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666 total results
Comments (642)
Hi! I'll be 80 in a couple weeks. Diagnosed with GCA – which began May 26,...
https://connect.mayoclinic.org/comment/896300/
Diagnosed with GCA – which began May ... " scalp – which is a prevalent GCA ... #34;Attending Physician" offered Actemra ... perforations reported in tocilizumab (Actemra ... began experiencing 4 months into the Actemra
Did you go completely off Actemra and what happened to the GCA markers and your health...
https://connect.mayoclinic.org/comment/882251/
Did you go completely off Actemra and ... what happened to the GCA markers and ... The consequences from GCA are so scary
I suspect there are many people out there who have PMR along with inflammatory arthritis with...
https://connect.mayoclinic.org/comment/876107/
inflammation pathway is implicated in PMR/GCA ... Maybe someday people with PMR/GCA will ... text=Currently%2C%20tocilizumab%20(Actemra
@stackyboy1 I understand....I was on high doses of pred along with Actemra for GCA.....I gained, for...
https://connect.mayoclinic.org/comment/874469/
was on high doses of pred along with Actemra ... for GCA.....I gained, for a gal who
There already is an alternate medication available for PMR patients. Kevzara (Sarilumab) was recently FDA approved...
https://connect.mayoclinic.org/comment/874426/
an IL-6 receptor blocker just like Actemra ... studies were promising for PMR just like Actemra ... was for GCA. ... I was told my experience with Actemra
I am in the states, but somewhat familiar with the various medical studies because I had...
https://connect.mayoclinic.org/comment/873939/
studies because I had a raging case of GCA ... worked on the clinical trials for Actemra
First I'd like to say I do not have PMR but GCA. However, I have two...
https://connect.mayoclinic.org/comment/873919/
like to say I do not have PMR but GCA ... Another gal developed GCA and is in ... used to take weekly injections of Actemra
@livingwithpmr I'll be heading North soon to Nova Scotia, where I have family. Since I have...
https://connect.mayoclinic.org/comment/873189/
I can only share my GCA story....I' ... I was diagnosed with GCA, in August ... I now take 3 mg plus Actemra daily.
@nativeoregirl I have a great deal of compassion for what you are experiencing. My feeling is...
https://connect.mayoclinic.org/comment/870566/
prednisone when it comes to dealing with GCA ... I've been on Pred and Actemra for
No ringing in the ears; I know that must be beyond difficult. After three years, I...
https://connect.mayoclinic.org/comment/866652/
I've been on Actemra for three years ... My case of GCA went for almost a year ... I had to listen to my body...that GCA ... I take 3mg per day and still take Actemra
I also belong to a group in the UK and they are hard pressed to get...
https://connect.mayoclinic.org/comment/864788/
UK and they are hard pressed to get Actemra ... for GCA.
Your attitude is fantastic. I wanted to share about a friend of mine with GCA....she rode...
https://connect.mayoclinic.org/comment/863367/
share about a friend of mine with GCA ... like all of us, with either PMR or GCA ... take a few mg each day along with Actemra
I was diagnosed in August of 2019 with GCA. By October of that year, I was...
https://connect.mayoclinic.org/comment/862912/
was diagnosed in August of 2019 with GCA ... on 80mg of methylprednisolone and Actemra
I'm glad to hear they are planning the biopsy, the loss is permanent, as I had...
https://connect.mayoclinic.org/comment/859875/
I'd never even heard of GCA until ... per day three years ago to 3mg and Actemra
Mind you...I am no doctor! I speak to you as another 82 year old and am...
https://connect.mayoclinic.org/comment/857883/
I was finally diagnosed with GCA in ... Presently I am on 3 mg daily plus Actemra
I did not submit any medical records, and I do not remember signing a release (but...
https://connect.mayoclinic.org/comment/848941/
I have PMR and "presumed" GCA ... Actemra seems to be working so far,
Did you need to submit any medical records or sign a consent to release your medical...
https://connect.mayoclinic.org/comment/848234/
However, Medicare will cover Actemra ... hospital so long as it is being used for GCA ... Is Actemra working for you?
Kaiser Permanente Northern California seems to be treating Actemra and Kevzara as interchangeable with Actemra their...
https://connect.mayoclinic.org/comment/835305/
Northern California seems to be treating Actemra ... and Kevzara as interchangeable with Actemra ... I think this is becasue they get Actemra ... Actemra is approved for GCA (but not ... Kevzara is approved for PMF (but not GCA
Is "inflammatory arthritis" the same as "rheumatoid arthritis"? I'm pretty sure there were blood tests for...
https://connect.mayoclinic.org/comment/834654/
several disease categories, certainly GCA ... doctors have only focused on PMR and GCA ... Tapering should be fairly quick once Actemra ... Prednisone as soon as I can, so starting Actemra ... seriously discussed me getting on Actemra
My doctor apparently has no problem writing a prescription for Actemra since I have "presumed GCA...
https://connect.mayoclinic.org/comment/833276/
problem writing a prescription for Actemra ... since I have "presumed GCA and ... stated skepticism about my having GCA ... victims using Actemra. ... GCA is FDA approved.
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