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Comments (3,684)

Hi. I am recouping from optic nerve meningioma which I had last Wednesday. It was a...

https://connect.mayoclinic.org/comment/185913/

Stayed overnight in neuro ICU.

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Mar 19, 2018

I have had experience with this. My surgeon removed as much as he could, but I...

https://connect.mayoclinic.org/comment/185910/

My neuro did offer surgery on the left

Discussion: Any Optic Nerve Meningioma Patients Who've Had Surgery?

Support Group: Brain Tumor

Posted: Mar 16, 2018

Yes,me. I have had this for over 15 years. Currently am suffering now, and probably will...

https://connect.mayoclinic.org/comment/54799/

I had a full neuro work up, about 6

Discussion: "Electric Shock" type pain in my scalp!

Support Group: Chronic Pain

Posted: Feb 28, 2018

Sorry to break in here but I thought the DaT scan was a standard procedure. When...

https://connect.mayoclinic.org/comment/114225/

When I was first seen at Neuro I was

Discussion: Parkinson's and Speech/Swallowing Problems

Support Group: Parkinson's Disease

Posted: Jan 1, 2018

Not to be alarmist, but I have had two things happen with Gabapentin. First, when my...

https://connect.mayoclinic.org/comment/173456/

First, when my father was seeing a neuro

Discussion: Gabapentin use for neuropathy

Support Group: Neuropathy

Posted: Dec 29, 2017

Hello @lvmyfamly Nice to e-meet you here on Connect. Sorry to learn of your parents' health...

https://connect.mayoclinic.org/comment/112281/

wife was lucky that from day one her neuro-oncologist

Discussion: Meet fellow Caregivers - Introduce yourself

Support Group: Caregivers

Posted: Nov 8, 2017

I am at the event site and there is no video. How do I access the...

https://connect.mayoclinic.org/comment/382612/

How do I access the neuro chat?

Event: #MayoClinicNeuroChat about Scoliosis

Posted: Nov 2, 2017

What are the eye issues as I am having weird lights in the morning when my...

https://connect.mayoclinic.org/comment/84328/

See a neuro eye doctor after cat scan

Discussion: Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Support Group: Brain Tumor

Posted: Oct 1, 2017

I wanted to add that my aneurysm was found unruptured by MRA done for dizziness. Otherwise...

https://connect.mayoclinic.org/comment/381947/

Otherwise I had no Neuro symptoms.

Event: #MayoClinicNeuroChat about Brain Aneurysms

Posted: Sep 16, 2017

Sending her another huge hug, and hoping for the very best outcome! I see my neuro...

https://connect.mayoclinic.org/comment/163127/

I see my neuro tomorrow and we'll decide

Discussion: My sister Jill's brain tumor treatment plan at Mayo Clinic

Support Group: Brain Tumor

Posted: Aug 20, 2017

I also do Nero Feedback and it helps with pain

https://connect.mayoclinic.org/comment/127727/

I also do Nero Feedback and it helps

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Aug 15, 2017

Hi @jimhd We were in NW Indiana at the time, but I owe a ton of...

https://connect.mayoclinic.org/comment/95858/

and assistance we received from her neuro-oncologist

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Aug 11, 2017

I'd like to know what some of the symptoms of neuro-sarcoidosis are. Can I also get...

https://connect.mayoclinic.org/comment/130820/

know what some of the symptoms of neuro-sarcoidosis ... get an update as to how any of you neuro

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Jul 27, 2017

Hi again @parus First I'll say I enjoyed seeing your artwork! I appreciate you attaching it....

https://connect.mayoclinic.org/comment/160273/

Plus my wife received wonderful neuro-oncological

Discussion: Being Old With Chronic Pain plus Loneliness

Support Group: Chronic Pain

Posted: Jul 18, 2017

Hi, Just reading over my last MRI, this is what is says: Stable recurrent/residual meni involving...

https://connect.mayoclinic.org/comment/156090/

guess I most likely have both, but my neuro

Discussion: Meningioma and Cavernoma: Stressed Waiting and Watching

Support Group: Brain Tumor

Posted: Jul 16, 2017

Hi @nancye3, I had the cyberknife procedure at Swedish Hospital in Seattle but I have decided...

https://connect.mayoclinic.org/comment/116351/

done here in Montana by an amazing neuro

Discussion: Anyone have multiple meningioma brain tumors?

Support Group: Brain Tumor

Posted: Jul 4, 2017

I don't see her ( my new Nero/DR until July the 20th, than I hope she...

https://connect.mayoclinic.org/comment/128488/

I don't see her ( my new Nero/DR until

Discussion: Parkinson's and Moods

Support Group: Parkinson's Disease

Posted: Jul 3, 2017

First, thank you Colleen for connecting us... because it is such a rare tumor it is...

https://connect.mayoclinic.org/comment/154026/

they haven't connected you with a Neuro-Oncologist ... sooner than later by a well qualified Neuro-oncologist ... My Neuro-oncologist sees patients both

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Jun 28, 2017

We see a great neuro doctor my husband has neuro sarcoidosis this is sarcoidosis in the...

https://connect.mayoclinic.org/comment/130794/

We see a great neuro doctor my husband ... has neuro sarcoidosis this is sarcoidosis

Discussion: Pulmonary Sarcoidosis: How are you dealing with it?

Support Group: Lung Health

Posted: Apr 27, 2017

Hi Connielaine, Thanks so much for the prompt reply. Your description is very helpful. I will...

https://connect.mayoclinic.org/comment/52922/

consulted with a friend who specializes in neuro