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Comments (956)
Welcome @sunflowergirl050710, It's difficult not to worry about a treatment when you are not sure of...
fiber neuropathy. ... fiber neuropathy, but are rare in patients ... without small fiber neuropathy.&#34 ... ; --- IVIg for Small Fiber Neuropathy ... Do you mind sharing what kind of neuropathy
Support Group: Neuropathy
Posted: May 4, 2023
I was diagnosed with idiopathic small fiber neuropathy 7 years ago. I have tried every med...
I was diagnosed with idiopathic small ... fiber neuropathy 7 years ago. ... Nothing has helped. Nothing. ... keep up with the paltry amount of neuropathy ... It is what it is.
Support Group: Neuropathy
Posted: May 4, 2023
The Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments you might find...
discussions you might find helpful: ... --- Small Fiber Neuropathy: What helps ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy ... : What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours
Support Group: Neuropathy
Posted: Apr 20, 2023
Good evening @dave42 and a big, warm, welcome to Connect. I think you might be talking...
you may have been told you have SFN, small ... fiber neuropathy. ... What vitamins are you taking now? ... community I think it will be helpful ... now very attached to three forms of help
Support Group: Neuropathy
Posted: Apr 18, 2023
Good evening @pinkton, My goodness, it has been quite a while since you posted here on...
You know....neuropathy has a way of ... prepare me every day to battle my SFN (small ... fiber neuropathy). ... What medications have you found to be ... helpful up to this point?
Support Group: Neuropathy
Posted: Mar 30, 2023
Good evening to those of you who are a bit overwhelmed by all the commotion about...
door a bit more for those in need of help ... the only pain medication I use for Small ... Fiber Neuropathy that has been on a ... Adding the two together creates what ... who are challenged by some form of neuropathy
Thanks for replying Chris. I am very discouraged I guess. My pain never stops. The spasms...
primary doctor who is wonderful wants to help ... I will have to read up on SFN and small ... fiber neuropathy. ... to just sit down and explain to me what ... to expect or how to deal with what
Support Group: Neuropathy
Posted: Oct 19, 2019
@martinsmckinney there are a couple of discussions you may want to post questions in to meet...
> Groups > Neuropathy > Small ... Fiber Neuropathy? ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy ... Fiber Neuropathy (SFN) -- https:// ... connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy
Discussion: Skin rash and pain
Support Group: Neuropathy
Posted: Oct 15, 2019
I have had tremendous muscle weakness, but my tendons bother me most. I tested positive for...
I tested positive for severe small fiber ... neuropathy a few years ago in all 5 ... Carbamazepine, Requip and Oxy help. ... What are you taking?
Hello @terryrose, Welcome to Connect. I have peripheral neuropathy. My diagnosis is idiopathic small fiber PN...
My diagnosis is idiopathic small fiber ... treatments and therapies that can help ... experience with you and you can learn what ... has helped them. ... posted my story earlier on Connect with what
Support Group: Neuropathy
Posted: Sep 8, 2019
Diabetes does seem to be the leader along with idiopathic neuropathy. My cause is B12 deficiency....
be the leader along with idiopathic neuropathy ... B12 injections have helped me level ... anyone in the forum has experienced small ... fiber turning into large fiber and ... what the progression of time was between
Support Group: Neuropathy
Posted: Aug 20, 2019
@helennicola, Good afternoon, thanks for responding today. I will cut right to the chase. The tingling...
will measure the percentage of living small ... fiber neuropathy cells in your sample ... and lifestyle adjustments that can help ... We can be right here to help you discover ... what is possible.
Support Group: Neuropathy
Posted: Aug 15, 2019
@lynnaustin Wow...that was fast. Thank you for responding. I am tagging @johnbishop since he also replied...
you request a skin biopsy to detect small ... fiber neuropathy (SFN). ... These small fiber nerves seem to create ... If I may ask, what dosage are you using ... balms or lotions or compounds that help
Support Group: Neuropathy
Posted: Aug 15, 2019
@rucyrious, Good evening. You have told your story well. What I hear loud and clear is...
What I hear loud and clear is that you ... that someone would be available to help ... Biofeedback was helpful in becoming ... that the needles and tingles from my small ... fiber neuropathy SFN) appear to be
Support Group: Depression & Anxiety
Posted: Aug 9, 2019
@peggyn, Good afternoon. I will try to answer your questions succinctly. First.....a question for you. How...
The MFR therapist can feel what is under ... With the diagnosis of Small Fiber Neuropathy ... Your therapist will also teach you what ... massagers that may be of surprising help
Support Group: Neuropathy
Posted: Jul 17, 2019
Hello Catie @cbnewpain -- Welcome to Connect. You mentioned you have vitamin B12 deficiency. Vitamin B12...
trying to boost your B12 levels to help ... I only have numbness with my small fiber ... peripheral neuropathy so I'm hoping ... members can share their experience and what ... helps with the pain.
Support Group: Neuropathy
Posted: Jul 13, 2019
Hi @lovee, Welcome to Connect. Thank you for sharing what helps you. I have idiopathic small...
Thank you for sharing what helps you ... I have idiopathic small fiber peripheral ... neuropathy. ... diagnosed with a specific form of neuropathy
Support Group: Neuropathy
Posted: Jun 26, 2019
Hello @tlsonksen, Welcome to Connect. Thanks for sharing your post. I have to tell you that...
I have small fiber neuropathy but only ... One of my biggest fears with my neuropathy ... What to Do When It’s Time for Your Parents ... to physical therapy or exercises to help ... are things he might be able to do to help
Support Group: Neuropathy
Posted: Jun 23, 2019
Hello Mat @mathewv -- Welcome to Connect. I'm tagging our moderator @lisalucier to see if we...
> Groups > Neuropathy > Living ... with Neuropathy - Welcome to the group ... / I also have small fiber peripheral ... neuropathy but don't have pain ... I posted what helps me earlier on Connect
Support Group: Neuropathy
Posted: Jun 20, 2019
@jola65, @lisalucier, @johnbishop, Electric shocks were an early phenomenon in my history with small fiber neuropathy....
early phenomenon in my history with small ... fiber neuropathy. ... It appears that the fibers send a confusing ... What are you up to today? ... use medical cannabis vapes to get help
Support Group: Neuropathy
Posted: Jun 18, 2019