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Comments (1,916)
Hi @centralflorida, that seems a high dosage of prednisone for PMR - it's usually about 20...
centralflorida, that seems a high dosage of prednisone ... diagnosis and was prescribed 40 mg of prednisone ... to start with a 5 mg taper every two ... I was off prednisone a year and a half
I was told 30 years ago that there are "3 possibilities" which I think are generally...
and never happen again---people get off ... subset of this group assuming they can taper ... off Prednisone a second time. 2) ... It gets more and more difficult to taper ... off prednisone. 3) PMR could become
Posted: Aug 18 9:05pm
I had to slow my taper by alternating 3mg/2.5 mg every other day for a week...
I had to slow my taper by alternating ... hydroxychloroquine at the same time as the prednisone ... Imuran to see if that allowed the taper ... to works enough to get off the prednisone
Posted: Aug 27 7:07am
@tapamil65 Hello and welcome to the PMR group! I agree that this forum is a wealth...
tapering. ... who are having difficulties getting off ... prednisone and it seems to help these ... on any other medications to get you off ... the prednisone?
Posted: Aug 27 11:24am
@lindaadel I encourage you to suggest a biologic to your rheumatologist. I’m on a monthly infusion...
along with a daily dose of 5 mg of prednisone ... Next month I’m going to begin tapering ... off of the prednisone.
Posted: Aug 31 12:25pm
I woke up one morning and felt sore. Like I had completed a hard workout, lots...
She put me on prednisone and I felt ... After 10 months, she had me taper off ... When I went off prednisone, the pain ... be making it sound like I’m worse off
Support Group: Autoimmune Diseases
Posted: Aug 18 8:59pm
You might also be interested in these related discussions in the PMR support group: - PMR...
/discussion/flareups-prednisone-tapering ... / - When and How to Taper Prednisone ... / - Any Tips For Tapering Off Prednisone ... connect.mayoclinic.org/discussion/any-tips-for-tapering-off-prednisone ... search=tapering%20prednisone&index
Posted: Sep 4 2:01pm
Hi @jojobarrk, I think it's good that you notified the doctor. I hope you get an...
at 40 mg because I'm small, my taper ... has been -5 mg of prednisone every ... I was off it for a year, but relapsed ... round I did feel jumpy and trembly on prednisone
Posted: Sep 9 7:16pm
What you have described is one of the reasons why long term prednisone use can end...
is necessary. "So, getting off ... biologic when I was unsuccessful at tapering ... off prednisone for 12 years. ... the most was an "inability to taper ... off Prednisone." "
Welcome @yertondg, Sorry you've had such a struggle with PMR and hopefully the new rheumatologist can...
the new rheumatologist can help you taper ... off of prednisone. ... off with the last six months going ... off and only have minimal aches and ... you get up in the morning and your prednisone
I learned one of my early lessons on steroids from my wife. She has GBM. Brain...
Then they needed her to taper off to ... They told us as close to off as she ... which is about the equivalent of 5.5 prednisone
Posted: Aug 27 5:05pm
What was the side effect you had from the Kevzara injections? I didn't have much success...
off Prednisone either until Actemra ... is no "single best way" to taper ... off Prednisone. ... I was on Prednisone for 12 years so ... my taper was "painstakingly slow
Posted: Aug 28 11:34am
I have been on Prednisone since January of 2023. After 2 failed attempts in tapering off...
After 2 failed attempts in tapering ... off Prednisone, my Rheumatologist prescribed ... In previous attempts to taper, once ... I'm currently tapering at 1 mg/two ... weeks and hope to be off Prednisone
Posted: Sep 25 9:39am
I have no experience with Kevzara but I have over 15 years of experience with PMR....
off Prednisone no matter how slowly ... off prednisone anymore. ... off Prednisone within one year. ... off Prednisone except for underlying ... I tapered off Prednisone and have remained
Discussion: Kevzara
Posted: Sep 15 8:57am
I would think you might need more than 2.5 mg of prednisone before starting Kevzara. It...
you might need more than 2.5 mg of prednisone ... You still need to taper off Prednisone ... still took me more than a year to get off ... Prednisone completely. ... I was still taking 10 mg of prednisone
Discussion: Kevzara
Posted: Sep 17 10:13am
No floaters but my vision has been blurry and eyes horribly filled with blood like pinkeye...
now and they got worse after PMR and Prednisone ... debilitating effects of trying to taper ... off Prednisone, I'm pretty bummed
Posted: Sep 17 1:04pm
Hi @dadcue! You asked "Did anyone ever tell you that your taper was too fast?" The...
Did anyone ever tell you that your taper ... UK, and when I posted the six month tapering ... and it turned out that I was able to taper ... introduced about a month later and to start tapering ... off Prednisone.
Posted: Sep 19 12:45pm
Hi.... I would like to get your insight on Actemra. I was diagnosed with GCA in...
Started with 60mg Prednisone and after ... Actemra injections (while still on 10mg Prednisone ... I am off Prednisone since end of July ... Have you heard anything about tapering ... off or discontinuing Actemra ?
Posted: Sep 20 9:54am