...

https://connect.mayoclinic.org/comment/684377/

The Vasculitis Foundation is trying

Discussion: My Journey with Polyarteritis Nodosa (PAN)

Support Group: Autoimmune Diseases

Posted: Feb 25, 2022

@becsbuddy just wanted give you guys an update. After my son’s rheumatologist appt he called and...

https://connect.mayoclinic.org/comment/307812/

He suspects it isn’t vasculitis and

Discussion: Damage to legs from Henoch-Schonlein purpura? Stumped the doctors

Support Group: Autoimmune Diseases

Posted: May 7, 2020

Thank you for this very useful link on vasculitis which I will keep as no doubt...

https://connect.mayoclinic.org/comment/155458/

Thank you for this very useful link on vasculitis

Discussion: Skin infections while on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11, 2017

I was diagnosed with Vasculitis (Polyarteritis Nodosa) in 2015. Now my rheumatologist suspects I have Giant...

https://connect.mayoclinic.org/comment/732599/

I was diagnosed with Vasculitis (Polyarteritis

Discussion: Think I have Giant Cell Arteritis (or GCA)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 30, 2022

Hello @spacecadetta, Welcome to Connect. I don't think @prednisone4gca is following the discussion but hopefully other...

https://connect.mayoclinic.org/comment/604251/

Here's a YouTube video from the Vasculitis

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 24, 2021

Hello @robgone, Welcome to Connect. I've had PMR flare ups twice but it's now in remission....

https://connect.mayoclinic.org/comment/1081647/

." -- https://www.vasculitis.org.uk ... /about-vasculitis/polymyalgia-rheumatica

Discussion: Has anyone experienced edema in their ankles and feet?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6 7:22am

Sorry for what you are going through. I have all your symptoms and then some. I...

https://connect.mayoclinic.org/comment/940970/

Do check out the Vasculitis Foundation

Discussion: Undiagnosed - autoimmune?

Support Group: Autoimmune Diseases

Posted: Oct 3, 2023

I have a form of Vasculitis that was diagnosed by a skin biopsy in 2015. My...

https://connect.mayoclinic.org/comment/745776/

I have a form of Vasculitis that was

Discussion: Recently diagnosed with autoimmune disease - looking for support

Support Group: Autoimmune Diseases

Posted: Sep 5, 2022

I already had the sjogrens along with the ra factor, plus r.a.. I also have leukocytoclastic...

https://connect.mayoclinic.org/comment/912570/

I also have leukocytoclastic vasculitis

Discussion: Research for rare autoimmune diseases

Support Group: Autoimmune Diseases

Posted: Aug 13, 2023

Hello @chamtj, Welcome to Connect. I think neuropathy is a beast for a lot of us,...

https://connect.mayoclinic.org/comment/722399/

learnaboutpn/typesofpn/inflammatory/vasculitis

Discussion: Rheumatoid arthritis and Sjogrens neuropathy

Support Group: Autoimmune Diseases

Posted: Jun 30, 2022