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2,154 total results
Comments (2,067)
I had a great response from Actemra. My first dose was on January 1st, 2019. It...
I have been completely off Prednisone ... ;t seem any less but I was able to taper ... She said there was no need to taper ... the better part of one year to get off ... can still be a long process to get off
Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in...
Started with 60mg Prednisone and after ... Actemra injections (while still on 10mg Prednisone ... I am off Prednisone since end of July ... Have you heard anything about tapering ... off or discontinuing Actemra ?
Posted: Sep 20, 2024
No floaters but my vision has been blurry and eyes horribly filled with blood like pinkeye...
now and they got worse after PMR and Prednisone ... debilitating effects of trying to taper ... off Prednisone, I'm pretty bummed
Posted: Sep 17, 2024
I would think you might need more than 2.5 mg of prednisone before starting Kevzara. It...
you might need more than 2.5 mg of prednisone ... You still need to taper off Prednisone ... still took me more than a year to get off ... Prednisone completely. ... I was still taking 10 mg of prednisone
Discussion: Kevzara
Posted: Sep 17, 2024
Hi @jojobarrk, I think it's good that you notified the doctor. I hope you get an...
at 40 mg because I'm small, my taper ... has been -5 mg of prednisone every ... I was off it for a year, but relapsed ... round I did feel jumpy and trembly on prednisone
Posted: Sep 9, 2024
Hello @sjf1024, I would like to add my welcome along with @dadcue @tuckerp and others. If...
you wake up along with your dose of prednisone ... It helped me while I was tapering off ... of prednisone. ... level of 0 to 2 for aches/pain while tapering ... was and what was suggested for a tapering
Posted: Sep 2, 2024
@lindaadel I encourage you to suggest a biologic to your rheumatologist. I’m on a monthly infusion...
along with a daily dose of 5 mg of prednisone ... Next month I’m going to begin tapering ... off of the prednisone.
I learned one of my early lessons on steroids from my wife. She has GBM. Brain...
Then they needed her to taper off to ... They told us as close to off as she ... which is about the equivalent of 5.5 prednisone
Posted: Aug 27, 2024
@tapamil65 Hello and welcome to the PMR group! I agree that this forum is a wealth...
tapering. ... who are having difficulties getting off ... prednisone and it seems to help these ... on any other medications to get you off ... the prednisone?
Posted: Aug 27, 2024
I had to slow my taper by alternating 3mg/2.5 mg every other day for a week...
I had to slow my taper by alternating ... hydroxychloroquine at the same time as the prednisone ... Imuran to see if that allowed the taper ... to works enough to get off the prednisone
Posted: Aug 27, 2024
Welcome @yertondg, Sorry you've had such a struggle with PMR and hopefully the new rheumatologist can...
the new rheumatologist can help you taper ... off of prednisone. ... off with the last six months going ... off and only have minimal aches and ... you get up in the morning and your prednisone
Hi @centralflorida, that seems a high dosage of prednisone for PMR - it's usually about 20...
centralflorida, that seems a high dosage of prednisone ... diagnosis and was prescribed 40 mg of prednisone ... to start with a 5 mg taper every two ... I was off prednisone a year and a half
I was told 30 years ago that there are "3 possibilities" which I think are generally...
and never happen again---people get off ... subset of this group assuming they can taper ... off Prednisone a second time. 2) ... It gets more and more difficult to taper ... off prednisone. 3) PMR could become
Posted: Aug 18, 2024
I woke up one morning and felt sore. Like I had completed a hard workout, lots...
She put me on prednisone and I felt ... After 10 months, she had me taper off ... When I went off prednisone, the pain ... be making it sound like I’m worse off
Support Group: Autoimmune Diseases
Posted: Aug 18, 2024
Hi @bunnykfl, I've had PMR twice and was able to taper off of prednisone both times...
#39;ve had PMR twice and was able to taper ... off of prednisone both times but I ... when searching for "Actemra and prednisone ... search=Actemra+and+prednisone+%2Bremission
Posted: Aug 16, 2024
Perseverance isn't the word that describes it. I took prednisone because I didn't know what else...
I took prednisone because I didn&#39 ... The same person said prednisone for ... enlightenment I have came after I tapered ... off Prednisone. ... People who are able to taper off Prednisone
Posted: Aug 13, 2024