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861 total results

Comments (821)

Yes, I had two shots of Phizer and my neuropathy (CIDP) got worse, to the point...

https://connect.mayoclinic.org/comment/738453/

shots of Phizer and my neuropathy (CIDP

Discussion: Have you been able to get Evusheld? Or find where it is offered?

Support Group: Autoimmune Diseases

Posted: Aug 17, 2022

Hi Raphy, as @becsbuddy suggested, I have moved your to this existing discussion group about CIDP...

https://connect.mayoclinic.org/comment/614527/

this existing discussion group about CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 6, 2021

Hi John, yes after being bounced around for 3 years every test and blood test possible,...

https://connect.mayoclinic.org/comment/156910/

nerologist believes I have SFN or CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 20, 2019

Check out the sypmtoms of CIDP, mine sounds like what your going through. They feel that...

https://connect.mayoclinic.org/comment/1098629/

Check out the sypmtoms of CIDP, mine

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 3 12:56pm

Rituxan seems to work better for my CIDP, 44 infusions over a year and half and...

https://connect.mayoclinic.org/comment/1119705/

Rituxan seems to work better for my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 7 5:30pm

yvonne111 These are all prescribed by my neurologist for my CIDP and reviewed yearly by a...

https://connect.mayoclinic.org/comment/1166751/

prescribed by my neurologist for my CIDP

Discussion: CIDP and trying to get on with life

Support Group: Autoimmune Diseases

Posted: Nov 2 12:38pm

I also was diagnosed with CIDP and had 8 mos of IVIG infusions every 2 weeks,...

https://connect.mayoclinic.org/comment/1036139/

I also was diagnosed with CIDP and had

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 18 7:20pm

My husband has CIDP he started having issues. We went through years of falls fractured bones....

https://connect.mayoclinic.org/comment/831756/

My husband has CIDP he started having ... He finally got a diagnosis of CIDP but

Discussion: Husband With Slow Cognitive Decline: So sad & confused

Support Group: Caregivers: Dementia

Posted: Mar 25, 2023

Hi @sandyhill, Welcome to Connect. I found some information that may provide some help in understanding...

https://connect.mayoclinic.org/comment/272122/

Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: Peripheral Neuropathy vs Nephropathy

Support Group: Neuropathy

Posted: Aug 18, 2019

Hello, I have CIDP and also have similar problems with my feet and legs. One thing...

https://connect.mayoclinic.org/comment/725727/

Hello, I have CIDP and also have similar

Discussion: Diagnosed with moderate/severe poly neuropathy: sensory motor

Support Group: Neuropathy

Posted: Jul 11, 2022

Hello @cheentsia, I would like to add my welcome along with @govisri and others. It sounds...

https://connect.mayoclinic.org/comment/1036295/

opinion was helpful to confirm the CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Mar 19 7:38am

@jtbt0406 Was a steroid treatment ever discussed with you in regards to CIDP? I see that...

https://connect.mayoclinic.org/comment/238732/

ever discussed with you in regards to CIDP ... diagnosed with MS (and I know MS and CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 25, 2020

Welcome @biker201, Medicare can be confusing and I'm always struggling with decisions. There is another discussion...

https://connect.mayoclinic.org/comment/837917/

that you might find helpful: --- CIDP ... /connect.mayoclinic.org/discussion/cidp-diagnosis-treatment-insurance-medicare-and-medicare-part-d

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 5, 2023

I have 3 other autoimmune diseases which made me susceptible to developing another (CIDP). The symptoms...

https://connect.mayoclinic.org/comment/1050778/

susceptible to developing another (CIDP ... daily for RA, lupus and it helps with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 14 5:00pm

FOR what its worth, I have CIDP, chronic inflammatory demialating polyneuropathy. I take a high dose...

https://connect.mayoclinic.org/comment/1062106/

FOR what its worth, I have CIDP, chronic

Discussion: Neuropathy: What works and what are scams?

Support Group: Neuropathy

Posted: May 4 1:00pm

Yes I am able to be with him some of the time. They are taking him...

https://connect.mayoclinic.org/comment/614111/

They have him on steroids for the CIDP

Discussion: Worried about my husband coming off the ventilator

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 5, 2021

My husband had Guilliane Barre Syndrome in 2013, he is now dealing with residuals. Hands, feet...

https://connect.mayoclinic.org/comment/91843/

Does anyone else have GBS or CIDP?

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 9, 2017

I have CIDP and, prior to having immunoglobulin infusions, my legs were feeling like they had...

https://connect.mayoclinic.org/comment/964600/

I have CIDP and, prior to having immunoglobulin

Discussion: unbearable tugging and electric buzz feeling in leg

Support Group: Chronic Pain

Posted: Nov 14, 2023

I’m on Hizentra SCIG self infusions for the last year and a half after regular hospital...

https://connect.mayoclinic.org/comment/1165836/

The CIDP is like working another full

Discussion: CIDP and trying to get on with life

Support Group: Autoimmune Diseases

Posted: Oct 31 1:20pm

Thank you for the support and prayers. There are other treatments however d/t the advanced CIDP...

https://connect.mayoclinic.org/comment/238731/

treatments however d/t the advanced CIDP ... As for previous illnesses prior to CIDP ... Yes no cure for CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 25, 2020