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702 total results
Comments (682)
For what it is worth ... I experienced infections while on prednisone. Most of my infections...
some kind if it wasn't entirely a PMR ... Currently, my only treatmen is Actemra ... #34;standalone" treatment with Actemra
I'm 69 years old ... 70 will happen way too soon. I'm making up for the...
the time lost during my 12 years of PMR ... I get my infusions of Actemra through ... However, after 4 years of Actemra, I ... I still want to get off Actemra for
Discussion: GCA conserns
Posted: Nov 29, 2023
I think it’s a wonderful thing that you feel up to getting back out. I am...
I am also 64 and PMR has definitely ... Good luck with reducing Actemra—sounds
Discussion: GCA conserns
Posted: Nov 30, 2023
@csm70 My husband developed PMR in May 2023 and GCA in February 2024. Since developing GCA...
@csm70 My husband developed PMR in ... developing GCA he has been put on Actemra ... to 50 mg at the moment with weekly Actemra ... be safe to take only Prednisone and Actemra ... It's on PMR but I would think could
Posted: May 3 9:29am
@dadcue, I have only used prednisone for my PMR and both times I was able to...
I have only used prednisone for my PMR ... marilyncarkner has posted about using Actemra ... Here are a few articles I found on Actemra ... (Tocilizumab) used to treat PMR. ... Tocilizumab Found Steroid-Sparing in PMR
How is anyone supposed to know when PMR "burns out" or "self limited itself? If PMR...
How is anyone supposed to know when PMR ... If PMR did that, it wasn't like ... At least, I never knew if PMR self-limited ... Actemra was prescribed for the part ... that was PMR.
Posted: Apr 10 6:41am
I was diagnosed with PMR in July. I started on 60mg of Prednisone and then added...
I was diagnosed with PMR in July. ... Prednisone and then added a weekly shot of Actemra ... mgs) eventually and only using the Actemra ... experience any side effects from the Actemra
Hi John, Thanks for your work with this forum. It’s a great resource for patients to...
with GCA, on prednisone, and also Actemra ... I was thinking that the Actemra infusions ... on health issues, have read up on PMR
Posted: Nov 13, 2023
GCA is for Giant Cell Arteritis. I would highly recommend seeing a rheumatologist for vision change...
rheumatologist for vision change if you have PMR ... My husband had PMR and later developed ... He just stated weekly Actemra injections ... His PMR was under control.
Posted: Mar 20 1:00pm
@megz Thank you for your explanation of what happened to you and what you've learned about...
Given he was already sick with PMR, ... Then last year in May he developed PMR ... prays they won't get when they get PMR ... He's also taking a drug called Actemra
Posted: May 24 9:46am
This is my personal opinion but your question isn't too personal. It is a very good...
However, Actemra didn't seem to ... Actemra allowed me to rapidly decrease ... Before starting Actemra, the lowest ... the time since I was diagnosed with PMR ... I'm not saying that Actemra doesn
Posted: Jan 19 5:08pm
I'm not a prednisone advocate but have taken it for 2 occurrences of PMR (3-1/2 years...
have taken it for 2 occurrences of PMR ... I haven't taken Actemra but would ... Just an fyi... "Actemra has a boxed ... Actemra may cause serious infections ... Some infections from Actemra may be
Posted: Dec 9, 2023
The medical literature says PMR lasts 1-2 years for most people. This means approximately 50% or...
The medical literature says PMR lasts ... or more people newly diagnosed with PMR ... There are people who have a relapse of PMR ... I was treated with prednisone for PMR ... been for a biologic medication called Actemra
I have tapered off prednisone when on Actemra ... not Kevzara. Kevzara works on the same...
I was surprised by not having my PMR ... PMR but I didn't know for sure. ... pain but I didn't think it was PMR ... didn't think my symptoms were PMR ... multiple autoimmune conditions including PMR
You are right ... there isn't much research about how long one needs to be on...
one needs to be on a biologic for PMR ... because I took prednisone to treat PMR ... with poor adrenal function more than PMR ... endocrinologist didn't know what PMR ... job of controlling PMR pain so I stopped
I have had 15 treatments of ACTEMRA for GCA (I also have PMR) but wanted to...
I have had 15 treatments of ACTEMRA ... for GCA (I also have PMR) but wanted ... being treated at mayo has been using ACTEMRA ... lose hope as I was diagnosed with PMR
Hi Bev I had PMR and subsequently GCA going back to 2013. I am still on...
Hi Bev I had PMR and subsequently GCA ... 2017, I was part of the trials for Actemra ... I have been on and off with Actemra ... I did not have a problem with Actemra
Support Group: Autoimmune Diseases
Posted: Jan 26 8:41pm