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Comments (10,000+)

How do you hope Rapamycin might help with PMR? I only found a couple of small...

https://connect.mayoclinic.org/comment/1154647/

you hope Rapamycin might help with PMR ... any studies of its effectiveness in PMR

Discussion: Rapamycin for Polymyalgia Rheumatica?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2024

I don't disagree with what you are saying but steroids alone were never going to resolve...

https://connect.mayoclinic.org/comment/1108790/

take steroids for 6 months for my PMR ... The inflammation of PMR aggravated some

Discussion: Changing from prednisone to NSAID’s

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 20, 2024

My PMR started when I was exercising at least two hours a day. Part of it...

https://connect.mayoclinic.org/comment/1072276/

My PMR started when I was exercising ... My aunt's PMR started after she

Discussion: Can PMR be induced by Exercise

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 21, 2024

Kevzara might be worth a try for "relapsing PMR" Kevzara won't work immediately so prednisone might...

https://connect.mayoclinic.org/comment/1067875/

be worth a try for "relapsing PMR ... With some additional luck, PMR will

Discussion: On a hamster wheel with PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 14, 2024

They appear to be the same study, first one for PMR and the second one for...

https://connect.mayoclinic.org/comment/1026500/

to be the same study, first one for PMR ... Patients With Polymyalgia Rheumatica (PMR

Discussion: Does anyone know about this clinical study ... interested?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3, 2024

Hi @kmb181 - I know it can be frustrating when the pain is increasing and the...

https://connect.mayoclinic.org/comment/808990/

. --- PMR and RA: https://connect.mayoclinic.org ... /discussion/pmr-and-ra/.

Discussion: PMR and RA

Support Group: Autoimmune Diseases

Posted: Feb 9, 2023

Well, yes...🙃, My PMR is in remission but I have sore arms and hips which give...

https://connect.mayoclinic.org/comment/782530/

🙃, My PMR is in remission but ... I have been wondering if my PMR is coming

Discussion: PMR and Hip, Back Pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 8, 2022

Hello @glp1340122, Welcome to Connect. I'm sorry to hear you developed neuropathy after your chemo treatments....

https://connect.mayoclinic.org/comment/780548/

see that you are also dealing with PMR ... My PMR is in remission but I've

Discussion: Has anyone tried anti-depressant medication for neuropathic pain?

Support Group: Neuropathy

Posted: Dec 3, 2022

Hi @kkirkum, welcome. I moved your post to this discussion: - Has anyone tried Dry Needling...

https://connect.mayoclinic.org/comment/723403/

posted to the Polymyalgia Rheumatica (PMR ... Do you also have PMR?

Discussion: Anyone tried Dry Needling or Acupuncture for Pain or Neuropathy?

Support Group: Neuropathy

Posted: Jul 3, 2022

I've been on prednisone for almost a year and diagnosed with PMR about 8 months ago....

https://connect.mayoclinic.org/comment/676280/

for almost a year and diagnosed with PMR ... The first shot led to having PMR so

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30, 2022

I'm sure you're very gracious. Just let the Director know how the long walk to show...

https://connect.mayoclinic.org/comment/617263/

chronic pain was like until I got PMR ... injuries, but nothing compares to PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2021

My initial occurrence of PMR was Sept. 2019 and it lingered in various intensities through mid-July...

https://connect.mayoclinic.org/comment/606924/

My initial occurrence of PMR was Sept ... all body and muscle stiffness from PMR

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2021

Kevzara also decreases inflammation by blocking IL-6 which is the basic problem in PMR. X-ray does...

https://connect.mayoclinic.org/comment/1226715/

IL-6 which is the basic problem in PMR ... believe clavicles can be involved in PMR

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 8:08am

My Opinion, you have reached the taper point. The kevzara has reduced the PMR inflamation but...

https://connect.mayoclinic.org/comment/1073468/

The kevzara has reduced the PMR inflamation ... created by the prednisone not the PMR

Discussion: PMR flare -Shoulder and neck pain..and headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

After four Moderna Covid vaccine shots over a three year period, my PMR symptoms began in...

https://connect.mayoclinic.org/comment/1059455/

shots over a three year period, my PMR ... may be the only one who thinks my PMR

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 29, 2024

Welcome @veronicamac, Sorry to hear that you have been struggling for 9 years with PMR. When...

https://connect.mayoclinic.org/comment/1041733/

have been struggling for 9 years with PMR ... reduce down to 2.5 mg of prednisone the PMR

Discussion: PMR - Decreased prednisone and pain returned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 28, 2024

Did you go straight from 10mg dose down to 7.5mg? If so, that was much too...

https://connect.mayoclinic.org/comment/1032578/

forget is that prednisone does not cure PMR ... our lowest effective dose and the PMR

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 12, 2024

Hello @mrspunkin, Welcome to Connect. You will notice that we moved your post into an existing...

https://connect.mayoclinic.org/comment/945560/

. --- PMR with normal blood markers ... /connect.mayoclinic.org/discussion/pmr-with-normal-blood-markers

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 10, 2023

You sound as if you are winning. I played around with that last milligram for 6...

https://connect.mayoclinic.org/comment/920424/

it must still be the residuals of PMR ... two years of coping with the pain of PMR

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28, 2023

A big yes to continuing with exercise when you have PMR! My second time around I...

https://connect.mayoclinic.org/comment/811807/

continuing with exercise when you have PMR ... off sooner than the first time with PMR

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 15, 2023