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4,138 total results
Comments (3,924)
Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness,...
have the numbness, so no medications help ... I shared my story and what has helped ... thought you might find these sites helpful ... list of treatments that have shown to help ... some folks with neuropathy: https:
Support Group: Neuropathy
Posted: Jan 19, 2023
My mom was dx with stage 2b pancreatic adenocarcinoma in 2019. The gold standard these days...
quite easily and has some residual neuropathy ... Get help for yourself. ... your mom (or you) call PanCan to see what ... the tumor - there are drugs that are helping
Support Group: Pancreatic Cancer
Posted: Jan 12, 2023
Greetings @alfer. As @johnbishop mentioned, nortryptyline was the first medication my neurologist prescribed in hope that...
It was very helpful and I continued ... increased as the SFN (small fiber neuropathy ... It helps the pain by controlling the ... What else are you using to control the ... effects of neuropathy?
Support Group: Neuropathy
Posted: Nov 26, 2022
Thank you all so much. You helped me. I been watching the group for awhile but,...
You helped me. ... I just didn't know what to expect ... Maybe being able to talk to people helped ... a "small fiber neuropathy" ... lol...people just look at me like...what
Support Group: Neuropathy
Posted: Nov 26, 2022
Hello @barrye, Welcome to Connect. Great advice, I also believe in taking it one day at...
I shared my neuropathy journey in another ... discussion here - Member Neuropathy ... Journey Stories: What's Yours? ... treatments that others have found helpful ... You mentioned acupuncture didn't help
Support Group: Neuropathy
Posted: Nov 22, 2022
I was introduced to Nucynta in 2015. The ONLY opioid that doesn't cause me to have...
The Nucynta relieves the terrible neuropathy ... Nucynta 100 IR and Nucynta 100mg ER is what ... Helps for sleeping, too! ... Everyone is different to what dosage ... could help you.
Support Group: Neuropathy
Posted: Jan 23, 2023
@roslyn, you might want to read through this discussion to learn what type of shoes others...
read through this discussion to learn what ... type of shoes others have found helpful ... that a type of shoe helps your foot ... neuropathy? ... does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy
Support Group: Neuropathy
Posted: Jan 22, 2023
My Grandmother name is Fala, so that is what I use here. I have progressing idiopathic...
Grandmother name is Fala, so that is what ... I have progressing idiopathic poly neuropathy ... closed) and the only thing that has helped ... got a card and the pain is 1/2 of what
Support Group: Neuropathy
Posted: Jan 22, 2023
@foxauthor good morning. I have been diagnosed with CIDP but not all my doctors agree. Some...
I have small fiber neuropathy by punch ... well as neurologist that that would help ... Does this sound like what you have?
Support Group: Autoimmune Diseases
Posted: Jan 21, 2023
Hello @luckyd2002, Welcome to Connect. Sorry to hear that your back surgery resulted in neuropathy in...
that your back surgery resulted in neuropathy ... Thank you for sharing what helps you ... treatments on the Foundation for Peripheral Neuropathy ... website helpful - https://www.foundationforpn.org ... also find the following discussion helpful
Support Group: Neuropathy
Posted: Nov 19, 2022
Welcome @rosaliemarie, Similar to what my Mayo neurologist told me after I was diagnosed with idiopathic...
Welcome @rosaliemarie, Similar to what ... there are no drugs or topicals that help ... treatments some people have found helps ... What symptoms do you have with your ... neuropathy?
Support Group: Neuropathy
Posted: Jan 10, 2023
Hello @tabuschlen. You will be able to post links once the new member waiting period is...
time, your short version of Keto is helpful ... all sorts including fibromyalgia, neuropathy ... Have you found what works best for you
Hello @sunil2, Welcome to Connect. The Foundation for Peripheral Neuropathy has a good list of different...
The Foundation for Peripheral Neuropathy ... alternative treatments that have been helpful ... of information for learning about neuropathy ... Support Group to learn what other members ... https://connect.mayoclinic.org/group/neuropathy
Support Group: Neuropathy
Posted: Jan 7, 2023
@heatherupchurch I never had any symptoms of carpal tunnel and 2 months after being fully vaccinated...
Neuropathy to the point I couldn’t walk ... to a neurologist since I had severe neuropathy ... California with my little sister for help ... https://react19.org/ I have found help ... the best and hopefully we get some help
Support Group: Neuropathy
Posted: Nov 15, 2022
Good evening @dorth14 and welcome to Connect. Osteoporosis and Bone Health is a new group on...
I have SFN, small fiber neuropathy so ... work on everything together.......what ... I am sure you can help others live a
Hello, @mikeg0852, @rwinney, @artscaping, @johnbishop, and all...Rachel, as always, you have great information and help for...
always, you have great information and help ... they get to the cells and organs and help ... bloodwork to test all these levels and see what ... I still have autonomic neuropathy but ... knowledge and mental questioning to find what
Support Group: Neuropathy
Posted: Oct 2, 2022
I see that neuropathy is a complication. It's good you are seeing a Mayo Clinic neurologist...
I see that neuropathy is a complication ... At least that's what I used to do ... What type of exercise do you like to ... make it difficult, but stretching can help
Support Group: Brain & Nervous System
Posted: Oct 1, 2022
@kimberbee I did 10 rounds of FOLFIRINOX. They pump me full of anti nausea drugs on...
anti nausea drugs on day one and it helps ... It can cause neuropathy and cold sensitivity ... I didn’t start to experience the neuropathy ... That’s what stands out most for me.
Hi @fala, I wished I had a good answer for you. Each of us and our...
symptoms are different but we have the neuropathy ... I do think healthier living helps and ... I've looked to supplements to help ... provide the peripheral nerves what ... protocol of supplements which has helped
Support Group: Neuropathy
Posted: Oct 28, 2022