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Comments (2,349)
Hi, @jimbontexas, what is your first name? My name is Ame Stanko and I live in...
I was treated with high doses of Prednisone ... starting March 16th and then weaned off ... I can't recall what my taper was
Support Group: Autoimmune Diseases
Posted: May 31, 2023
I have been taking prednisone since March 1, 2023. My bloodwork in December was (excellent) per...
I have been taking prednisone since ... refuses to do any lab work until I’m off ... is from the PMR, what is from the prednisone ... Started prednisone at 15 mg. ... I’ll discuss options to taper slowly
Posted: May 29, 2023
I am 68 and have been dealing with PMR diagnosis for going on four years. It...
, I proceded a bumpy path down the taper ... , going off completely once and having ... This month I went completely off after ... might not tolerate (just want to be off ... I have been off for maybe a week and
Hi, I have had these symptoms as well. It started right after I had the 1st...
Anyhow, this Dr. put me on a tapering ... dose of prednisone and then kept me ... actually at the time had asked to get off ... the prednisone because I did not want ... to ask if I could try the prednisone
Posted: May 19, 2023
I have seronegative spondyloarthropathy diagnosed as reactive arthritis. I was HLA-B27+ along with uveitis and excruciating...
followed by a fast taper every year ... I wanted to be completely off prednisone ... and taper off quickly again. ... happened once while I was on Actemra and off ... prednisone.
Wow. My father has PMR (and may or may not have had GCA) and is very...
s currently been holding at 7.5 mg prednisone ... reluctant to begin a trial dose of prednisone ... My dad also requires a very slow taper ... realize it could take so long to get off ... prednisone, that adrenal insufficiency
thankyou for your reply . Are you better now back to normal? I spent years going...
I spent years going from 8mg of Prednisone ... i decided that had to be it and i tapered ... off down to 2mg taking 12 days. ... February having reduced to nil i came off
I was diagnosed with PMR in late November. I started on 20 mg of Prednisone. I’ve...
I started on 20 mg of Prednisone. ... I’ve tapered off to 8 mg over the past ... and have been trying to continue to taper ... I have an ulcer from the prednisone
I was miserable on prednisone and my quality of life was deteriorating after 12 years of...
I was miserable on prednisone and my ... I was able to taper off prednisone within ... I might have tapered off sooner except ... I tapered off prednisone in 3 months ... I have been off prednisone for 3 years
Posted: May 10, 2023
Hello MaryMV: I have had a somewhat similar experience to share with you. I have had...
Originally was treated with Prednisone ... for several month with a gradual taper ... off at the end (almost a year). ... Had to quit the Prednisone due to severe
Are you tapering by 5 mg per week? I don't believe there is any correct way...
off that is "predetermined.&#34 ... was wearing off by then if I took my ... When I first tapered off prednisone ... When Actemra was restarted, I was off ... Good luck tapering off prednisone.
Posted: Apr 25, 2023
I haven't had GCA but have had 2 occurrences of PMR. First time took 3 and...
time took 3 and half years to get off ... of prednisone and I was in remission ... The second time I was able to taper ... off in 1 and half years which I think ... of prednisone.
There was a study published in New England J of Medicine that indicated Actemra is helpful...
that indicated Actemra is helpful in tapering ... off Prednisone, reducing relapses, ... the adverse events when compared to Prednisone
Posted: Apr 23, 2023
I personally take a biologic called Actemra (tocilizumab). My rheumatologist had to get authorization to prescribe...
I was able to taper off prednisone in ... 12 months after taking prednisone for ... the problems I had when I was taking prednisone ... He didn't think taking prednisone
Posted: Apr 23, 2023
Are you currently taking both Actemra and prednisone? I took prednisone daily for 12 years for...
before I was able to get completely off ... prednisone the first time. ... Actemra was restarted, I was able to taper ... off prednisone again in a couple of ... rheumatologist doesn't want me off
Posted: Apr 16, 2023
I have peripheral neuropathy too. It was confirmed by an EMG and a nerve conduction study...
that it seems to be improving since I tapered ... off prednisone. 1) Prednisone is ... Prednisone also interferes with vitamin ... Because of taking prednisone, I was ... I have been off prednisone for 3 years
One of the worst aspects of PMR, for me, is that the treatment (prednisone) works but...
PMR, for me, is that the treatment (prednisone ... there is all this pressure to get off ... , which might allow me to taper to a ... the face of all the pressure to get off ... prednisone.
How did you feel about PMR being treated with prednisone? I still struggle with that issue...
off prednisone and I tried many different ... I tried to taper off but there was no ... A year later, I was off prednisone. ... As soon as I got off prednisone the ... I tapered prednisone from 15 mg to zero