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266 total results

Comments (248)

For everyone suffering MEM/TTTS: there is a surgery, I've had it on both ears, they simply...

https://connect.mayoclinic.org/comment/1428115/

Medication that works for some: carbamezapine ... Carbamezapine is known to target specifically ... newer drugs to try first, but it's carbamezapine

Discussion: Has anyone had Middle Ear Myoclonus and how do you deal with it?

Support Group: Ear, Nose & Throat (ENT)

Posted: Nov 1 8:17am

Dear Carmen. I suffered rt side Trigeminal neuralgia some 18 months ago. Caused by playing a...

https://connect.mayoclinic.org/comment/1414775/

Prescribed dangerous cabamazepine.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 13 1:59pm

Jake, I have trigeminal neuralgia. i.e. pain across upper right teeth gums and sometimes in the...

https://connect.mayoclinic.org/comment/1255108/

Was prescribed cabamazepine.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 10 9:01pm

William, Am 82 with trigeminal neuralgia. Prescribed cabamazepine. Stopped taking after finding that vitamin methylcobalamin (B12)...

https://connect.mayoclinic.org/comment/1262045/

Prescribed cabamazepine. ... Cabamazepine makes liver haptic (hepatitis

Discussion: How much R-ALA to take?

Support Group: Neuropathy

Posted: Mar 19 2:42pm

I have trigeminal neuralgia. Pain stopped with cabamazepine which is similar to gavapentine. Stopped cabamazepine because...

https://connect.mayoclinic.org/comment/1325773/

Pain stopped with cabamazepine which ... Stopped cabamazepine because of it&#39

Discussion: Everyone with Peripheral Neuropathy

Support Group: Neuropathy

Posted: Jun 12 2:30pm

@notborntoburn Hi, Marianne. I have idiopathic small fiber peripheral polyneuropathy, which sounds like what you describe....

https://connect.mayoclinic.org/comment/314323/

Several years ago I tried carbamazipine ... that I have taken both Imipramine and Carbamazipine

Discussion: trying a new combo drug therapy

Support Group: Neuropathy

Posted: Jun 19, 2020

Disliked gabepentin. Was taking 900 3 times a day for neursarcordosis. Like carbamzepine and duloxetine.

https://connect.mayoclinic.org/comment/1147186/

Like carbamzepine and duloxetine.

Discussion: Gabapentin dosing

Support Group: Neuropathy

Posted: Sep 25, 2024

I take CarBAMaziphine 2× daily for my Trigeminal neuralgia. It's an anti seizure medication/anti convulsant. Before...

https://connect.mayoclinic.org/comment/1045317/

I take CarBAMaziphine 2× daily for my

Discussion: Trigeminal Neuralgia*

Support Group: Brain & Nervous System

Posted: Apr 4, 2024

Thanks for your reply, it helps not to feel I am the only one taking this...

https://connect.mayoclinic.org/comment/944417/

several pain medications, methadone, carbamezapine

Discussion: Radiation side effects with H&N cancer. When will they ever end?

Support Group: Head & Neck Cancer

Posted: Oct 8, 2023

Hi Joan, I take 900 mg of Carbatrol, which is the brand for Carbamazapine, for seizures....

https://connect.mayoclinic.org/comment/271918/

Carbatrol, which is the brand for Carbamazapine

Discussion: Lump by screw from gamma knife surgery, anyone else?

Support Group: Brain Tumor

Posted: Feb 5, 2020

Yeah, I tried some others like Gabapentin and carbamazapene, which made me nauseous, and the latter...

https://connect.mayoclinic.org/comment/1119215/

tried some others like Gabapentin and carbamazapene

Discussion: healing Trigeminal Neuralgic Pain (TNP) caused by molar extraction?

Support Group: Neuropathy

Posted: Aug 7, 2024

@Terrydalecasino I have been on primidone since 1978. Neurologist back then, Dr. Terrence Casino took me...

https://connect.mayoclinic.org/comment/1084651/

However, I still take Carbamazipine

Discussion: Help? Unable to get answer from mfg on Primidone for benign tremors.

Support Group: Epilepsy & Seizures

Posted: Jun 11, 2024

Hi. I had a very extreme boutique of face and neck pain 7 months ago. Developing...

https://connect.mayoclinic.org/comment/949184/

on 2400 MG of gabapentin and 200 MG carbamazapine

Discussion: Pressure in ears with burning face

Support Group: Neuropathy

Posted: Oct 17, 2023

Yes, i am suffering with BFS. Mine started a year ago with twitching in my lower...

https://connect.mayoclinic.org/comment/904729/

She ordered a prescription for Carbamapezepine

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Jul 30, 2023

Sarah. My trigeminal neuralgia started 2 years ago,about a month after having 2 upper rt cracked...

https://connect.mayoclinic.org/comment/1246900/

Dr.diagnosef TN and put me on cabamazepine

Discussion: Sharp electric pain in right top side teeth and gum?

Support Group: Neuropathy

Posted: Feb 27 6:41pm

Victor, since being diagnosed with trigeminal neuralgia, I have learned thru internet that all nerves are...

https://connect.mayoclinic.org/comment/1273507/

term effects, I have gone back on CABAMAZEPINE

Discussion: Does magnesium help neuropathy?

Support Group: Neuropathy

Posted: Apr 3 3:11pm

nerves are coated in myelin which need plenty of B12. Don't know how to make them...

https://connect.mayoclinic.org/comment/1275001/

Pain and numbness is zero because of cabamazepine

Discussion: Trigeminal Neuralgia treated with Radiation caused eye numbness

Support Group: Neuropathy

Posted: Apr 5 3:14pm

For me it worked for 9 months. Now, suddenly I have a bad relapse. I did...

https://connect.mayoclinic.org/comment/1305462/

I use oxcarbamazepin to keep the pain

Discussion: Postherpetic Neuralgia (Shingles): Any successful treatment?

Support Group: Brain & Nervous System

Posted: May 16 11:44am

I have an appt. At John's Hopkins in November. 7 months of all over head and...

https://connect.mayoclinic.org/comment/940197/

Been on high dose of Gabapentin, carbamazapine

Discussion: Vestibular migraine: What symptoms do you experience?

Support Group: Headache & Migraine

Posted: Oct 1, 2023

Sorry forgot to say how I use cayenne. I put 1/2 teaspoon into glass of COLD...

https://connect.mayoclinic.org/comment/1257952/

because liver can be damaged just like cabamazepine

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 14 2:51pm