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666 total results
Comments (642)
I’m Bob … My GCA has caused blindness in one eye and reduced vision in the...
I’m Bob … My GCA has caused blindness ... progressively tapered to 15 and started Actembra ... balance-swelling, etc. and have lived for Actembra ... of reduced Prednisone and starting Actembra
Posted: Feb 18, 2024
I was on prednisone for more than 12 years. I have been completely off prednisone for...
the treatment of GCA. ... treat me as if I was diagnosed with GCA ... which can also cause blindness like GCA ... https://www.actemra.com/gca/considerations ... /gca.html#:~:text=ACTEMRA%20changes%
Discussion: PMR Taper and pain
Posted: Feb 15, 2024
I am 80 year old woman and I was first diagnosed with PMR in 2015 ....
developed classic symptoms of LCA or GCA ... prednisone and a weekly injection of Actemra
Support Group: Autoimmune Diseases
Posted: Feb 2, 2024
Did your rheumatologist start Actemra? When were you diagnosed with GCA and PMR? How long have...
Did your rheumatologist start Actemra ... When were you diagnosed with GCA and ... How long have you taken Actemra? ... Hopefully the flares will stop as Actemra
Posted: Dec 31, 2023
No problem. I don't know too much about Kevzara. I will be looking forward to your...
I only know about Actemra but it isn ... of GCA. ... I don't have much insight into GCA ... because I was never diagnosed with GCA ... works for GCA ... it should work for
Posted: Dec 4, 2023
While being treated for GCA first time round, I didn't feel really bad - no pains,...
While being treated for GCA first time ... am so hoping that when I start on Actemra
Discussion: GCA conserns
Posted: Dec 1, 2023
Thanks. It is really good to be off Prednisone. But there seems to be no clear...
medical literature about discontinuing Actmera ... The main GCA/Actemra study in the New ... schedule; for me it would mean staying on Actemra ... While Actemra seems to have fairly minimal
Discussion: GCA conserns
Posted: Nov 29, 2023
I have GCA/PMR and have had increased red cell volume since going on Actemra a year...
I have GCA/PMR and have had increased ... red cell volume since going on Actemra ... hear others have this, unrelated to Actemra
Posted: Nov 20, 2023
Actemra is the biologic I currently take as a monthly infusion. Four years ago, new research...
Actemra is the biologic I currently ... research showed encouraging results with Actemra ... Currently, Actemra is FDA approved for ... GCA.
I hope Actemra works for you. Your Actemra injection dose is probably 162 mg. As far...
I hope Actemra works for you. ... Your Actemra injection dose is probably ... For GCA, 162 mg administered subcutaneously ... When Actemra is given by an IV infusion
Posted: Oct 21, 2023
I had a biopsy for GCA while on 60 mg. of prednisone. I had just been...
I had a biopsy for GCA while on 60 mg ... said it was the only way to confirm GCA ... to 9 mg) and have started 80 mg of Actemra
Posted: Oct 21, 2023
Actemra is FDA approved for GCA only. Kevzara is FDA approved for PMR only. Either of...
Actemra is FDA approved for GCA only ... States if a patient has both PMR and GCA ... After Actemra was started, I got off
Welcome @nancy334, Sorry to hear you are still struggling with PMR after 3 and half years....
find helpful: --- Rinvoq for PMR and GCA ... connect.mayoclinic.org/discussion/rinvoq/ --- Actemra ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr
Hi @dbyrne, I moved your discussion and combined it with an existing discussion titled: - Think...
Think I have Giant Cell Ateritis (or GCA ... connect.mayoclinic.org/discussion/think-i-have-gca ... like @pickle7 who also talked about Actemra
Posted: Sep 6, 2023
I don't wish to suggest that Actemra is a perfect solution for PMR/GCA. My rheumatologist didn't...
I don't wish to suggest that Actemra ... is a perfect solution for PMR/GCA. ... He just wanted me to try Actemra because ... I'm happy that I tried Actemra. ... I don't know if Actemra will ever
The following link talks about a research study with Actemra (tocilizumab) for the treatment of PMR....
talks about a research study with Actemra ... So far, Actemra still isn't FDA ... However, Actemra is FDA approved for ... the treatment of GCA. ... under the same guidelines used for GCA