To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
2,069 total results
Comments (2,004)
PMR was my primary diagnosis and I was treated with daily prednisone for 12 years. I...
Actemra was called my best chance of ... I relapsed when supplies of Actemra ... The available supply of Actemra was ... Actemra is FDA approved for GCA. ... Either Kevzara or Actemra should work
Posted: Aug 17, 2024
At this point, I can see why you don’t stop the Actemra. I have gone back-and-forth...
, I can see why you don’t stop the Actemra ... back-and-forth with prednisone and Actemra ... I would definitely try getting off Actemra
Posted: Apr 16, 2023
I have Giant Cell Arteritis and take Actemra and prednisone for treatment. Actemra is a drug...
have Giant Cell Arteritis and take Actemra ... Actemra is a drug that allows you to ... insurance pays most of the cost of the Actemra
Support Group: Autoimmune Diseases
Posted: Feb 1 4:20am
"I wasn't about to enter a long relationship with Prednisone, if there were options available to...
I have a 4 year relationship with Actemra ... relationship with prednisone after Actemra ... No guarantees Actemra will work for ... everyone but Actemra works for me.
It is sad there aren't more treatment options for PMR/GCA. I was told many times that...
rheumatologist had to get authorization to try Actemra ... exception was made for me because Actemra ... My rheumatologist thought Actemra should ... Actemra worked for me and I was able ... rheumatologist thinks I'm better off on Actemra
Posted: May 29, 2023
People say taking Prednisone is about quality of life. Waiting for prednisone to take effect every...
My monthly infusions of Actemra give ... , I'm also afraid of long term Actemra ... After 5 years of Actemra being symptom ... Minimal side effects from Actemra are
Posted: Sep 3, 2024
Welcome @pickle7, My only experience is with PMR. I'm wondering if @marilyncarkner, @paddington and @tsc may...
continuing or discontinuing treatment with Actemra ... of Giant Cell Arteritis Patients on Actemra ... creakyjoints.org/treatment/tocilizumab-actemra-giant-cell-arteritis-prolonged-remission ... any other treatment along with the Actemra
Posted: Jun 12, 2022
I'm currently doing Actema infusions for "refractory PMR." I was on prednisone for more than 12...
I'm currently doing Actema infusions ... Since Actemra isn't FDA approved ... PMR, my rheumatologist had to get Actemra ... Actemra was approved by a medical panel ... Being off prednisone makes Actemra worth
I always keep in mind that each of us has our own journey. April 2024 apparent...
Prednisolone . 7/10/24 began self injections Actemra ... Between then and now Actemra was temporarily ... holding at daily 2mg Predisone and the Actemra ... had minimal side effects with the Actemra ... If you try the Actemra.
Posted: Feb 8 9:30am
I don't wish to suggest that Actemra is a perfect solution for PMR/GCA. My rheumatologist didn't...
I don't wish to suggest that Actemra ... didn't make any guarantees that Actemra ... He just wanted me to try Actemra because ... I'm happy that I tried Actemra. ... I don't know if Actemra will ever
If Prednisone works for you ... I wouldn't tell you not to take prednisone. I try...
I try not to say Actemra will work for ... I was told NOT to try Actemra when it ... saying that I wouldn't know if Actemra ... see and offered no guarantees that Actemra ... I'm glad I tried Actemra to see
Discussion: Flare
Posted: Dec 14, 2024