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548 total results
Comments (480)
Hi @catherinemary - I am sorry to hear that you are going through this. I remember...
https://connect.mayoclinic.org/comment/1244291/
remember when I first learned of my NETs ... found helpful years ago was from the Neuroendocrine ... Tumor Research Foundation at https:
Here’s a brief summary prior to starting treatment with Dr Wolin. 59 year old male presents...
https://connect.mayoclinic.org/comment/1238487/
with Grade 1, well differentiated neuroendocrine ... tumor. 11/15/23 Seen by medical oncologist ... intestines including 2 primary GI tumors ... K167< 1%
Had a consult with a NET ... Concerned with mesentery tumor pressing
@gig666, great question. @jlsgt is right that the term carcinoid is out of favor. Here's some...
https://connect.mayoclinic.org/comment/1235902/
tumor (NET). ... Here is more information about Lung NETs ... - Lung Neuroendocrine Tumors https ... www.pennmedicine.org/cancer/types-of-cancer/neuroendocrine-tumors ... /types-of-neuroendocrine-tumors/lung-neuroendocrine-tumors
Hi @leah4122 I'm sure you're worried especially since your dad had lung cancer at an early...
https://connect.mayoclinic.org/comment/1215283/
do a needle biospy on the largest tumor ... They turned out to be neuroendocrine ... nodules is because I have an even rarer neuroendocrine ... It also slows tumor growth. ... to ask the doctors to consider lung NETs
Hi Teresa, I have 3 mutant genes, two of which encode proteins that are located in...
https://connect.mayoclinic.org/comment/1208686/
Re the neuroendocrine tumors, these ... SDHB Ile127Ser is dominant for tumors ... about a 20% chance of developing a tumor ... mutant SDHB that gave rise to the NET ... , that mutant SDHB is dominant for tumors
https://www.cancer.gov/research/participate/clinical-trials-search/v?id=NCI-2023-06702&r=1 https://www.clinicaltrials.gov/study/NCT05636618?term=Targeted%20Alpha-Particle%20Therapy%20for%20Advanced%20SSTR2%20Positive%20Neuroendocrine%20Tumors&rank=1 Perspective Therapeutics is the drug manufacturer. Formerly Viewpoint Molecular Targeting, Inc. The protocol Number...
https://connect.mayoclinic.org/comment/1206772/
20for%20Advanced%20SSTR2%20Positive%20Neuroendocrine ... %20Tumors&rank=1
Perspective ... The protocol Number VMT-α-
NET-T101 ... / VMT-α-NET
The links above provides
Hi - NETs are neuroendocrine tumors, formerly called carcinoid tumors. They are either “typical” or “atypical”-...
https://connect.mayoclinic.org/comment/1205644/
Hi - NETs are neuroendocrine tumors, ... formerly called carcinoid tumors. ... my doctors know very little about neuroendocrine ... why people suggest trying to find a “NET ... realize how few doctors know much about NETs
Welcome, @dinitsa56. I used Google translate https://translate.google.com/ to translate from Greek to English. To help you...
https://connect.mayoclinic.org/comment/1175067/
other members who have experience with neuroendocrine ... tumors of the stomach, I moved your ... discussion:
- Anyone have a stomach NET ... I see that a new non-functioning tumor ... can be found here:
- Pancreatic NF-NET
I was told by my Sutter Health docs that I had "benign gastric neuroendocrine carcinoid tumor,"...
https://connect.mayoclinic.org/comment/1172008/
docs that I had "benign gastric neuroendocrine ... carcinoid tumor," who added, " ... surprise when I met someone at an online NET ... group who had Stage 4 gastric NET that ... They confirmed that all gastric NETs
Dougt - There is a good website you might checked out www.netrf.org (Neuroendocrine Tumor Research Foundation)...
https://connect.mayoclinic.org/comment/1143245/
you might checked out www.netrf.org (Neuroendocrine ... Tumor Research Foundation) that has ... a link - Nutrition & NETS that ... I was diagnosed with Stage 4 neuroendocrine ... (carcinoid) tumor.
@worriedlovingwife Is your husband considered a candidate for PRRT therapy? Here is some information about this...
https://connect.mayoclinic.org/comment/292378/
treatment option for patients with neuroendocrine ... tumors:
https://www.carcinoid.org ... fda-approves-lutathera-peptide-receptor-radionuclide-therapy-prrt-treatment-gastroenteropancreatic-neuroendocrine-tumors ... considered specialists in treating NETs ... always the best choice when you have a NET
I have been heavily engaged in NETs since my wife was diagnosed at Mayo Rochester in...
https://connect.mayoclinic.org/comment/275681/
I have been heavily engaged in NETs ... Tara Whyand who is a Oncology and Neuroendocrine ... Tumor Specialist Dietitian at The Royal ... NET, NET (pun intended), more discussion ... around NETs nutrition would be helpful
Hello @ristene and welcome to Mayo Connect, I am sorry to hear of this rare diagnosis....
https://connect.mayoclinic.org/comment/244177/
We have many people in the NETs discussion ... have also had a rare type of cancer, neuroendocrine ... tumors of the upper digestive tract
Hi @ja5747, there are a couple of members talking about everolimus (Afinitor) in the Neuroendocrine Tumor...
https://connect.mayoclinic.org/comment/258634/
about everolimus (Afinitor) in the Neuroendocrine ... Tumor (NETs) group here: https://connect.mayoclinic.org
I had 3 tumors in my one breast. At the first lumpectomy, it was invasive ductal...
https://connect.mayoclinic.org/comment/247769/
I had 3 tumors in my one breast. ... second it was invasive ductal and neuroendocrine ... don't see any discussions about NETs
Many of you have gotten to know @hopeful33250 in the discussions in the Neuroendocrine Tumor (NETs)...
https://connect.mayoclinic.org/comment/134534/
hopeful33250 in the discussions in the Neuroendocrine ... Tumor (NETs) group. ... she found Connect after her third neuroendocrine ... tumor diagnosis and experienced camaraderie
Hello @jljacoby and welcome to Mayo Connect, I appreciate your post about Small Bowel Obstruction. Many...
https://connect.mayoclinic.org/comment/233520/
surgeries of the duodenal bulb for NETs ... (neuroendocrine tumors, a rare form ... that is of that variety (2 grams of net
Hello @lendries and welcome to Mayo Connect. I appreciate your concern for your son. Neuroendocrine tumors...
https://connect.mayoclinic.org/comment/225813/
Neuroendocrine tumors are rare. ... you to seek a consultation with a NET ... only visit for one consultation, the NET ... , to seeking a consultation with a NETs ... www.mayoclinic.org/diseases-conditions/carcinoid-tumors
Hello @tvashon I also had gallbladder surgery many years ago. However, the surgery was in connection...
https://connect.mayoclinic.org/comment/176300/
remove a rare form of cancer called neuroendocrine ... tumor (NET or sometimes referred to
Hi Teresa: I would be glad to share my journey with you and your followers. In...
https://connect.mayoclinic.org/comment/107245/
Metz and is entirely dedicated to NETS ... The Ga68 showed more small tumors in ... the way, was wondering if my fellow NET ... Zebra Talk, Navigating the world of neuroendocrine ... tumors.
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