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Comments (691)
Hi Debbie @debbiebas216, When I woke up with a pain level above 2 on my scale...
https://connect.mayoclinic.org/comment/1252635/
level above 2 on my scale of 0 to 10 ... that had me pain free. ... aren't alone struggling with the PMR ... and pain levels. ... search=PMR%20and%20pain%20levels.
Hi @jasharum, my scalp was tender to the touch. I didn't notice it until I touched...
https://connect.mayoclinic.org/comment/1298233/
My pains with GCA were always intermittent ... My pain with PMR was constant. ... How is your energy level? ... Both PMR and GCA can result in anemia
@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...
https://connect.mayoclinic.org/comment/1298146/
dizzyness and generalized aches and pains ... happen but nothing remotely like a PMR ... My cortisol level was "rather low ... monthly Actemra infusion to control PMR ... Kevzara is FDA approved for PMR and
Welcome @notagoodfeeling, I sense a tiny bit of humor in the member name you chose and...
https://connect.mayoclinic.org/comment/1291210/
chose and can definitely relate to PMR ... tapering process for both time my PMR ... active was to keep a daily log of my level ... taper to the next lower dose I used my level ... back up a little based on my level
I recall being similarly despondent at the same 8mg point when some morning pain and fatigue...
https://connect.mayoclinic.org/comment/1299269/
the same 8mg point when some morning pain ... 's recommendation to record a pain ... level each morning (1-10 scale) was ... PMR takes a while to resolve and prednisone ... bay while the body recovers from the PMR
Unless it is determined that your PMR is in remission (typically determined by/confirmed with SED/CRP testing),...
https://connect.mayoclinic.org/comment/1277752/
Unless it is determined that your PMR ... pain. ... on a dose that completely controls PMR ... pain until the inflammatory tests return ... to normal levels.
I was diagnosed with PMR a couple of months ago purely because I had a period...
https://connect.mayoclinic.org/comment/1279738/
I was diagnosed with PMR a couple of ... Now, with this new PMR problem, I feel ... Full body pain and nerve pain is. ... imbalances closely enough at a cellular level ... Serum levels don't always tell the
"Perhaps if we had tapered much more slowly at the beginning things would have gone better."...
https://connect.mayoclinic.org/comment/1280830/
tapered too quickly at the start of PMR ... lower than 3 mg because my cortisol level ... mg for 6 months until my cortisol level ... I still have some pain but I feel infinitely ... anything except for Actemra to control my pain
I thought they suggest that DOMs does not respond to prednisolone. I envy the people on...
https://connect.mayoclinic.org/comment/1281976/
undertaking extensive exercise programs with PMR ... repetitive - leave me with a high level ... of pain for more than a week. ... around 3 months after the onset of PMR
You have asked an interesting question. Nobody really knows how long PMR lasts except that prolonged...
https://connect.mayoclinic.org/comment/1283501/
Nobody really knows how long PMR lasts ... Some people say that for PMR the " ... flares of reactive arthritis were very painful ... When PMR was diagnosed, I initially ... prednisone for 6+ months to let my cortisol level
My experience has been very similar to yours. I was diagnosed with GCA and PMR in...
https://connect.mayoclinic.org/comment/1288758/
I was diagnosed with GCA and PMR in ... I haven't had any pain or symptoms ... of PMR or GCA since starting treatment ... would say I am definitely back to pre-PMR ... in regards to energy level and quality
Below 5, consider decrementing at 0.5 per month. By 1 at that point is often too...
https://connect.mayoclinic.org/comment/1295628/
Also…some pain is normal, and is often ... /usually not PMR at this level.
Thanks tuckerp. Thanks tuckerp for those explanations. You've obviously been dealing with this much longer than...
https://connect.mayoclinic.org/comment/1283287/
I had a particularly bad spell of pain ... over a day or two (on top of my usual levels ... of pain and stiffness caused by a fair ... No strength anywhere but a lot of pain ... GCA was tested for when PMR was diagnosed
The following link says the following: "A patient may notice a decrease in symptoms as soon...
https://connect.mayoclinic.org/comment/1277634/
(and resulting symptoms like joint pain ... My pain didn't increase on 7 mg. ... breaking the rules" by treating PMR ... This was in 2019 so PMR being treated ... could tell Actemra was working for PMR
So, let’s say “remission” is the situation where you can drop a level without experiencing PMR...
https://connect.mayoclinic.org/comment/1279214/
the situation where you can drop a level ... without experiencing PMR pain. ... month with occasional transient non-PMR ... pains, and then to zero at 0.5 per ... month, again with only non-PMR issues
I guess it comes down to what you think of as chronic. Median time with PMR...
https://connect.mayoclinic.org/comment/1284256/
Median time with PMR is close to 6 years ... mg is enough to clear the current level ... of PMR inflammation so that your pain ... start increasing - from a build-up of PMR ... levels within a week or so.
Hello @jsteck, I would like to add my welcome to Connect along with @dadcue and others....
https://connect.mayoclinic.org/comment/1292440/
.
-- PMR Diet: Foods to eat and avoid ... /
-- PMR and exercise: What helps you ... rheumatologist was to keep a daily log of my level ... of pain when I woke up in the morning ... was helpful over the course of my PMR
Very interesting. That is almost the exact schedule that I successfully followed, but I was never...
https://connect.mayoclinic.org/comment/1292608/
remember that it is not necessarily PMR ... at 10, my rheumy declared that my PMR ... types and levels, and that my pains ... were not PMR. ... Again, random minor non-PMR pains that
My understanding of the initial tapering is that there is an assumption that the starting dose...
https://connect.mayoclinic.org/comment/1289228/
levels and hopefully CRP/ESR results ... this approach is if the your CRP/ESR levels ... day when all the inflammation from PMR ... great to get to zero but only if the PMR ... As long as the PMR is still present,
Being down to 5 mg after only 3 months must be something of a record. It's...
https://connect.mayoclinic.org/comment/1284217/
It's good if you can do it, but PMR ... regular blood tests to check CRP, ESR levels ... reducing the amount of steroids my level ... of PMR needs. ... shoots back up again along with more pain
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