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Comments (951)
Nothing much to add except that I had an identical event. Extensive, bilateral, multiple, and massive...
https://connect.mayoclinic.org/comment/1100757/
years ago during my early days of PMR ... years after starting prednisone for PMR ... I felt great on prednisone and PMR pain ... PMR is probably in remission but I' ... being treated with a biologic called Actemra
I'm not an expert in anything. The thing I learned from the whole ordeal was how...
https://connect.mayoclinic.org/comment/1099962/
PMR is still an aberration among medical ... I didn't have any of the usual PMR ... Prior to PMR my diagnosis was a type ... rheumatologist has no plan to stop Actemra ... as long as it continues to work and Actemra
@tuckerp I definitely got the feeling that Dadcue is the king of prednisone and PMR. He...
https://connect.mayoclinic.org/comment/1099951/
Dadcue is the king of prednisone and PMR ... He did say he's still on Actemra ... rheumatologist told us, he will use Actemra ... prednisone and then will likely be on Actemra ... I say just PMR but I do not minimize
Yes ... there are 1 mg tablets of prednisone. I didn't need the 1 mg tablets...
https://connect.mayoclinic.org/comment/1099866/
the 1 mg tablets for 10 years after PMR ... If Actemra is working, a faster taper ... 12 years of prednisone use before Actemra
Advil etc just doesn't work with GCA or PMR. Really, only Prednisone and Actemra work. Prednisone...
https://connect.mayoclinic.org/comment/1099752/
just doesn't work with GCA or PMR ... Really, only Prednisone and Actemra
Having a low WBC while on Kevzara might be "transient." I experienced mild neutropenia on Actemra...
https://connect.mayoclinic.org/comment/1098977/
I experienced mild neutropenia on Actemra ... pain that isn't always caused by PMR ... I still do a monthly infusions of Actemra ... to treat PMR. ... Prednisone daily for more than 12 years for PMR
Hi Dadcue, thanks for the link regarding prednisone. I too have that “love/hate relationship with prednisone....
https://connect.mayoclinic.org/comment/1096128/
But with PMR I have had a more long ... Currently I’m on my second run with PMR ... So he is trying to get me on Actemra
@windyshores Thank you for your insight!! It helps me to feel that I'm not going crazy...
https://connect.mayoclinic.org/comment/1091317/
most complicated of his issues (with PMR ... also still new, such as prescribing Actemra
Lots of discussion on this thread to MTX. Generally the idea is to shut down your...
https://connect.mayoclinic.org/comment/1084560/
many on here say they dont work for PMR ... new inflammation and can restart the PMR ... your Dr's would be to get the PMR ... Right now you need to get PMR under ... Kevzara and Actemra.
That's a good link to save. I would agree severe fatigue should be first on the...
https://connect.mayoclinic.org/comment/1084247/
higher than the fatigue I felt with PMR ... I didn't realize this until Actemra ... controlled my PMR pain. ... Actemra was doing a great job of preventing ... finally get off Prednisone while talking Actemra
Welcome to the forum. My rheumatologist would say you have a complicated set of conditions. I...
https://connect.mayoclinic.org/comment/1083256/
Methotrexate for RA ---- Prednisone for PMR ... with Reactive arthritis, uveitis, and PMR ... Humira didn't work for PMR but ... I was then switched to Actemra (tocilizumab ... Actemra (tocilizumab) is an IL-6 inhibitor
"At present I'm taking methotrexate, prednisone, duloxatine and lyrica. With minimal relief." I remember taking all...
https://connect.mayoclinic.org/comment/1082873/
I can only imagine what PMR on top of ... I had PMR on top of reactive arthritis ... ReA) so I imagine the combination of PMR ... monthly infusion of a biologic called Actemra ... aren't too many biologics for PMR
I never had my IL-6 level checked. However, I'm taking a medication that inhibits the IL-6...
https://connect.mayoclinic.org/comment/1079602/
relieved my pain after 12 years of PMR ... inhibition works but it seems to stop my PMR ... A theoretical diagram of how Actemra ... #39;t checked first before starting Actemra ... https://www.pmrandil6.com/il-6-and-pmr
@megz Thank you for your explanation of what happened to you and what you've learned about...
https://connect.mayoclinic.org/comment/1073751/
Given he was already sick with PMR, ... Then last year in May he developed PMR ... prays they won't get when they get PMR ... He's also taking a drug called Actemra
I was given a biologic medication called Actemra (tocilizumab). It blocked the IL-6 inflammation pathway implicated...
https://connect.mayoclinic.org/comment/1063653/
given a biologic medication called Actemra ... inflammation pathway implicated in both PMR ... Actemra seemed to control my PMR symptoms ... The added bonus was --- Actemra didn ... However, Actemra didn't suppress
@csm70 My husband developed PMR in May 2023 and GCA in February 2024. Since developing GCA...
https://connect.mayoclinic.org/comment/1061360/
@csm70
My husband developed PMR in ... developing GCA he has been put on Actemra ... to 50 mg at the moment with weekly Actemra ... be safe to take only Prednisone and Actemra ... It's on PMR but I would think could
I was diagnosed with PMR in July. I started on 60mg of Prednisone and then added...
https://connect.mayoclinic.org/comment/1048810/
I was diagnosed with PMR in July. ... Prednisone and then added a weekly shot of Actemra ... mgs) eventually and only using the Actemra ... experience any side effects from the Actemra
I liked my rheumatologist at the University that I saw at my rheumatology visits for 12...
https://connect.mayoclinic.org/comment/1047583/
It may be the only way you will get Actemra ... For instance, Actemra is not FDA-approved ... for PMR. ... One thought: Actemra works for one thing ... FDA approved for either uveitis or PMR
Thank you for sharing that. I feel fortunate that I was able to figure out he...
https://connect.mayoclinic.org/comment/1045559/
months after he was diagnosed with PMR ... I argued with her that he had PMR for ... couple weeks later we started the Actemra
My very first injection of Actemra was on January 1st, 2019. I thought it was appropriate...
https://connect.mayoclinic.org/comment/1045355/
My very first injection of Actemra was ... wasn't overly optimistic about Actemra ... I was diagnosed with PMR only and not ... If PMR symptoms were the only concern ... Actemra was tried again except I did
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