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548 total results
Comments (480)
Im sorry you’re going through this. The best thing you can do is fully educate yourself...
Next is to consult with a net specialist ... questions to ask at https://www.cancer.net ... /cancer-types/neuroendocrine-tumors/
When my NET was diagnosed I was seeing an oncologist who immediately recommended chemo. At age...
When my NET was diagnosed I was seeing ... I was referred to a NET specialist who ... explained NeuroEndocrine tumors in ... months of watching the growth of the tumor ... My suggestion is to locate a NET specialist
Hello @ekri, As you mentioned in your post that you reside in Greece, I wanted you...
Foundation website there is a list of NET ... link to information about European Neuroendocrine ... Tumor Society, ENETS https://www.carcinoid.org
Posted: Mar 3, 2024
@emilyfaith, offering you a virtual shoulder to lean on as you wait to hear bck from...
on as you wait to hear bck from the tumor ... wise to seek a second opinion with a NETs ... ranks among the best hospitals of neuroendocrine ... tumors if you would like to consider ... be so kind as to post the list of NETs
Posted: Feb 25, 2024
My experience was finding a similar size nodule in 2020. It was in left lung close...
Confirmed as a typical neuroendocrine ... There are typical & atypical neurendocrine ... carcinoids ( called lung NETS), I ... are several recent presentations on neuroendoctine ... tumors, known as NETS.
Support Group: Lung Cancer
Posted: Jan 19, 2024
I was diagnosed with a small NF PNET in March 2023 via EUS. I went to...
invasive ductile carcinoma with a focal neuroendocrine ... The tumor was 2.2cm and they removed ... I had 2 tumors, one was DCIS and the ... My tumor path report did not mention ... So my breast tumor is now T2B N1a M0
Check out online sites like Neuroendocrine Tumor Research Foundation to locate what to eat with NETs,...
Check out online sites like Neuroendocrine ... Tumor Research Foundation to locate ... what to eat with NETs, however the ... specialist dietitian sent me a cookbook for NETS
Posted: Sep 29, 2023
Hi @chana Sorry to hear about your new diagnosis. I see you are seeking treatment in...
I have lung NETs which can be treated ... differently than pancreatic NETs so ... Eric Liu The Role of Surgery in Neuroendocrine ... questions is when should a pancreatic tumor ... We discovered my 50+ lung tumors 15
Posted: Jun 28, 2023
@bubbles2023 Hello. Have they discussed a NET Scan with u yet? This will determine the depth...
Have they discussed a NET Scan with ... tumor. ... My biopsy on March 3rd discovered a Neuroendocrine ... and Carcinoid tumor. ... My next step is the NET Scan scheduled
Hello @merenyc and welcome to the NET support group on Mayo Connect. There are other members...
Neuroendocrine tumors grow from neuroendocrine ... tumors, here is the link. ... www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors ... Neuroendocrine tumors are rare and can ... Most neuroendocrine tumors occur in
@lizzyeastwood -- I didn't know you were going to Mayo. They do have a NETS program....
They do have a NETS program. ... There is a NETS specialist at Mayo that ... Maybe your doctors are part of a NETS ... team or consulting with their NETS ... www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors
Posted: May 17, 2023
HI @lupitaromero Hope all is well with peace in your life. I was diagnosed with large...
I was diagnosed with large cell neuroendocrine ... tumor on my lung as the primary site ... hopes that the lanreotide keeps the tumors ... at (https://netrf.org/for-patients/nets-info ... /tumor-site) and(https://www.viviendocontnes.com
Hi Michelle, I had a 2cm nonfunctioning pancreatic net on the tail of my pancreas as...
had a 2cm nonfunctioning pancreatic net ... have a functioning Or nonfunctional tumor ... Functioning tumors often produce symptoms ... Also, having a neuroendocine specialist
Sorry you're going through this. I know it's scary to have the tumor and to have...
I have lung NETS (neuroendocrine cancer ... I know another lung NETS patient who ... Again, that is neuroendocrine lung cancer ... NETS is treated differently, but the ... I just watched an lung NETS oncologist
Support Group: Lung Cancer
Posted: Apr 15, 2023
Hi Joy! You've already had your share of cancer stuff for sure. After reading your story,...
Stage 1, 0.8 mm tumor, BRCA2+, Ki67 ... Tumor 1.1 CM. ... Had surgical removal of tumor and some ... I actually have a rare neuroendocrine ... but different treatments and a lung NETS
Support Group: Breast Cancer
Posted: Apr 14, 2023
In reply to k8lyn23, Hi I had mentioned the LACNET which is a very good Los...
beginning in 2018 with high grade neuroendocrine ... tumors and her liver had innumerable ... finding a care team and managing her NET
Welcome @sueannsellers. I'm glad to hear that you are being referred to Mayo Clinic for consultation...
consultation about your recently diagnosed neuroendocrine ... tumors in the lung and liver. ... discussion here: - Welcome to the NETs ... ;d particularly like to tag fellow NETs ... Many patients with NETs have shared
Posted: Feb 5, 2023
Hello @larenn and welcome to Mayo Connect. It sounds as if you have a rather complex...
correct in my understanding that the tumors ... your skin are a type of Carcinoid Neuroendocrine ... tumors? ... Are these tumors painful? ... Are you currently seeing a NETs specialist
Welcome, @links. You may wish to connect with others living with insulinoma neuroendocrine tumor in this...
with others living with insulinoma neuroendocrine ... tumor in this active discussion: - ... NET - Insulinoma https://connect.mayoclinic.org ... /discussion/net-insulinoma/