Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
387 total results
Comments (375)
@ecalderman Your situation sounds very much like mine. You probably don't have the same thing but...
https://connect.mayoclinic.org/comment/78687/
My diagnosis is Tarlov cysts (perinerual ... cysts). ... Tarlov cysts are considered an incidental ... The cysts were present back in 2003
Discussion: Pain in the butt - Can't sit down
Support Group: Chronic Pain
Posted: Aug 6, 2019
Hi! I’ve been having piriformis muscle pain for over two months thought something was wrong and...
https://connect.mayoclinic.org/comment/751200/
There’s a 4.4cm tarlov cyst sitting ... brave enough to support symptomatic tarlov ... cysts?
Discussion: Tarlov Cyst on the spine: Any advice?
Support Group: Spine Health
Posted: Sep 18, 2022
I suffered with lower back pain for 8 years and had a fantastic, very knowledgeable neurosurgeon...
https://connect.mayoclinic.org/comment/964336/
Johns Hopkins that was familiar with Tarlov ... Cysts. ... The Tarlov cyst got so large that it ... He removed the Tarlov Cyst and implanted ... The Tarlov cyst is gone but the plate
Discussion: Tarlov Cyst on the spine: Any advice?
Support Group: Spine Health
Posted: Nov 13, 2023
Hello, and my sympathies re: your pain. I too am struggling; have been for 7 years....
https://connect.mayoclinic.org/comment/152339/
My docs don't seem to recognize Tarlov ... cysts as a real "thing" and ... I have just requested to join the Tarlov ... Cyst Society of America group on Facebook
Discussion: Perineural or Tarlov cysts
Support Group: Spine Health
Posted: Jan 26, 2020
Sherri, Just wondering, do his MRI's happen to note perineural cysts or Tarlov cysts on his...
https://connect.mayoclinic.org/comment/245662/
MRI's happen to note perineural cysts ... or Tarlov cysts on his spine? ... all the tests were normal, and the cysts ... walking, I started researching these cysts ... I have Tarlov Cyst Disorder, affecting
Discussion: Undiagnosed - Debilitating Abdominal Nerve Pain
Support Group: Brain & Nervous System
Posted: Feb 16, 2019
@rwdixon4 Hi Bob, In 1977, at 19 years old, I had a T2 to L2 fusion...
https://connect.mayoclinic.org/comment/1425123/
Bertolotti's, Flat Back Syndrome, and Tarlov ... Cysts (but only 1 cysts was a problem
Discussion: T10 to Pelvis Fusion. Experience, Comments Appreciated
Support Group: Spine Health
Posted: Oct 28, 2025
@1needanswers Hi Christine, and welcome to this group of brave and struggling souls. What you have...
https://connect.mayoclinic.org/comment/78751/
say you know what caused you to have Tarlov ... one discussion in that group about Tarlov ... connect.mayoclinic.org/discussion/perineural-or-tarlov-cysts
Discussion: Pain in the butt - Can't sit down
Support Group: Chronic Pain
Posted: Nov 1, 2020
My right leg began to be weak 5 years ago. Hip, knee and ankle flexors all...
https://connect.mayoclinic.org/comment/1065891/
A pelvic MRI showed bilateral tarlov ... cysts at S-2,3 and a Dr who specializes ... in tarlov cyst surgery has told me ... the cysts are the cause of my nerve
Discussion: One leg has a smaller diameter than the other
Support Group: Neuropathy
Posted: May 11, 2024
Cauda equina syndrome is normally an emergency unless you have Tarlov cysts also called perinerual cysts....
https://connect.mayoclinic.org/comment/247693/
normally an emergency unless you have Tarlov ... cysts also called perinerual cysts. ... seem to want to acknowledge these cysts ... True, there are people that have the cysts ... see if there is any mention of the cysts
Discussion: Cauda equina syndrome (CES)
Support Group: Chronic Pain
Posted: Mar 1, 2019
I sent you a PM but am also posting this here because I think it may...
https://connect.mayoclinic.org/comment/610423/
now understand that, just like the Tarlov ... cysts that I have/had (I had surgery ... Tarlov cysts and arachnoiditis go hand
Discussion: Anyone been diagnosed with arachnoiditis after spine surgery?
Support Group: Spine Health
Posted: Jun 21, 2021
Hi. I am actually waiting for a call back from Johns Hopkins Tarlov Cyst Program. I...
https://connect.mayoclinic.org/comment/1391079/
for a call back from Johns Hopkins Tarlov ... Cyst Program. ... Researched Tarlov Cysts. Wow.
Discussion: Tarlov Cyst on the spine: Any advice?
Support Group: Spine Health
Posted: Sep 10, 2025
@dkhouri I'm so sorry to hear that you're suffering and can't find help. I can definitely...
https://connect.mayoclinic.org/comment/103476/
is going to perform surgery on my Tarlov ... cysts. ... He specializes in Tarlov cysts but does ... be able to take care of arachnoid cysts
Discussion: Arachnoiditis: Trying to find a specialist
Support Group: Spine Health
Posted: Oct 16, 2020