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963 total results

Comments (917)

I’ve never had an MRI related to my neuropathy. I have CIDP and was told nothing...

https://connect.mayoclinic.org/comment/290581/

I have CIDP and was told nothing having

Discussion: Testing for Neuropathy

Support Group: Neuropathy

Posted: Jan 18, 2020

Hello @jamiemccorkle, Welcome to Connect. Thank you for being an advocate for your dad. I'm sorry...

https://connect.mayoclinic.org/comment/739300/

discussion on the same topic here - CIDP ... /connect.mayoclinic.org/discussion/cidp ... members who have been treated for CIDP

Discussion: CIDP and concerns about treatment risk factors

Support Group: Neuropathy

Posted: Aug 19, 2022

In addition to CIDP tests, I had a positive test for FGFR3 2020. My symptoms did...

https://connect.mayoclinic.org/comment/1052087/

In addition to CIDP tests, I had a positive

Discussion: FGFR3 levels are high any treatments?

Support Group: Neuropathy

Posted: Apr 16, 2024

@tjp4 That is actually one of the ones that isn’t ruled out (or maybe not even...

https://connect.mayoclinic.org/comment/281396/

am not sure about is that I thought CIDP ... body, which I believe is typical for CIDP

Discussion: Undiagnosed, numbness, tingling, Muscle weakness and more

Support Group: Brain & Nervous System

Posted: Nov 5, 2019

Over the last 30 years, I have been diagnosed with and treated for chronic fatigue, fibromyalgia,...

https://connect.mayoclinic.org/comment/81509/

CIDP. ... The CIDP and small fiber neuropathy

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Nov 28, 2018

I’ve had CIDP since 1995 mostly affecting my legs and feet with a lack of sensation...

https://connect.mayoclinic.org/comment/1021081/

I’ve had CIDP since 1995 mostly affecting

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 23, 2024

I have a new diagnosis based on reaction to initial IVIG treatment and current symptoms -...

https://connect.mayoclinic.org/comment/604976/

IVIG treatment and current symptoms - CIDP

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: May 26, 2021

I was just diagnosed with CIDP. My symptoms started in April and I’m starting IGIV GAMMAGARD...

https://connect.mayoclinic.org/comment/889067/

I was just diagnosed with CIDP.

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 2, 2023

The symptoms described in this post sound very much the same as what I have. I...

https://connect.mayoclinic.org/comment/916867/

little over a year ago that I have CIDP ... sought doctor who is interested in CIDP

Discussion: Searching For Diagnosis. CIDP? Please Help Me

Support Group: Neuropathy

Posted: Aug 21, 2023

My Neurologist at Mayo scheduled me for a Sural nerve biopsy, which was a minor surgery...

https://connect.mayoclinic.org/comment/660091/

any treatments cured the rest of my CIDP ... Anti-mag peripheral neuropathy and CIDP

Discussion: Nerve biopsy test: Is it done by a neurologist or rheumatologist?

Support Group: Neuropathy

Posted: Dec 6, 2021

Specifically I have many classic symptoms of GBS / CIDP I was first diagnosed with GBS...

https://connect.mayoclinic.org/comment/604973/

have many classic symptoms of GBS / CIDP ... not definitive), as of yesterday, is CIDP

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: May 26, 2021

I also have CIDP. It's been 3 years of ups and downs. I've been on Plasma...

https://connect.mayoclinic.org/comment/91861/

I also have CIDP. ... says the numb feet are a gift from CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 11, 2017

I just had 5 days of IVIG which was prescribed for CIDP (chronic inflammatory demyelinating polyradiculoneuropathy)....

https://connect.mayoclinic.org/comment/710132/

days of IVIG which was prescribed for CIDP ... this list been treated with IVIG for CIDP ... I know that CIDP is challenging to diagnose

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 21, 2022

I have been diagnosed with CIDP and have had numbness in lips and tongue. I also...

https://connect.mayoclinic.org/comment/1082874/

I have been diagnosed with CIDP and

Discussion: Does anyone have neuropathy with a numb and tingling tongue?

Support Group: Neuropathy

Posted: Jun 8, 2024

I've been diagnosed with CIDP since 2017 and have had a Port implanted I to my...

https://connect.mayoclinic.org/comment/1057628/

I've been diagnosed with CIDP since

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Apr 26, 2024

@kathleen123 I received the same vaccine and I have CIDP. My daily symptoms have definitely been...

https://connect.mayoclinic.org/comment/649256/

received the same vaccine and I have CIDP

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Oct 29, 2021

Hello @savomic, Welcome to Connect. While we wait wait for others to share their experience, I...

https://connect.mayoclinic.org/comment/778224/

the first line agents effective in CIDP ... DADS-M while patients with DADS-I or CIDP ... do not respond well to first-line CIDP ... Treatment Approaches for Atypical CIDP

Discussion: DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?

Support Group: Neuropathy

Posted: Nov 28, 2022

@becsbuddy - Thank you for this reference. Actually 2 separate neurologists told me very definitely I...

https://connect.mayoclinic.org/comment/850114/

told me very definitely I do NOT have CIDP ... company suggested that symptoms fit CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 27, 2023

Hello, Sorry to hear you have been diagnosed with CIDP. I also have CIDP and have...

https://connect.mayoclinic.org/comment/710259/

hear you have been diagnosed with CIDP ... I also have CIDP and have been receiving