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408 total results
Comments (378)
Hello @ranchan, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
one that a lot of us who have had neuropathy ... tingling indicates the presence of young axons ... idiopathic small fiber peripheral neuropathy
Support Group: Neuropathy
Posted: Aug 29, 2021
my particular experience with peripheral neuropathy began about 5 years ago, but upon reflection, with my...
particular experience with peripheral neuropathy ... diagnosed with nondiabetic "Severe Axonal ... Peripheral Neuropathy." . ... within the spectrum of peripheral neuropathy
Support Group: Neuropathy
Posted: Jun 8, 2021
There are others besides Winsantor in phase 2+ trials for drugs that stimulate peripheral nerve growth....
believe it may work for many types of neuropathy ... mechanism that our bodies use to destroy axons ... Winsantor, Regenancy, Disarm all believe neuropathy ... discovered how the body is executing axons ... like a sea change is coming for many neuropathy
Support Group: Neuropathy
Posted: Feb 27, 2021
Quick story—after 26 years of gout-doctor at Vanderbilt got me on allipurinol 300 to stop and...
more—neurologist(local) said—mild axons ... neuropathy-Accupincture fall 14 thru ... effect symptoms—read book “Reversing Neuropathy ... )—I want to return to “normal”—saw Neuropathy ... —these 20 people “knew more” about neuropathy
Support Group: Neuropathy
Posted: Feb 9, 2021
Hello all, I went to a 2nd neuro opthamologist yesterday. My first was in 2015 and...
is believed that I suffer most from neuropathic ... Axon Optics was suggested but it appears
Support Group: Eye Conditions
Posted: Jul 8, 2020
Hi I just joined this forum and I thought I'd share my story. I'll summarise as...
There was so much neuropathic pain ( ... #39;burned' at this level and my neuropathic ... the operation failed to improve the neuropathic ... I have severe bilateral asymmetric neuropathic ... enough damage to case weakness and axonal
I have burning feet - it started 11 months ago. It goes away when I take...
Gabapentin or Lyrica (I take those for axonal ... sensory neuropathy, and Restless Leg
Support Group: Neuropathy
Posted: Apr 21, 2019
Hello John: First let me thank you very much for your timely reply and quantity of...
particularly interested in "Statin Neuropathy ... June I was diagnosed with chronic axonal
Support Group: Neuropathy
Posted: Oct 12, 2018
I have severe axonal sensorimotor polyneuropathy. SFN, CAN- cardiac autonomic neuropathy ( you are given approx....
I have severe axonal sensorimotor ... SFN, CAN- cardiac autonomic neuropathy ... in my legs and hands from the motor neuropathy
Support Group: Neuropathy
Posted: May 27, 2024
Are you seeing a neuromuscular neurologist? I was diagnosed with autoimmune severe axonal sensorimotor peripheral polyneuropathy,...
was diagnosed with autoimmune severe axonal ... peripheral polyneuropathy, small fiber neuropathy ... , cardiac autonomic neuropathy yes it
Support Group: Neuropathy
Posted: Feb 7 7:18am
Glad to see this group. I have idiopathic sensorimotor axonal polyneuropathy, which means, in my case,...
I have idiopathic sensorimotor axonal ... but there is no known cause of the neuropathy ... understand that alcohol may exacerbate neuropathy ... had the possibility of easing the neuropathy
Support Group: Neuropathy
Posted: Jul 19, 2017
To Ray - In Feb 2020 Mayo in MN gave me the idiopathic axonal sensorimotor PN...
Mayo in MN gave me the idiopathic axonal ... explained to me that with this type of neuropathy ... The diagnosis of axonal PN now means
Support Group: Neuropathy
Posted: Aug 7, 2022
I have Sjogrens diagnosed by biopsies by an ENT went to the eye doctor be tested...
three punch biopsies for small fiber neuropathy ... conduction test I have autoimmune severe axonal ... , dysautonomia, Cardiac autonomic neuropathy
Discussion: Sjogren's Question
Support Group: Autoimmune Diseases
Posted: Mar 3 11:28pm
It is easy to get. You can contact the manufacturer and get get discounts. The doctor...
Mine is autoimmune severe axonal sensorimotor ... dysautonomia and cardiac autonomic neuropathy
Discussion: Sjogren's Question
Support Group: Autoimmune Diseases
Posted: Mar 10 6:16pm
Hypotension mean it drops low hypertension is high blood pressure. So do you have both or...
I have cardiac autonomic neuropathy ... autoimmune dysautonomia, small fiber neuropathy ... heart problems) autoimmune severe axonal
Support Group: Neuropathy
Posted: Feb 7 8:18am