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281 total results
Comments (268)
I'm sorry you have to go through this. My husband was on Everolimus for 3 years...
https://connect.mayoclinic.org/comment/1333991/
Has your doctor considered captem as
I have had three cycles, so far, of Lutathera, starting in December 2022. and have my...
https://connect.mayoclinic.org/comment/859738/
So I had two cycles of CAPTEM, which
@michael258 I'm sorry to hear of your diagnosis I know how scary and confusing things are...
https://connect.mayoclinic.org/comment/1584554/
things in check, including everolimus, captem
I have pancreatic NETS that have spread to my liver. I was diagnosed in August. I...
https://connect.mayoclinic.org/comment/818762/
I started my 6th CAPTEM chemo cycle
I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...
https://connect.mayoclinic.org/comment/1217431/
Lanreotide my NET Specialist recommended CapTem
Hi LouLou23. I just turned 69yrs. I had an upper left lung lobectomy in 2019 and...
https://connect.mayoclinic.org/comment/843172/
’ve just finished my 10th cycle of CAPTEM
@djchambers I'm so sorry you have to deal with a reoccurrance. I know how upsetting that...
https://connect.mayoclinic.org/comment/1419380/
are covered under Part B such as the Captem
I was diagnosed with neuroendocrine metastic to the liver and 1 lymph node with pancreatic primary...
https://connect.mayoclinic.org/comment/881040/
I had 7 months of Captem that I did
First time post here. Briefly, my wife started losing weight and feeling fatigued in the first...
https://connect.mayoclinic.org/comment/866425/
she and her oncologist have chosen Captem
Good morning!!! As I mentioned above, I was diagnosed January 2020, grade 3 (Ki67 17-29 depending...
https://connect.mayoclinic.org/comment/1247365/
I started on CapTem (2 months) and unfortunately ... have started with PRRT instead of CapTem
Dr. Sonbol and his team saved my life. So, I am biased. By the time that...
https://connect.mayoclinic.org/comment/981090/
I was on CAPTEM for 12 months and now
Okay this is where we are at now. My husband found out December 5th about his...
https://connect.mayoclinic.org/comment/1246998/
He says that Captem is the gold standard
I am 48, well-diff, grade 3 (ki67 17-29), unknown primary with tumors in liver (innumerable), pancreas,...
https://connect.mayoclinic.org/comment/1117054/
I started on CapTem, then FOLFIRINOX
@mmar2025 it was discovered during emergency surgery for a perforated esophagus. Surgeon saw tumors all over...
https://connect.mayoclinic.org/comment/1541114/
reduce tumor burden I had 7 months of Captem
Dealing with Nets! Wow we are all different I learned as much as I could about...
https://connect.mayoclinic.org/comment/1190887/
I then had captem for 7 months it did
Hello @mpt and welcome to the NETs support group on Mayo Connect. You don't say how...
https://connect.mayoclinic.org/comment/1320793/
your upcoming CT scan to see if the CAPTEM
My story is long and complicated! Symptoms for a couple years was diarrhea and gerd. Dr...
https://connect.mayoclinic.org/comment/1283729/
controls symptoms I started with Chemo Captem
It really, really, really, really sux. Welcome to your new "normal". For me, I had to...
https://connect.mayoclinic.org/comment/1190944/
My Mayo team only presented CAPTEM as ... After 13 cycles of CAPTEM, my tumors
Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....
https://connect.mayoclinic.org/comment/1202313/
at MHealth Fairview started me on CAPTEM
@nannybb @jessie1990 A fellow pancreatic cancer patient asked a while back what it was like having...
https://connect.mayoclinic.org/comment/1431644/
My Mayo team only presented CAPTEM as ... After 13 cycles of CAPTEM, my tumors
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