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Comments (2,907)
I've been on monthly Actemra infusions since January 2025. Actemra allowed me to taper off of...
https://connect.mayoclinic.org/comment/1521387/
Actemra allowed me to taper off of Prednisone ... flares I was having while trying to taper ... Actemra told me that he will taper me ... off of the Actemra when the time comes ... happy when I took my last dose of prednisone
@jeanrod825 My husband and I ate at a very good restaurant! We both felt something off...
https://connect.mayoclinic.org/comment/1520244/
We both felt something off later at ... DOSES OF SOLUMEDROL THEN lowered dose PREDNISONE ... tapered to ACTEMRA FOR EYE "PROTECTION
Never had headaches, had a lot of other problems with Abbie. You can stop Abbie cold...
https://connect.mayoclinic.org/comment/1516742/
Stopping prednisone is another story ... , you must taper off of it over a long
I had always assumed the dosage was weight based, but I see so much variability on...
https://connect.mayoclinic.org/comment/1516334/
On prednisone I gained 5 pounds back ... As I tapered I began feeling older and ... I have now been off prednisone for over
From an AI search Stopping Androgen Deprivation Therapy (ADT) and Zytiga (abiraterone acetate), especially if done...
https://connect.mayoclinic.org/comment/1515844/
Not sure how you tapered prednisone, ... but it must be tapered off over a month ... Cause of Aches and Weakness: When prednisone
What you have experienced is very common. I think PMR is like other autoimmune conditions because...
https://connect.mayoclinic.org/comment/1528955/
taper but also it can be characterized ... off Prednisone.
3) PMR can be a ... off Prednisone. ... It wasn't because I tapered Prednisone ... for relapsing PMR -- I have now been off
@charann2000 I was diagnosed with GCA w/ Temporal Arteritis 10 months ago and it has been...
https://connect.mayoclinic.org/comment/1529723/
had a three dose round of high dose Prednisone ... Since then I have been on Prednisone ... I am now tapering off of the Prednisone ... The Prednisone is being augmented by
I had a mild case to begin with and only hurt in my thighs and upper...
https://connect.mayoclinic.org/comment/1522310/
was right away and prescribed 10 mg. prednisone ... away immediately and I managed to taper ... off of it within a year--about .5 to
I started on prednisone for PMR in May, 2025 at 40 mg a day. I was...
https://connect.mayoclinic.org/comment/1532551/
I started on prednisone for PMR in May ... I was able to taper to 15mg a day by ... a day and have been told to try to taper ... Kevzara has given me hope I can get off ... prednisone, which we all would dearly
@kjoed53 You are your own best advocate. Sometimes you have to inc prednisone before you can...
https://connect.mayoclinic.org/comment/1532655/
Sometimes you have to inc prednisone ... I am a big advocate of “self taper at ... Copy off the internet the Kevzara info
@dadcue Thank you so much for your input! I visited my rheumatologist yesterday! I will be...
https://connect.mayoclinic.org/comment/1523692/
I will be tapering off prednisone in ... don't have setbacks during the tapering ... This prednisone is terrible!
@laurenand Thanks. Very pleased to hear your rheumatologist is aiming to get you off prednisone completely....
https://connect.mayoclinic.org/comment/1523597/
rheumatologist is aiming to get you off ... prednisone completely. ... Good luck with the tapering. ... achey and tired for about a week after tapering
Yes, Mike, I am off prednisone. I began taking it in April of last year when...
https://connect.mayoclinic.org/comment/1522449/
Yes, Mike, I am off prednisone. ... taking Rinvoq in June as I began my prednisone ... taper. ... Took my last mg of prednisone on or
@emrose If you start Rinvoq ... please let everyone know how it works. These newer medications...
https://connect.mayoclinic.org/comment/1522269/
who can't seem to taper off Prednisone ... Actemra allowed me to get off Prednisone ... I haven't needed any Prednisone ... more than a year to get completely off ... on Actemra alone -- I'm better off
@ronludington There are so many things that "contribute" to our overall pain levels. I think Actemra...
https://connect.mayoclinic.org/comment/1520793/
PMR when I was able to decrease my Prednisone ... have a PMR relapse when I lowered my Prednisone ... have residual pain after I stopped Prednisone ... has improved substantially since I tapered ... off prednisone.
I had cataract surgery 3 months after I stopped KEVZARA. It worked well to reduce and...
https://connect.mayoclinic.org/comment/1520599/
It worked well to reduce and get off ... prednisone but I had numerous infections ... Worst case if you get off KEVZARA for ... you could have a few weeks back on prednisone ... There’s no tapering of the KEVZARA as
@pah17 I want to say thank-you for posting this topic. It triggered an interesting discussion. There...
https://connect.mayoclinic.org/comment/1520541/
There isn't any way to taper off ... superior to other ways to get off prednisone ... off prednisone. ... I still had residual pain when I tapered ... off Prednisone.
@jeff97 My uveitis flares were mostly unilateral. The majority of the flares were only in my...
https://connect.mayoclinic.org/comment/1519723/
Fortunately my eye responded to 100 mg of Prednisone ... and my ophthalmologist said to taper ... off as soon as I could because he didn ... continued to improve and I was able to taper ... off Prednisone again in a couple of
I experienced hives off and on while I was on prednisone. Not sure what pressure hives...
https://connect.mayoclinic.org/comment/1519247/
I experienced hives off and on while ... I was on prednisone. ... Haven’t had them (knock on wood) since tapering ... off prednisone. ... You don’t mention the use of prednisone
@randersonccc Just my opinion about Actemra along with some personal experience. Actemra is a "targeted" biologic...
https://connect.mayoclinic.org/comment/1517810/
insufficiency I had when I was coming off ... prednisone. ... That side effect from prednisone pops ... up on lower doses of prednisone and ... insufficiency can manifest during low-dose tapering
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