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357 total results
Comments (341)
I feel your 'pain'! I too have elevated FGFR3 Antibodiss along with elevated CSF protein. My...
Antibody mediated sensorimotor axonal neuropathy ... that my IVIG infusions were meant to slow ... the progression of the disease....and
Support Group: Neuropathy
Posted: Jul 14, 2023
Hello @dogfood77, Welcome to Connect. I'm glad you found Connect also! My neuropathy journey is similar...
My neuropathy journey is similar to ... few things you can do to hopefully slow ... down or stop the progression. ... these things combined have helped slow ... the progression and improved my quality
Support Group: Neuropathy
Posted: May 7, 2023
@jwr - You asked me what I feel is helpful. The short answer is I go...
I have both small and large fiber neuropathy ... My goal is to slow down the progression ... going to get rid of this but if I can slow
Hi. I’m so very sorry. I’ve been suffering almost 24 yrs too. Functional Medicine. StRt with...
already weakened body can b thrown into neuropathy ... These theories n treating thyroid slow ... down progression a bit.
Support Group: Neuropathy
Posted: Mar 31, 2023
@carsonann and @seanmacbeth, There is a discussion on the protocol that you might want to join...
tried the new Protocol 525 product for neuropathy ... have-you-tried-the-new-protocol-525-product-for-neuropathy-relief ... have numbness and no pain with my neuropathy ... It seems to have slowed or stopped the ... progression with my neuropathy but
Support Group: Neuropathy
Posted: Mar 25, 2023
I know of only two prescription drugs, from personal experience, that help relieve my neuropathy symptoms:...
personal experience, that help relieve my neuropathy ... An analogy might be to consider neuropathy ... not seem likely I can reverse this neuropathy ... , stop the progression of it, or even ... slow it down.
Hi. I’m so sorry. I have ( more than likely) post surgical neuropathy but NO Dr...
( more than likely) post surgical neuropathy ... In 2010 I found th post surgical neuropathy ... m not diabetic I didn’t realize th neuropathy ... is progressing th entire time and ruining ... Just helps slow neuropathy.
Support Group: Neuropathy
Posted: Feb 6, 2023
I developed neuropathy from my knees down on both legs about midyear 2021. My first indication...
I developed neuropathy from my knees ... Walking the dog seemed to be slowing ... treatments I was not happy with my progress ... ultrabright if I start to backslide on my progress ... My case is only one neuropathy condition
Support Group: Neuropathy
Posted: Dec 12, 2022
I think I started taking statins when I was 35 (now I am 65). I have...
and he determined I had small fiber neuropathy ... The PN was progressing slowly through ... I can't stop the progression he ... The bottom line is statins cause neuropathy ... Start slow.
Support Group: Neuropathy
Posted: Nov 11, 2022
Ask your neurologist for a tissue biopsy. They take small pieces of tissue from your ankle...
length dependent small fiber sensory neuropathy ... Autonomic neuropathy. ... there is a lot that can be done to slow ... down the progression of the neuropathy
Support Group: Neuropathy
Posted: Oct 14, 2022
I have used ALA now for 4 years. Does it help? Hard to know, since PN...
Hard to know, since PN is progressive ... It has not decreased the neuropathy, ... but perhaps is helps slow it down??
Support Group: Neuropathy
Posted: Aug 14, 2022
@rhm601, Like you I also feel very fortunate that I don't have associated pain with my...
#39;t have associated pain with my neuropathy ... diagnosed me with idiopathic small fiber neuropathy ... complaining about numbness in the feet and progressing ... supplements since 2016 that have helped slow ... and possible have stopped the progression
Support Group: Neuropathy
Posted: Aug 11, 2022
Welcome @healthynana, I also take a protocol of supplements which I have been on since 2016....
and legs but also was worried about progression ... again, I do feel like I've either slowed ... the progression or possible stopped ... / The Foundation for Peripheral Neuropathy ... supplements that are known to help neuropathy
Support Group: Neuropathy
Posted: Mar 26, 2022
@mgh15 My SCS implant was in June, 2017, and the first year was really great! The...
I think I've tried every neuropathy ... arthritis), Prednisone 10mg (in hopes of slowing ... the progression), and I put Lidocaine ... inflammatory demylenating polyneuropathy is progressing
Support Group: Neuropathy
Posted: Feb 4, 2022
Hello @bunnynumbfeet, Welcome to Connect. I really never had pain with my idiopathic small fiber PN...
was looking for something that might slow ... or stop the progression. ... think the 525 protocol has helped slowed ... and possibly stopped the progression ... of my neuropathy but it's subjective
Support Group: Neuropathy
Posted: Nov 23, 2021
Hi Rick, I heard a variation of what you were told 🙂 I've only seen the...
diagnosis for 20+ years until the numbness progressed ... I also found the Minnesota Neuropathy ... think so far I've been able to slow ... or possible stop the progression of ... my neuropathy.
Support Group: Neuropathy
Posted: Oct 27, 2021
So, I'm 72, live in Oregon and was in relatively good shape until two years ago...
leg twitches, nighttime leg spasms, slow ... But the progress has continued slowly ... Dr. says "Idiopathic Neuropathy& ... is anything reasonable I can do to slow
Support Group: Neuropathy
Posted: Sep 7, 2021
Hello @cameron2020, Welcome to Mayo Clinic Connect. Thank you for sharing your neuropathy journey experience. Your...
Thank you for sharing your neuropathy ... a cure but I do believe they have slowed ... or stopped the progression since I ... When I was diagnosed with neuropathy ... are - Neuropathy Commons: https:
Support Group: Neuropathy
Posted: Mar 21, 2021