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276 total results

Comments (259)

Thank you David.. Neuropathy and Erythromelalgia are taking a toll on my feet.. The toes on...

https://connect.mayoclinic.org/comment/260510/

Neuropathy and Erythromelalgia are taking

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: May 6, 2019

@lorirenee1, Hi Lori, thanks so much for writing. Yes, the neuro consul...ugh, oh ugh. First off...

https://connect.mayoclinic.org/comment/256446/

caused by a rare condition called Erythromelalgia

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: May 4, 2019

I am still rather lost on Connect.. Hopefully this is where I continue with my reports...

https://connect.mayoclinic.org/comment/260502/

NEUROPATHY that I'm trying for Erythromelalgia

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: May 1, 2019

Hi @hotfooted, I think more members might see your post if it were in the following...

https://connect.mayoclinic.org/comment/213692/

the following active discussion on Erythromelalgia ... Groups > Autoimmune Diseases > Erythromelalgia ... /connect.mayoclinic.org/discussion/erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Jul 4, 2019

My symptoms sound a lot like yours. I have burning feet, legs, hands, and arms. My...

https://connect.mayoclinic.org/comment/630989/

I read about Erythromelalgia after I

Discussion: Burning feet and legs

Support Group: Neuropathy

Posted: Aug 29, 2021

Guess I'm in the same boat as you.. It just isn't fun being sick all the...

https://connect.mayoclinic.org/comment/257233/

also have the hot red burning feet (Erythromelalgia

Discussion: Have You Made Any Kind of Peace With Having Your Neuropathy?

Support Group: Neuropathy

Posted: Mar 30, 2019

@januaryjane there is another discussion on Connect for Erythromelalgia with the same symptoms except not with...

https://connect.mayoclinic.org/comment/291004/

another discussion on Connect for Erythromelalgia ... Groups > Autoimmune Diseases > Erythromelalgia ... /connect.mayoclinic.org/discussion/erythromelalgia ... / Erythromelalgia involving the face ... https://rarediseases.org/rare-diseases/erythromelalgia

Discussion: Inflammation, face gets hot and red

Support Group: Autoimmune Diseases

Posted: Jan 24, 2020

burningfeetinphoenix... Your name says so much about your poor hot feet! I identify with you since...

https://connect.mayoclinic.org/comment/275330/

Erythromelalgia has been a bugaboo for

Discussion: Ideas for pain relief from Small Fiber Neuropathy (SFN)

Support Group: Neuropathy

Posted: Nov 28, 2019

Thank you all. Unfortunately, they called the day before to cancel. I was pretty upset, they...

https://connect.mayoclinic.org/comment/302577/

find one specialist in my state for Erythromelalgia

Discussion: Very uncomfortable, not much helping

Support Group: Just Want to Talk

Posted: Mar 27, 2020

Hi, I am new to your forum, I have Erythromelagia, a nerve disorder (Neuropathy) as well...

https://connect.mayoclinic.org/comment/878871/

I am new to your forum, I have Erythromelagia

Discussion: Has anyone tried Ozone High Dose Therapy for Nerve Pain?

Support Group: Neuropathy

Posted: Jun 15, 2023

You said it right by saying it is in Gods hand. I know the doctors do...

https://connect.mayoclinic.org/comment/874037/

I suffer from Erythromyalgia and it

Discussion: Autoimmune Diseases are relentless

Support Group: Autoimmune Diseases

Posted: Jun 7, 2023

I have erythromelalgia. I have tried almost all of the meds. and they either did not...

https://connect.mayoclinic.org/comment/1054682/

I have erythromelalgia. ... there is ever a break-thru for this Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Apr 21 9:53am

How are you doing now? I am spending most of my day on the couch because...

https://connect.mayoclinic.org/comment/1055336/

just read that new studies show that erythromelalgia

Discussion: Erythromelalgia: What medications or therapies have helped you?

Support Group: Autoimmune Diseases

Posted: Apr 22 12:18pm

How are you doing? I have erythromelalgia and I spend most of my day on the...

https://connect.mayoclinic.org/comment/1055197/

I have erythromelalgia and I spend most

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Apr 22 9:32am

Hello @debinsf8, Welcome to Connect. While you wait for @debschults to respond here is some information...

https://connect.mayoclinic.org/comment/988076/

More resources on Erythromelalgia: ... / The Erythromelalgia Association – ... FAQs: https://erythromelalgia.org/resources ... what other members have shared: – Erythromelalgia ... /connect.mayoclinic.org/discussion/erythromelalgia

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Dec 29, 2023

I have been recently diagnosed with erythromelalgia in both hands and feet. I am 53yr old...

https://connect.mayoclinic.org/comment/1018157/

have been recently diagnosed with erythromelalgia ... point me to the contact info for the erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Feb 18 6:35pm

I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...

https://connect.mayoclinic.org/comment/1089100/

goiter, what the dermatologist calls erythromelalgia