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666 total results
Comments (642)
I has an increase in headaches, temple pain, and some jaw discomfort and tightness. The doctor...
The left side was “suspicious” for GCA ... My rheumatologist has now got me on Actemra ... which is approved for GCA…. ... I was hoping the Actemra would help ... problem is, I’m just assuming the Actemra
Posted: Nov 2, 2024
I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...
reasonably sure there was no evidence of GCA ... It was somewhat ironic when Actemra ... to treat me "as if" I had GCA ... Otherwise Actemra wouldn't been ... behalf but first made me promise to try Actemra
Hi @jenb I have both PMR and GCA. Before I was diagnosed I had severe itching...
Hi @jenb I have both PMR and GCA. ... discontinue Prednisone, even with the Acterma ... GCA/PMR is a stubborn disorder that
C-reactive protein (CRP) and erythrocyte sedimentation rate (ESR) levels are "monitored" when a person is on...
monitored" when a person is on Actemra ... When a person is on Actemra a doctor ... When I didn't have an Actemra infusion ... activity" for people with PMR/GCA ... people have active symptoms of PMR/GCA
Posted: Sep 20, 2024
"Endo I saw said she could not test my adrenals until I was completely off steroids...
of this is hard for people with PMR/GCA ... He talked about new research about Actemra ... being used to treat GCA that was & ... Now Actemra is FDA approved for GCA ... Actemra worked for me but not immediately
I have never had IL-6 testing done. It does seem like it could be a useful...
considers a biologic like Kevzara or Actemra ... asked my rheumatologist why he thought Actemra ... is "implicated" in PMR and GCA
Posted: Aug 28, 2024
Sometimes I'm reluctant to say which biologic because tapering off prednisone wasn't simply a matter of...
was done with this biologic to treat GCA ... diagnosis was PMR without much evidence of GCA ... would be treated "as if" I had GCA ... I had a good response to Actemra. ... the treatment of GCA.
Posted: Aug 27, 2024
PMR was my primary diagnosis and I was treated with daily prednisone for 12 years. I...
Actemra was called my best chance of ... I relapsed when supplies of Actemra ... The available supply of Actemra was ... Actemra is FDA approved for GCA. ... Either Kevzara or Actemra should work
Posted: Aug 17, 2024
"What was the turning point that made you use a biologic?" I didn't want to take...
" I didn't want to take Actemra ... FDA approved for GCA but not PMR. ... I only tried Actemra to "get it ... I just tried Actemra to prove to my ... When Actemra worked ...
Posted: Aug 5, 2024
Methotrexate is an older conventional medication that is frequently used by rheumatologists for many autoimmune conditions....
Both Kevzara and Actema are biologics ... been shown to work for PMR and/or GCA ... Actemra and Kevzara are IL-6 receptor ... (tocilizumab) was FDA approved for GCA ... I started Actemra in 2019.
Posted: Aug 2, 2024
The biologic was called Actemra (tocilizumab). It is FDA approved for several autoimmune conditions. It was...
The biologic was called Actemra (tocilizumab ... It was FDA approved for GCA about 7 ... reading the research studies when Actemra ... was approved for GCA. ... He thought Actemra should work for PMR
I was diagnosed with GCA last July. It was very scary, I was hospitalized for 5...
I was diagnosed with GCA last July. ... I am now on a Actemra injection (self ... As far as autoimmune diseases go, GCA
I was on moderately high doses of prednisone for 12 years ... in the 20-40 mg...
Actemra would have worked sooner had ... Actemra allowed me to taper from 10 ... The relapse wasn't GCA but another ... I couldn't wait to try Actemra again ... I'm much better on Actemra.
@charlotte61 I just read your post and will share our experience. It is my husband who...
It is my husband who has GCA. ... not believe me that he could have GCA ... We've been prescribed Actemra and ... these new symptoms consistent with GCA
Posted: Mar 7, 2024