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375 total results
Comments (360)
I know i'm responding to an old post, but am looking for fellow CIDP'ers. I have...
https://connect.mayoclinic.org/comment/1065359/
old post, but am looking for fellow CIDP ... I have recently been diagnosed and going ... I was diagnosed in March 2024, and although ... neurologist who saw me was able to easily diagnose ... have read it could take years to be diangosed
Discussion: Anyone been diagnosed with CIDP? It's very rare
Support Group: Autoimmune Diseases
Posted: May 10, 2024
I was immediately diagnosed with CIDP (2 Neurologists). I did one series of 16 IVIG infusions...
https://connect.mayoclinic.org/comment/1060592/
I was immediately diagnosed with CIDP ... I apparently have a CIDP variant. ... CIDP has "many" different aspects
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: May 2, 2024
Hello! Do you happen to know how many women on this website has been diagnosed with...
https://connect.mayoclinic.org/comment/1060312/
many women on this website has been diagnosed ... with CIDP? ... I have been diagnosed with severe axonal ... Was everyone immediately diagnosed with ... CIDP?
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: May 1, 2024
Scott22 @Scott22 I was diagnosed with CIDP and after testing the neurologist said that it’s idiopathic....
https://connect.mayoclinic.org/comment/1050475/
Scott22 @Scott22 I was diagnosed ... with CIDP and after testing the neurologist ... that are having treatments were you diagnosed ... with a cause for your CIDP ?
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Apr 14, 2024
@supernat10 My gastro appointment with the surgeon was good. I really liked her. We are going...
https://connect.mayoclinic.org/comment/1040727/
especially to check/rule out MS and/or CIDP ... , bloodwork for MS, spinal tap for CIDP ... if they agree it would help me get diagnosed
Discussion: Unknown illness
Support Group: Autoimmune Diseases
Posted: Mar 26, 2024
Question for the group. I was diagnosed with CIDP around 6 months ago although it has...
https://connect.mayoclinic.org/comment/1033771/
I was diagnosed with CIDP around 6 months ... taken like three years to get to a diagnosis ... I am wondering if it's the CIDP
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Mar 15, 2024
John, I appreciate the quick response, means a lot to me. The IVIG treatment was a...
https://connect.mayoclinic.org/comment/1031750/
was a remedy for one of the previous diagnosis ... namely CIDP (Chronic Inflammatory Demyelinating
Discussion: Anyone have the FGFR3 antibody gene?
Support Group: Neuropathy
Posted: Mar 11, 2024
Hi Becky. Thank you. Being that both apply to me I’m wondering if I had demyelination...
https://connect.mayoclinic.org/comment/1024506/
CIDP is closest to what I have found ... and effects… I have not yet been diagnosed ... lab tests but they were looking for diagnosis ... physical therapy doctor mentioned CIDP
Discussion: Demylinating Sensorimotor Neuropathy vs./ or and Polyradiculopathy
Support Group: Autoimmune Diseases
Posted: Feb 28, 2024
Wondering how you were diagnosed and by what kind of doctor? I may be joining this...
https://connect.mayoclinic.org/comment/1020842/
Wondering how you were diagnosed and ... Once you have a diagnosis, then there ... situation, it took a long time to get a diagnosis ... because the condition (CIDP) hadn’t
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Feb 23, 2024
@bjbates53 Have you had this severe fatigue since you were first diagnosed? Has it gotten worse?...
https://connect.mayoclinic.org/comment/938290/
severe fatigue since you were first diagnosed ... There is an ongoing CIDP support group ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy
Discussion: CIDP/GBS
Support Group: Autoimmune Diseases
Posted: Sep 28, 2023
The symptoms described in this post sound very much the same as what I have. I...
https://connect.mayoclinic.org/comment/916867/
little over a year ago that I have CIDP ... After months without a firm diagnosis ... sought doctor who is interested in CIDP ... but she questioned diagnosis because
Discussion: Searching For Diagnosis. CIDP? Please Help Me
Support Group: Neuropathy
Posted: Aug 21, 2023