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548 total results
Comments (480)
Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...
https://connect.mayoclinic.org/comment/782928/
the following describes my recent NET ... July 1, 2022 I had the removal of a neuroendocrine ... tumor in the small bowel and one of ... uptake that is usually indicative of NET
Hello @wagneriandreamer and welcome to Mayo Connect. I'm sorry to hear of your recent health issues...
https://connect.mayoclinic.org/comment/767955/
fact, you have been diagnosed with a neuroendocrine ... tumor I would encourage you to seek ... a consult with a NET specialist. ... is a Mayo facility where there are NET ... learning as much as possible about NETs
Hi @casualsuman and @sanjaykumar1. It looks like you may have created 2 accounts - Perhaps son...
https://connect.mayoclinic.org/comment/761776/
know if the levels are related to the neuroendocrine ... patients with a suspected or confirmed neuroendocrine ... tumors. ... As a result, CgA testing for neuroendocrine ... that shows signs of a NET when a person
I would like to thank three remarkable, caring doctors at Mayo Clinic who have offered support...
https://connect.mayoclinic.org/comment/692092/
support and education in the area of neuroendocrine ... tumors. ... much needed explanation of tests for NETs ... Jacksonville, FL, online support group for NETs ... presentations that I have used in the NETs
Hi Kate12345 I am also a PNET patient diagnosed in 2017. I had a partial pancreactomy...
https://connect.mayoclinic.org/comment/665403/
I had two primary tumors in the head ... well above the range at 637 but my NET ... if they cannot locate the primary tumor ... to invite you to our Facebook group Neuroendocrine ... a topic every month, speakers and Net
Hello @trivia and welcome to Mayo Clinic Connect. I see that you have posted this question...
https://connect.mayoclinic.org/comment/600397/
you have posted this question in the NETs ... Have you been diagnosed with a neuroendocrine ... tumor?
@anasashesh87 I am only speaking from personal experience. cancer. Long before anything turned up on scans,...
https://connect.mayoclinic.org/comment/1496371/
Since that time, I have heard other NET ... Carcinoid Cancer Foundation explains neuroendocrine ... tumor. ... those with genetic risks, the UCSF Neuroendocrine ... offer the best downloadable guides:
Neuroendocrine
@vinnie694: My Neuroendocrine road has been similar to your journey. A while back I believe you...
https://connect.mayoclinic.org/comment/1496000/
@vinnie694: My Neuroendocrine road ... that experience was helpful to your NET ... to be much interest in Alpha’s PRRT tumor
@tiger11073: You have good instincts in not wanting to “just follow” your cancer tumor. Those of...
https://connect.mayoclinic.org/comment/1492157/
wanting to “just follow” your cancer tumor ... Those of us with Neuroendocrine tumor ... benefit from a consultation with a NET ... NET cancer tumors are different from ... Most NET tumors are very slow growing
@tomrennie I thought it was you 🙂 This is going to be a bit long. Sorry...
https://connect.mayoclinic.org/comment/1454845/
was a very small typical carcinoid tumor ... have DIPNECH (diffuse intrapulmonary neuroendocrine ... because the pathologist called the tumor ... he would have operated on the first tumor ... that I needed a second opinion from a NETs
I'm so sorry you have to go through this. As others have mentioned seeing a net...
https://connect.mayoclinic.org/comment/1435930/
As others have mentioned seeing a net ... considering the difficulty in locating the tumor ... https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Hello @jessie1990 I did an internet search, as did @jessie1990, and found St. Vincent's University Hospital,...
https://connect.mayoclinic.org/comment/1427382/
;s University Hospital, which is a NETs ... www.stvincents.ie/departments/national-centre-for-neuroendocrine-tumours-net ... californiazebra mentioned in her post, NET
I think I understand what you are saying. I simply don't believe a person that has...
https://connect.mayoclinic.org/comment/1351870/
;t believe a person that has had a NETs ... tumor removed is ever truly cancer ... live to be a hundred, but there are Neuroendocrine
I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...
https://connect.mayoclinic.org/comment/1351342/
I was diagnosed with my pancreatic neuroendocrine ... tumor. ... He assumed it was neuroendocrine and ... surprised but assured me it was small and NET ... I also asked about removing the tumor
Hello I had very similar concerns to you. Also worried I had nets elsewhere and it...
https://connect.mayoclinic.org/comment/1351252/
Also worried I had nets elsewhere and ... came back normal and negative for nets ... colorectal surgeon, a GI specialist and à neuroendocrine ... mucosa and deep resection margins clear/tumor
Im so sorry you have to go through this. As someone else has said, it's very...
https://connect.mayoclinic.org/comment/1328819/
, it's very important to see a net ... at https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Greetings! I feel I've seen you around! I follow NETs as my initial diagnosis was a...
https://connect.mayoclinic.org/comment/1305285/
I follow NETs as my initial diagnosis ... was a rare neuroendocrine tumor in
Yes the biopsy results came back as neuroendocrine tumour g1 net ki 67 under 1% but...
https://connect.mayoclinic.org/comment/1293816/
Yes the biopsy results came back as neuroendocrine ... tumour g1 net ki 67 under 1% but it ... always the best for detecting these tumours
I'm sorry you're going through this. It sounds like your doctor has pretty much admitted that...
https://connect.mayoclinic.org/comment/1293297/
specialist is at least well versed in NETS ... You can search for a net specialist ... https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database ... if what your doctor - including a net ... netcancerawareness.org
https://www.ncf.net
I found this helpful article about nutrition and NETs - Eating Right with Neuroendocrine Tumors https://netrf.org/old-for-patients/living-with-nets/nutrition/...
https://connect.mayoclinic.org/comment/1280184/
helpful article about nutrition and NETs ... - Eating Right with Neuroendocrine ... Tumors https://netrf.org/old-for-patients ... /living-with-nets/nutrition/
@fraaseo ... considered getting a referral from your NETs
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