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523 total results

Comments (478)

Hi thank you for the message I’ve had my gallbladder checked like six months ago and...

https://connect.mayoclinic.org/comment/289410/

I have gastroparesis and systemic scleroderma

Discussion: Disappointed

Support Group: Digestive Health

Posted: Jan 9, 2020

Hello @smalone59, Welcome to Connect. I can't imagine how difficult it has to be for you...

https://connect.mayoclinic.org/comment/1070715/

. --- Limited Scleroderma or CREST

Discussion: Started with Chron's went to Raynaulds, now Crest Syndrome?

Support Group: Autoimmune Diseases

Posted: May 19, 2024

@whisperquick welcome to Mayo Clinic Connect. It sure sounds like you have a lot on your...

https://connect.mayoclinic.org/comment/1104916/

speaking (fibromyalgia, endometriosis, scleroderma

Discussion: Hashimoto's Thyroiditis and IVIG Treatment?*

Support Group: Autoimmune Diseases

Posted: Jul 13, 2024

I have this. From https://www.hss.edu/conditions_undifferentiated-connective-tissue-disease-overview.asp#what Definition: used to describe a condition in people who have symptoms...

https://connect.mayoclinic.org/comment/789144/

rheumatoid arthritis, systemic sclerosis (scleroderma

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Dec 26, 2022

Hello, I'm curious if this medication Plaquenil aka Hydroxychloroquine has helped anyone? I'm not tolerating prednisone...

https://connect.mayoclinic.org/comment/290843/

Already diagnosed with CREST scleroderma

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2020

@windyshores — Thanks so much for your response. I am so new to all of this....

https://connect.mayoclinic.org/comment/891267/

autoimmune disorders such as Lupus, Scleroderma

Discussion: Widespread Body Pain and High ANA

Support Group: Autoimmune Diseases

Posted: Jul 6, 2023

This is of interest to me. My situation seems so muddled that the dianoses that I...

https://connect.mayoclinic.org/comment/859677/

(Crohn's, PMR and recently, scleroderma

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: May 14, 2023

Supplements were not a treatment; L-tryptophan was the cause. It was poisoned due to a change...

https://connect.mayoclinic.org/comment/315847/

There was scleroderma, erythema multiforme

Discussion: Eosinophilic Fasciitis: Looking to connect with others

Support Group: Autoimmune Diseases

Posted: Aug 10, 2020

I had 1 mg on the second infusion. I did not get a fever but, oddly,...

https://connect.mayoclinic.org/comment/1143744/

kidney disease, afib, lupus, possible scleroderma

Discussion: Are we overdosing Reclast???

Support Group: Osteoporosis & Bone Health

Posted: Sep 19, 2024

Hello @daisydo, Welcome to Connect. I'm sorry to hear that it took so long to get...

https://connect.mayoclinic.org/comment/647236/

for diagnosing systemic sclerosis (scleroderma

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Oct 22, 2021

In terms of diet I have been told to increase salt and "push protein" which is...

https://connect.mayoclinic.org/comment/1158771/

suddenly, along with a high positive for scleroderma

Discussion: Mild kidney damage/stage 3a

Support Group: Kidney Conditions

Posted: Oct 18, 2024

I’m amazed with you story because we have some things in Common… I had problems going...

https://connect.mayoclinic.org/comment/1041519/

and thinking about it Sjögren and scleroderma

Discussion: Sjogrens, SFN, unbalanced walking, nystagmus

Support Group: Autoimmune Diseases

Posted: Mar 28, 2024

Yes I have had a lot of weird symptoms. I am lucky to have a lupus...

https://connect.mayoclinic.org/comment/885521/

anti-centromere antibodies indicating scleroderma

Discussion: Recurrent episodes of intense symptoms with no answers - I Need Help

Support Group: Brain & Nervous System

Posted: Jun 26, 2023

@wsp You’re quite right, most doctors don’t really know about scleroderma or any of the other...

https://connect.mayoclinic.org/comment/871391/

most doctors don’t really know about scleroderma

Discussion: Need diagnosis! Circulation issues and neuropathy with ANA escalating

Support Group: Autoimmune Diseases

Posted: Jun 2, 2023

@kawhortny2023 this seems to happen a lot with rheumatologists. I hope you can see a dermatologist...

https://connect.mayoclinic.org/comment/1081728/

as well as very high antibodies for scleroderma

Discussion: Aggravation with results

Support Group: Autoimmune Diseases

Posted: Jun 6, 2024

Hi @cgs300, welcome to Mayo Clinic Connect. A reaction to a vaccine does not mean that...

https://connect.mayoclinic.org/comment/272469/

your biggest challenges living with scleroderma

Discussion: Anyone have Scleroderma?

Support Group: Autoimmune Diseases

Posted: Feb 14, 2021

Laura, Don't you just feel like you have been through the "ringer" after awhile? I cannot...

https://connect.mayoclinic.org/comment/256431/

Having scleroderma being positive without

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: Apr 22, 2019

Thank you for this information about what you’ve discovered between the diet and GvHD! I really...

https://connect.mayoclinic.org/comment/634583/

post you mentioned recently having scleroderma

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Sep 11, 2021

I just went to my rheumatologist who confirmed they basically are looking for internal damage. Pain...

https://connect.mayoclinic.org/comment/1153496/

because I had very high antibodies for scleroderma

Discussion: Blood work and misdiagnosed!?!

Support Group: Autoimmune Diseases

Posted: Oct 7, 2024

Yes, he is seeing a specialist and yes we are at a high elevation in Utah....

https://connect.mayoclinic.org/comment/1173863/

infection, specifically lung scarring from scleroderma

Discussion: How long after taking antibiotics does ability to breathe come back?

Support Group: MAC & Bronchiectasis

Posted: Nov 15, 2024