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Comments (547)

On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis - GPA....

https://connect.mayoclinic.org/comment/167497/

years of age, I was diagnosed with vasculitis ... told I had a very aggressive form of vasculitis

Discussion: GPA granulomatosis with polyangiitis

Support Group: Autoimmune Diseases

Posted: Jan 13, 2018

A doctor should evaluate and from superficial take looking at photos: The photo on the right...

https://connect.mayoclinic.org/comment/811666/

inflammation of the blood vessels (vasculitis

Discussion: Not convinced it's eczema

Support Group: Skin Health

Posted: Feb 15, 2023

Thanks for posting this. All along I've been uncomfortable with the idea that PMR primarily affects...

https://connect.mayoclinic.org/comment/702279/

don't know what pain caused by vasculitis

Discussion: Is PMR a form of vasculitis?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 25, 2022

What a roller coaster ride. Thought I had GPA vasculitis but just found out after retaking...

https://connect.mayoclinic.org/comment/635879/

Thought I had GPA vasculitis but just

Discussion: Just got second CT Scan says probably MAC. I am a K teacher

Support Group: MAC & Bronchiectasis

Posted: Sep 16, 2021

Thank you I will read the articles. I've read many in the journals. I have hope...

https://connect.mayoclinic.org/comment/170543/

Vasculitis and joint involvement is

Discussion: Behcet's Syndrome: What treatment has worked for you?

Support Group: Autoimmune Diseases

Posted: Oct 7, 2019

Currently, my symptoms are skin lesions on lower legs bilaterally. They had become necrotic but have...

https://connect.mayoclinic.org/comment/167495/

My GPA so far is limited to the vasculitis

Discussion: GPA granulomatosis with polyangiitis

Support Group: Autoimmune Diseases

Posted: Oct 2, 2017

HinZenk, Right now only Xeralto, due to a dvt in 2015. I have tried all the...

https://connect.mayoclinic.org/comment/52533/

worth of prednisone, due to havi g vasculitis

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2018

Firstly, that is a lovely photo. You look great! Secondly, I am going to suggest getting...

https://connect.mayoclinic.org/comment/1083515/

tissue disorders and some kinds of vasculitis

Discussion: Dealing with multiple aneurysms.

Support Group: Aortic Aneurysms

Posted: Jun 9 10:01am

I understand your fear of going to a new doctor after having one that knows you...

https://connect.mayoclinic.org/comment/239818/

tests for MS, Churg-Strauss, Wegners, vasculitis

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Feb 4, 2019

You have persisted through a great deal of difficulty to arrive at a diagnosis for a...

https://connect.mayoclinic.org/comment/1077598/

Your vasculitis does require management

Discussion: Microscopic polyangiitis - Any help would be greatly appreciated

Support Group: Autoimmune Diseases

Posted: May 30 7:42am

I was recently diagnosed with hypogammaglobulinemia back in December. Not only do I have that but...

https://connect.mayoclinic.org/comment/823727/

also have Sjogrens, Leukocytoclastic Vasculitis

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Mar 9, 2023

I likely had this for a few years, but was newly diagnosed with a lip biopsy....

https://connect.mayoclinic.org/comment/954287/

flareup, which led to biopsy, but vasculitis

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 26, 2023

Thank you for asking. I’m not certain how to respond- dealt with this for seven years....

https://connect.mayoclinic.org/comment/787443/

blessing considering my sister has ANCA vasculitis

Discussion: Prednisone and Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 21, 2022

Yes. I was diagnosed with PMR and GCA the end of July 2024. Started taking 60...

https://connect.mayoclinic.org/comment/1189139/

An MRA determined that I had vasculitis

Discussion: Flare

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12 12:10pm

@longlostbrat - You follow your Mama instincts and take him tomorrow! I doubt that leukemia is...

https://connect.mayoclinic.org/comment/706556/

kind of immune system illnesses like vasculitis

Discussion: Five days in hospital, no answers: Leg pain and bruising

Support Group: Autoimmune Diseases

Posted: May 8, 2022

@deb8 Good morning @deb8 . Ive not heard of this autoimmune disease before, but there are...

https://connect.mayoclinic.org/comment/655039/

How long have you had livedoid vasculitis

Discussion: Livedoid Vasculitis

Support Group: Autoimmune Diseases

Posted: Nov 17, 2021

Hi @colleenyoung, I appreciate so much you letting me know about the chat #Mayo Clinic Neuro...

https://connect.mayoclinic.org/comment/382294/

18 years figuting out my Cerebral Vasculitis

Event: #MayoClinicNeuroChat about Aneurysms and 3D Modeling

Posted: Mar 29, 2018

Hello @julie868. I see that you are new to the Connect community and I would like...

https://connect.mayoclinic.org/comment/292544/

being used to benefit patients with vasculitis

Discussion: Success with low dose naltrexone for Autoimmune disorders

Support Group: Autoimmune Diseases

Posted: Feb 13, 2020

@marriedto41- I understand how frightened you and your wife must be. It is good that you...

https://connect.mayoclinic.org/comment/273683/

include it in rheumatic diseases - vasculitis

Discussion: Toddler has had fevers for over 3 weeks. No one knows why.

Support Group: About Kids & Teens

Posted: Aug 27, 2019

I know I’ve seen lists before but, of course, I can’t find them now. It’s me,...

https://connect.mayoclinic.org/comment/224285/

meningioma, a cavernoma, Leukocytoclastic Vasculitis

Discussion: Your Tips on How to Get Off to the Best Start with a New Specialist

Support Group: Visiting Mayo Clinic

Posted: Aug 25, 2019