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548 total results
Comments (480)
AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...
know, diffuse idiopathic pulmonary neuroendocrine ... this discussion: - Typical Carcinoid Tumor ... connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs ... want to invite you to the monthly NETs ... See details here: - Neuroendocrine
Posted: Dec 11, 2021
Please follow this link for guidance - Neuroendocrine Cancer – tumour markers and hormone levels https://ronnyallan.net/2016/09/28/neuroendocrine-cancer-tumour-markers-and-hormone-levels/
follow this link for guidance - Neuroendocrine ... Cancer – tumour markers and hormone ... levels https://ronnyallan.net/2016/ ... 09/28/neuroendocrine-cancer-tumour-markers-and-hormone-levels
@john2025 Hi and welcome to Mayo Connect. I found the following on Neuroendocrene Tumor Research Foundation's...
I found the following on Neuroendocrene ... Tumor Research Foundation's website ... especially some duodenal and pancreatic NETs ... netrf.org/2025/12/17/glp-1-drugs-and-neuroendocrine-cancer-what-a-new-study-suggests
Posted: Dec 27, 2025
@rose2525: I feel your frustration! NETS primary tumors tend to be illusive and difficult to discover....
NETS primary tumors tend to be illusive ... In my case the primary suspicious tumor ... tumors; perhaps this will lead to a ... Have you consulted with a Neuroendocrine ... your decisions with the help of a Tumor
@nannybb I actually get the Dotatate Ga68 pet scan for my pancreatic neuroendocrine tumors that have...
Dotatate Ga68 pet scan for my pancreatic neuroendocrine ... tumors that have spread throughout ... Like @californiazebra suggested, a NET ... for diagnostic testing and scans for NETs
Posted: Nov 5, 2025
@djchambers: I am sorry you are faced with this situation with NET cancer. Most of your...
are faced with this situation with NET ... questions can be discussed on the Neuroendocrine ... differently - treatment resolution, tumor ... When I had tumor progression I chose ... center (University hospitals may have Neuroendocrine
Posted: Oct 19, 2025
Hello @cassandrar4 and welcome to the NETs group. It is understandable that you feel lost. There...
Hello @cassandrar4 and welcome to the NETs ... good treatments available now for NETs ... Is your neuroendocrine tumor in your
Posted: Sep 15, 2025
@creondave: Hi! I have had a history with cysts in liver, gallbladder, kidney, wrist & God...
Endoscopy, took biopsies, and diagnosed Neuroendocrine ... Carcinoma Tumor Cancer! ... Another reason I wanted to share is that Neuroendocrine ... is rare, but many of my peers have NET ... tumors in their pancreas’s tissue.
Discussion: Cyst on Pancreas?
Support Group: Pancreatic Cancer
Posted: Sep 9, 2025
I’m posting a little update we just got today after seeing a neuroendocrine oncologist . As...
update we just got today after seeing a neuroendocrine ... well-differentiated, Grade 2 pancreatic neuroendocrine ... tumor (NET) with the following characteristics ... be part of a study for this type of NET ... tumors which basically it’s a chemo
Posted: Jul 23, 2025
Recently diagnosed with NET of small intestine. I had a bioposy of it ...and its Well-differentiated...
Recently diagnosed with NET of small ... it ...and its Well-differentiated neuroendocrine ... tumor, WHO grade 1.
Posted: Jul 16, 2025
I would recommend trying to consult with a net specialist to ensure that you get the...
recommend trying to consult with a net ... at https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... to learn as much as you can about nets
@enelram12: You Dad’s cancer diagnosis maybe could be Carcinoid/Neuroendocrine Tumor Cancer like I have. Mine was...
diagnosis maybe could be Carcinoid/Neuroendocrine ... Tumor Cancer like I have. ... Tumor Cancer, I was put on Lanreotide ... series treatment that shrank up my tumors ... treatments to help your Dad live with this NET
Support Group: Cancer
Posted: Jun 28, 2025
Here's a link to New York specialists. Dr. Wolin is at Mt Sinai and has treated...
Wolin is at Mt Sinai and has treated nets ... decades https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... patient-group&multidisciplinary-net-team-sites ... =multidisciplinary-net-team-sites&amp
Welcome, @estrellita1. I moved your question about neuroendocrine tumor spreading to the liver to this related...
I moved your question about neuroendocrine ... tumor spreading to the liver to this ... related discussion in the NETs support ... group: - Neuroendocrine Carcinoma ... /connect.mayoclinic.org/discussion/neuroendocrine-carcinoma
Posted: May 31, 2025
First let me say I'm sorry you had to join this group. To answer your question...
gallium or copper pet scan which is net ... important first step is to find a NET ... opinion from another highly regarded net ... specialist to address the liver tumors ... Education https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Discussion: New PNET
Posted: May 28, 2025
Same here the fatigue had me sleeping thru life last 2 1/2 plus years. Reaction of...
ovaries out last fall including a NET ... tumor Liver NETS stable. ... asked oncology team to send me to neuroendocrine ... searching our bodies are complex and w NETS
I agree with Linda totally. I was diagnosed in 2013 and likely had this cancer much...
diagnosis and surgery to remove my primary tumor ... injection which is very normal for neuroendocrine ... tumor cancer patients. ... other areas, but after 12 years the tumors ... Also, be sure your father finds a NET
I'm sorry to hear of your dad's diagnosis. I know it's scary and you're smart to...
suggestion is to have your dad see a net ... at https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... / You can start to learn about nets ... at https://www.ncf.net/newlydiagnosed