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725 total results
Comments (701)
I’m 71. In December 2020 I went to an orthopedic doctor because both my knees were...
correctly diagnosed PMR & Vasculitis/GCA ... prednisone & a few weeks later Actemra ... I’m still on Actemra & doing well ... ’t know how long I have to stay on Actemra ... treating the PMR correctly led me to the GCA
Posted: May 12, 2023
Hello~I'm so happy to have found this group. When I lost the sight in my left...
left eye and was then diagnosed with GCA ... I found a support group for PMR/GCA ... from 80 mg of methylprednisolone plus Actemra
Hi, I was diagnosed with PMR May 5th 2021. In September diagnosed with GCA. My Rheumy...
In September diagnosed with GCA. ... My Rheumy wanted me to start ACTEMRA ... start a statin and keep going with the Actemra ... know if I really want to continue the ACTEMRA
My inflammation markers (ESD and CRP) are both low normal (EDD = 4 mm/hr and CRP...
was diagnosed with PMR and possible GCA ... prednisone and weekly injections of Actemra ... until a few days ago, but with weekly Actemra ... following a schedule similar to the Actemra ... trials for treating GCA published in
Posted: Apr 10, 2023
I believe this study only included "newly diagnosed" people so it would not apply to me....
mg is crazy fast for you as long as Actemra ... IL-6 is targeted for PMR/GCA. ... I ended up trying both Actemra (IL-6 ... I decided that Actemra worked better
The doctor has given me a 6 month tapering schedule with the weekly injections of Actemra....
schedule with the weekly injections of Actemra ... The NEJM trials of Actemra against GCA ... those taking weekly injections of Actemra
Here's my understanding of what I will be dealing with in terms of the payment schemes...
in terms of the payment schemes for Actemra ... Costs as Kaiser pharmacy: Actemra ... to treat GCA (not PMR - Actemra is ... based on a diagnosis for GCA that I ... GCA only indicated by blood markers
I wouldn't think Genetech would care about the diagnosis as long as a doctor thinks Actemra...
diagnosis as long as a doctor thinks Actemra ... I can only say Actemra worked for me ... Good luck getting Actemra approved. ... the same inflammation mechanism as GCA ... Since Actemra was FDA approved for GCA
@katclub Hi Carol: I give the Actemra injections for my GCA in my abdomen, and have...
@katclub Hi Carol: I give the Actemra ... injections for my GCA in my abdomen ... four eye surgeries, (not related to GCA
Posted: Feb 15, 2023
I was originally diagnosed with PMR over 2 years ago. I went on a 10 month...
Yes, I was then diagnosed with GCA, ... , and started monthly infusions of Actemra ... tapering off or reducing the dose of Actemra ... there has experience with stopping the Actemra ... infusions for GCA.
It took almost 6 months to be diagnosed with GCA. Part of it was my fault...
almost 6 months to be diagnosed with GCA ... I got a neurologist who diagnosed GCA ... temporal biopsy which proved that I had GCA ... the months I tried Methotrexate and Actemra
@mskatrina12 Hello Kathy. Thankyou for that hopeful tip for we suffering OLP victims. I've had mine...
Was finally prescribed Actemra , an ... immunosuppressant developed specifically for GCA ... I was on weekly Actemra injections for
Support Group: Autoimmune Diseases
Posted: Dec 17, 2021
@maryannhaller. By "GCS" do you mean GCA, Giant Cell Arteritis? Surely, with your symptoms, your rheumatologist...
By "GCS" do you mean GCA, Giant ... The "golden" test for GCA is ... 's the only sure diagnosis for GCA ... I have had weekly Actemra injections ... and then my rheumatologist put me on Actemra
@loribmt, @ttibsen, Interesting that the subject of white blood count has been brought up. First let...
Because of my GCA and the weekly immunosuppressant ... Actemra injection I get, my WBC and ... The Actemra causes the drop in WBC and ... (I didn't have the scheduled Actemra
Support Group: Cancer
Posted: May 18, 2021
@karinaph, I have been diagnosed with GCA since June, 1919. Because I had already lost my...
karinaph, I have been diagnosed with GCA ... At that time, I was also taken off Actemra ... injections for my GCA. ... a lot of pain, having stopped the GCA ... I'm only on the Actemra now - no
Posted: Feb 23, 2021
Hello @cadi, Welcome to Mayo Clinic Connect. It's really good news that they caught the GCA...
really good news that they caught the GCA ... remission and I have no experience using Actemra ... What's your experience with Actemra ... for GCA? ... /connect.mayoclinic.org/discussion/gca
Hello I have GCA. and I am on Prednisone and Actemra a a biologic I give...
Hello I have GCA. and I am on Prednisone ... and Actemra a a biologic I give my ... issues and jittery and weight gain and Actemra